Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength
Diagnosed with severe Crohn's colitis in May 2005. I deal with daily arthritis ALL over my body, cystic acne, & fibromyaglia. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Currently on Remicade every 4wks, 20mg Pred, Asacol, 75mg Imuran, etc.
I really like your quote!
I hope you aren't suspecting MS on top of everything else you have listed...
My first symptom was fatigue, but didn't realize that until after I was diagnosed. My first obvious to me symptom was my left leg going numb, followed closely by my left arm and bad balance.
My first symptoms were severe vertigo and balance issues that landed me in the hospital. A month later and after a second flare, I added vision problems, bowel and bladder issues and numbness in my left hand.
With Shar, I am hoping you are not looking into MS as a possibility for yourself.
Thanks for posting.
Love and prayers,
My first symptom was fatigue and as things progressed I had headaches, vertigo, tremors, fine motor skill loss, a shocking sensation, numbness, a lack of reflexes in my legs so far and losing my right leg that wont lock into place so I end up tripping over things a long with other things but yet too be DX with MS but my new doc seems to be more pro-active and finding out what is wrong with me
Good morning ....well I have just been dx with MS. Lesions showed up on my MRI. I have been tested and tested, and seen doctor after doctor for two years - and now finally - a dx. Although I am not pls with the dx, I am so relieved to have finally received a dx... now we can get on with a treatment plan, and loose the worry that has consumed my life for two years.
My very first symptom, as I think back, was about 3.5 years ago where I had double vision out of one eye. They eye specialist wrote it off as nerve damage, and that it should clear in about two weeks - which it did. If only he would have explored this a bit more.
After that, and it was quite a time that had passed, before another incident occurred, which happened to the same eye - this time - it was distorted, blurry vision that lasted for quite a time - on and off for a couple of months.
I noted also that I tired easily, followed by a strange feeling in my head, not really dizzy, kind of a foggy feeling, over all just strange. This has been ongoing, some good days some bad days for the past two years.
Then to follow was muscle pain in my shoulders and neck, lower back, knees, etc. Tingling and numbness stared in both of my hands, and then the final straw was when I bent my head downwards, I get an electrical shock feeling going from my neck all the way down to my toes.
And that brings me to today.....
Have a nice day
I am also on copaxone. I am very sorry to tell you that copaxone will not do anything for your symptoms. Copaxone treats the progression of the disease. It will, if it works for you, slow down the disease anyhwhere from twenty to forty percent. It will not help your head. I have had vertigo for a year and a half. It was my initial presenting symptom. If your symptoms do get better, you did that on your own. Most people have some small remyelination just as a typical course of the disease. There are some meds that can treat symptoms but those are seperate from progression therapies like copaxone, rebif, betaseron, tysabri and avonex.
Good luck with the copaxone. I find it very easy to manage and I have almost zero side effects from it.
Hi there Sandy....well I am knew to this, as I just recieved my dx last week. I know what you are saying about waiting and waiting and waiting until someome comes up with a dx. It sounds like they (your doctors) are skirting the matter, and do not want to step forward and say yes or no to MS until they have conclusive evidence. Unfortuantely, you did not have enough spots on your MRI - for instance, in Canada anyways, there have to be the appearance of at least 9 spots or lesions on the brain before they will come forth and make the MS diagnosis.
The onlything I can suggest, is that you keep on them - and request another MRI to be done in 6 months or so - to see if the number of spots have increased....also, if you have not already done so, go back, and write down ever little symptom that you might have had over the last two years, and when - and also keep a record of anything that comes and goes until you get your MRI.
It took two years, and a million tests, before getting to where I am now, and that was all because of my last MRI showing lesions - the other two MRI's that I had showed none - so it is kinda of a hit and miss thing......I think it depends if you are having a MS attack, or if you are in remission, which then allow time for your body to repair the myelin sheathing covering your spinal cord....hense, no lesions...
I was diagnosed with only two lesions on my MRI. They were both on my brain. They later found a spinal lesion as well but that came after the initial diagnosis. I have never heard that you needed 9 or more to get a diagnosis. That is almost unbelievable!!!!! Is it still that way in Canada (Gary)??
Check out this site. It discusses diagnostic criteria. It says you can get a dx without a single lesion. It goes on to say that if a lesion does not develop after the first couple of years, that further investigation may be needed to rule out other causes.
You definitely need a second opinion. Good luck with the insurance issues.
Post Edited (Gretchen1) : 12/19/2007 5:06:25 PM (GMT-7)
Hi good morning - I was just referring to the information on my MRI report where it states that in order to be conclsuive for a dx of MS, they need 9 or more lesions. I know it sounds crazy, but I did contirm this with the neurologist, who agreed, stating that I had 10....
I started Copaxone last night, and so far, so good. Wow os that stuff ever expensive - $1400.00 per month - thank God for a good medical plan coverage for drugs!!!!
Merry Christmas everyone.
Hi Kay, thanks for the post. Yes I noticed that fatigue had set in, and then 3.5 years ago I was experiencing double vision in my left eye - which went away, but I guess unknowingly at the time - although an eye special advised me that it was some sort of optical nerve damage - it was an MS attack.
I was too, so glad to get an dx, as I too was starting to think that I was going a bit crazy. Mind you when you hear this enough times from a variety of doctors - you start to believe them. But luckily I did not beleive them enough - as I DID NOT take any of the tens of anitdepressants etc they were all trying to give me.
I did have a family doctor appointment last night, and we had a candid conversation - where I brought to his attention that just because someone is feeling dizzy, and and neck pains ansd strains, and tingling sensations in hands, that it should not just be isolated to being stress and having anxiety - mind you after months and months of trying to figure out what was wrong with me, some anxiety did set in from worrying every day of my life as the what the heck was wrong with him.
Hi there Kimber, thanks for your post. Its nice to know that there is great support out there - especially for us newbies who have a million questions and what if!!!