Physician with possible MS

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jdub1a
New Member


Date Joined Nov 2006
Total Posts : 2
   Posted 12/4/2007 2:13 PM (GMT -6)   
I am a 46 year old physician in Internal Medicine.  Several years ago I was found on an MRI to have small white matter lesions which were not diagnostic but raised the possibility of MS.  I have had repeat MRIs since then which really have not changed much.  I have undergone all the testing including evoked potentials and a spinal tap all which were normal.  I was having vision problems and was diagnosed with a 4th cranial nerve palsy which can occur in MS.  Yet, my neurologist was not willing to make the call.  Subsequently, I have developed urological problems and was referred to a "neuro-urologist" who after extensive testing did not find any neurological bladder problems. Yet still I have symptoms.  Most recently I have developed a vague, subtle symptom whereby my right lower leg feels different or heavier than the left.  I felt like I was getting weak in extension of the toes.  My neurologist has found abnormalities on my exam including hypereflexia and possible weakness on my right leg. Yet still, he was not willing to make the call.  I have seen two "super-specialists" one who thought I most likely had a rare form of MS (oligoclonal band negative MS, I assume). However, this was before I had seen the neuro-urologist.  So now, with my double vision (on looking to the side), unsteady gait (I tend to bump into walls), urological symptoms, right leg symptoms and abnormal but non-diagnostic MRI, I plan on going back to Dr. Cook in Newark to try to get a definitive diagnosis. As a physician, of course I tend to self-diagnose but I know I am not crazy. Just like anyone else, the uncertainty is killing me. I want to know, do I have MS and if so than can I be treated.  If I don't, than what do I have causing these symptoms? As a physician, I don't know of any other neurological condition which could cause this constellation of symptoms. Hopefully, answers will be forthcoming.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3538
   Posted 12/4/2007 7:36 PM (GMT -6)   

Dear jdub1a,

Welcome to the board.  I am sorry you have all this going on and no answers.  As a doctor I am sure you understand the process and the avenues to take to get those answers.  It can certainly be a frustrating thing to go through.  I won't offer you any advice or information as you didn't really pose any questions.  I can offer you support as you look for those answers.  There are many here just like you who are in limbo in the diagnostic process.  Welcome again and keep us posted as to your progress.

Love and prayers,

 


Gretchen
Diagnosed with MS July 2006
Co-moderator MS forum
 
I was strongest when I laughed at my weakness.
Elmer Diktonius
 
 
 


Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 12/5/2007 7:29 AM (GMT -6)   
Wednesday a.m.
 
Hello and good morning Jdub:
 
Do you feel extra fatigue?  Problems with extra hot days in summer?
 
I feel for you and the uncertainty you are experiencing...
 
Great luck.  John

KIMC
Veteran Member


Date Joined Aug 2005
Total Posts : 682
   Posted 12/5/2007 8:08 AM (GMT -6)   

jdub1a

I am sorry you are going through this.  

Since you do not seem to filt all the diagnostic criteria for MS as per your Dr,  and have not gotten a dx yet I suggest you look at some other possibilities in the meantime. Since it may be helpful to you, I will share my story with you.  I was dx with MS for several years "atypical" and not the relapse remitting presentation that is more common in the beginning.  I found out 6 years later I had lyme disease, and recently digging back into my previous tests I found ONE that confirmed this.  The many neuros I saw (5+) missed this and when I brought up lyme as a possibility all those years they totally blew me off.  I have since tested CDC positive for lyme, have herxes with treatment, etc.  I have it and had it back then too.  Unfortunately untreated lyme has degenerated my spine and walking is difficult.  I tell you this because lyme is serious and the medical community is not paying attention to this disease.  I know many people who have lyme and are disabled and others who have multiple health problems inc urological, vision, muscle-skeletal, heart, cognitive and many other problems.

If you do research you will see lyme is controversal. Look at both sides.  I can tell you chronic lyme exists and IF you have it and do not treat it sufficiently you could have problems. 

There is a short clip of a documentary that is being made about lyme at  www.lymediseasefilm.com.

Best of luck to you in your search for answers. You can email me if you have any questions.

 


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 12/5/2007 9:33 AM (GMT -6)   

Hello and Welcome to Healing Well.

I read your post and I am sorry that you are going through this frustrating time.

I just wanted to stop in and welcome you to HW.  You will find many caring member that know where you are coming from and what you are going through.

It must be difficult being a physician and not finding a diagnosis for your symptoms. 

Please take care of you.

Kitt

 


 
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