"Attitudes are contagious--is yours worth catching?"
I am sorry that after two years of treatment you are still sick. That is scary. I always thought that lyme was treatable but two years is a long time.
Due to the fact that you are not yet diagnosed, I think you are asking a question that is impossible to answer. I hope you are not diagnosed with MS.
I do know one person, that is on here now and again, that has both lyme disease and MS. I am hoping she reads this and responds for you.
I can tell you about MS but I have no experience with lyme so I won't even attempt to answer you question. I hope you feel better real soon.
Love and prayers,
What type of Lyme test did you have done? Was it through Igenex or the standard ELISA? I have had all kinds of weird symptoms for 8 years now, every test that I had done have been normal. Thanks!! Hope you are on your way to recovery!! Jen
I am so glad your MRI is normal. You have an excellent chance that you do not have MS with a normal MRI. You should be very relieved. Good luck and feel free to post and ask questions.
blue - Good question and as someone who is in a similar situation (MS, Lyme or both??) one I am always asking too. The Drs do not seem to know whether my problems are untreated lyme for so long (possibly 30+ yrs) or lyme that has caused MS or an MS like illness. I did test CDC positive for lyme.
A question for you guys - How are MS lessions or their location different from lyme lessions? I did not know there was a way to differentiate. Does anyone who is dx with MS have a normal MRI?
Thanks for the info and have a Happy New Year everyone.
Here is a website that discusses the location of lesions and the kind of disability they can cause, in people with MS:
Here is another: http://www.emedicine.com/RADIO/topic461.htm
You have to scroll down the page a bit to get to the section on MRI's, where you'll find this:
"Lesions may be located anywhere in the CNS white matter....more commonly the periventricular white matter, brainstem, cerebellum, and spinal cord..."
Here's a website that discusses Lyme disease. I could not find anything in there that suggests that Lyme disease leaves lesions that are evident on an MRI (but then, I didn't read it very thoroughly, so could have missed it!)
I just KNOW that I'm going to open a can of worms, but this IS a "multiple sclerosis" board. When I read the symptoms of Lyme as presented on this site..and it talks about early stages as well as late stages, early diagnosed and treated Lyme and undiagnosed for years Lyme..
I really see VERY little similarities between it and MS.
But as I always say, I'm not a doctor nor health professional, nor do I pretend to be one.
Post Edited (bluebyyou) : 12/29/2007 8:24:38 PM (GMT-7)
That's interesting; my mom has MS, and I have Lyme, and she and I have many similar symptoms. When I read the lists of MS symptoms on MS websites and the lists for Lyme disease symptoms on Lyme disease websites, I notice quite a few similarities there as well. I am certainly not saying that the two conditions are one in the same-- or are even connected-- but given the similarities, it makes sense to me that doctors would want to explore all avenues.
Again, best wishes :)
Post Edited (bluebyyou) : 12/29/2007 9:18:16 PM (GMT-7)
I was diagnosed with MS in April 2005 (based on two episodes of double vision and lesions on brain MRI) and with Lyme Disease one month later in May 2005 (initially tested through IGenex and just recently received a call from the PA Dept of Health that I now meet the CDC case definitions based on my November Lyme test through IGenex).
I will tell you that over this summer I experienced a feeling of numbness down the entire right side of my body, from my head to my toes, with difficulty walking and writing on my right side. It lasted approximately three weeks with subsequent balance problems that continue to be a troublesome. Although my Lyme dr told me at the time it was a flare/Herx reaction to the Limited Cowden (herb) protocol I was on, it felt like something entirely different from the flares I had in the past. A follow-up brain MRI in August of this year subsequently showed a new lesion in my cervical spine. My Lyme dr is now telling me that he believes once the lesions have moved into the spinal cord, that it is a "Lyme-induced MS." I have an appt to see a neurologist at Stony Brook in January to see if she can provide any clarification and recommendations as to how to proceed from here. I have not taken any MS meds yet and am now considering that as a possibility. I have also been advised to try IV Rocephin, which I have not yet had (although was on oral antiibiotics for approximately 1 1/2 years). The neurologist at Stony Brook is supposed to be both Lyme and MS literate, so I'm hoping she can provide me with some good information so I can make an informed decision regarding my future treatment.
Personally I don't know how you can tell which symptoms are Lyme and which are MS. I speak to people who have MS and others who have Lyme and I feel like I'm talking about the same thing to both groups. It's so confusing, but I keep praying that we'll have a scientific breakthrough for either Lyme or MS in the very near future.
My story is similar to yours. Dx with MS in 1999 and Lyme in 2005. I have spinal cord lessions, and my LLMD also thinks Lyme induced MS. I would be interested in knowing who the neuro you are going to as I need to see a LL neuro. No one can seem to figure out what is happening with me.
I am 3 weeks into IV Rocephin.
Could you email me the name and contact info?
Thanks & Happy New Year
Post Edited (Kiera) : 1/2/2008 6:05:06 AM (GMT-7)