My Recovery Begins Today!

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dandbj13
Regular Member


Date Joined Nov 2007
Total Posts : 37
   Posted 12/26/2007 12:48 PM (GMT -6)   
So, I am out of the hospital, for the second time. Had to go back once for dehydration as my wife mentioned in the other thread. Dehydration coms at you fast and hits hard. Even now, I find it difficult to stay ahed of it. My bag fills so quickly. Everything I drink comes straight out. Will my output slow down as I eat more? Does anyone have any suggestions for slowing down my ostomy output? I am still a little weak, but much better than I was before. Thanks so much for your support. One day, I will go into detail describing all my post op complications... But not today. :-)

Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 12/26/2007 1:14 PM (GMT -6)   
David,

I was in the hospital last week (mainly for dehydration). I felt great when I got home last Tuesday and now today, 8 days later, I am feeling completely dehydrated again. I drink and drink and drink but it does not seem to improve my symptoms. I wish I had some suggestions for you but I have no clue how to stay hydrated. I drink water, gatorade, and propel. I take 6 potassium and 4 magnesium everyday and I eat really healthy. Here is the only suggestion I can think of...if your ostomy goes and goes (unlike mine, sob sob) you may want to find foods that slow your ostomy...pasta, heavy breads, pretzels, crackers, potatoes, bananas and such. I know you are still on a low residue diet and these foods work well with that diet. Peanut Butter and marshmellows work great, but I am not sure you can have peanut butter yet. Maybe Barbara will make you a big batch of rice crispy treats with double the marshmellows. I am sure your body could use the extra calories and you may get more energy from the sugar spike.

Anyway, those are my 2-cents. I am just glad your nightmare is over and you can start working on your home recovery. My heart broke for both you and your wife every time I read her posts about your set backs. Hopefully everything gets better from here. It is a slow process, but one that will lead you to better health.

How are you doing with your ileostomy anyway? Are you able to change by yourself? How many days can you go between changes?

Kindest Regards,
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


dandbj13
Regular Member


Date Joined Nov 2007
Total Posts : 37
   Posted 12/26/2007 2:15 PM (GMT -6)   
The ileostomy is doing just fine. Although I have had a couple of accidents already. The worst of them Is when my bag exploded. I do not think I am getting a good seal on it because it always seems ready to fall off. I cannot do the change myself, yet. My wife does it very well. I am changing it every three days. The problems come when I go longer than that. Also, my wife actually gets up in the middle of the night to empty my bag for me. She does it so well, she does not even wake me up. It is so hard to keep up with this thing. I am just trying to keep my sanity.

Gillcom
Regular Member


Date Joined Nov 2007
Total Posts : 272
   Posted 12/26/2007 4:08 PM (GMT -6)   
Hi David,

So glad you are home, you have been through the mill - thats a wee scottish saying!.

When i first got my ileostomy, before leaving hospital my surgeon told me if i felt i was getting dehydrated i had to drink coke cola and eat salted crisps, i think americans call them chips though, these help with the dehydration. I took him to his word when i felt i was drinking quite alot i had some cola and a packet of salty crisps/chips! I really did feel this helped me, just a wee suggestion, take care, Gillian.
Ileostomy - Feb 05, Hernia on site.
Fluoxetine - 20mg March 05 - july 06
Citalipram - 20mg July 06 - upped to 40mg now.


badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 12/27/2007 8:00 AM (GMT -6)   
Apples help slow things for me and help with hydration ..... of course without the peel.
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


Indabag
Regular Member


Date Joined Aug 2007
Total Posts : 254
   Posted 12/27/2007 1:35 PM (GMT -6)   

Dear David:

First and foremost let me tell you something you probably already know, your wife Barbara is wonderful! Second, dealing with an ostomy is a "learned" skill, don't be discouraged if things seem rocky at first. Read all the old posts that apply and ask questions, you will be up to speed and doing things for yourself that you would have never imagined. Finally, I too have a really "fast" ostomy and it is difficult for me to stay hydrated. Amey, as usual, offered some very good suggestions. The only thing I would add is to eat slowly and chew your food really well. Also, steer clear of coffee and too much processed sugar.

Richard


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 12/27/2007 2:34 PM (GMT -6)   
Gillcom,

OK, I ran to the store today and bought a 2 liter of Coke (generic cola brand). I rarely ever drink soda so any excuse to drink it is great for me. I already had the crackers on hand. I just sipped on 12 oz of soda and ate some crackers. I hope this helps me.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


Tom1
Regular Member


Date Joined Mar 2007
Total Posts : 258
   Posted 12/27/2007 3:49 PM (GMT -6)   
I guess the Coca Cola will help but isn't there a trade off...meaning lots of gas.
Regarding the bag not lasting for more than three days, I find that to be normal. At least for me. I am pushing it when I go to four. Hang in there. Good luck.

dandbj13
Regular Member


Date Joined Nov 2007
Total Posts : 37
   Posted 12/27/2007 5:03 PM (GMT -6)   
My wife found some Metamucil in tablet form. I have been taking it all day. My last bag fill was as thick a tooth paste. It actually looked and smelled like a regular stool. It was so thick, I think I over did it. Anyone who is having trouble dehydration, go out and buy some Metamucil in tablet form. Problem solved. Just don't over do it.

Gillcom
Regular Member


Date Joined Nov 2007
Total Posts : 272
   Posted 12/27/2007 6:19 PM (GMT -6)   
Amey,

Lol, good for you, i'm sitting here with my coke just now , he he, i just hope it works for you.

Tom,

I do get some gas build up but to be honest i usually have that no matter what i eat or drink, i don't mean gallons of it just enough to get the sodiums back into the body.
Ileostomy - Feb 05, Hernia on site.
Fluoxetine - 20mg March 05 - july 06
Citalipram - 20mg July 06 - upped to 40mg now.


Indabag
Regular Member


Date Joined Aug 2007
Total Posts : 254
   Posted 12/27/2007 6:32 PM (GMT -6)   
I tried Imodium, I think it slowed me down but I got cramps. I'm on my way to CVS for some Metamucil.
I'll try 1/2 dose first. Leave no turn unstoned (or something like that, ha ha).

Richard (an old hippie)
Indabag
 
Ileostomy since August 2005.
As result of surgery (modified whipple) for necrotising pancreatitis. Removal of gallbladder, 2/3 of pancreas, resections of large and small intestines. Massive infection. 8 months in ICU at Westchester County M.C. (I think that's a record). Second surgery for resection due to fistulas in January 2007. Been slowly recovering since then. Possible reconnection candidate.


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 12/27/2007 7:06 PM (GMT -6)   
David,

Look at you, just a few days out of the hospital and now your giving us advice. I am so impressed with how far you have come in such a short period of time. Thanks for the Metamucil idea, but my stool looks like toothpaste all the time. I don't think I will be partaking of the Metamucil bandwagon. Hopefully Indabag will get some relief from these tablets.

I am glad things are getting better.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


Indabag
Regular Member


Date Joined Aug 2007
Total Posts : 254
   Posted 12/28/2007 10:19 AM (GMT -6)   
Amey:

On the subject of hydration, I believe that your issue is that you absorb the fluids ok but you have been retaining them. Is that right? My issue is that the fluids just seem to run right through me with little absorption. The kidney doctor (nephrologist-sp?) has been helping me keep hydrated (i.e. recognizing signs of dehydration, blood tests, etc.). I think that you once mentioned you were going to consult with a nephrologist. Did you get a chance to do this? What did he say? I think David is recognizing how tricky but important this issue is. It's great to be able to share ideas on this conundrum!

Richard
Indabag
 
Ileostomy since August 2005.
As result of surgery (modified whipple) for necrotising pancreatitis. Removal of gallbladder, 2/3 of pancreas, resections of large and small intestines. Massive infection. 8 months in ICU at Westchester County M.C. (I think that's a record). Second surgery for resection due to fistulas in January 2007. Been slowly recovering since then. Possible reconnection candidate.


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 12/28/2007 10:43 AM (GMT -6)   
Richard,

Thanks for thinking of me. I do have an appt with a nephorologist. However, my appt is not until Jan.22. I am on their cancellation list also so hopefully I can get in earlier. I do retain the water. I am not sure if it is because I sweat so much water when I exercise or what...? I noticed that when I got home from the hospital and I was hydratred my body did not retain water. However, now, a week later, I am back to retaining the water again. I have cut back my workouts from 7x per week to 4x per week. I was hoping this would help and it has made some improvement but not enough for me to stay hydrated. I felt better today (not as winded and short of breath from dehydration). I am not sure if the soda was the difference or not, but you I ran to CVS this morning and grabbed more soda to have on hand. I noticed that diet soda had more sodium than regular soda (70mg vs. 35mg) so I grabbed the diet. Plus, knowing that I am not consuming all that sugar makes me feel better.

Richard, I truly appreciate you thinking of me and inquiring about my health. It means a lot to me. How are you doing without the tube in your stomach?

Take care...
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


Gillcom
Regular Member


Date Joined Nov 2007
Total Posts : 272
   Posted 12/28/2007 4:29 PM (GMT -6)   
David how are you feeling now? How are you managing with your bag? Are you still taking Metamucil? or has it sorted itself out a bit.

Please tell your lovely wife i'm asking for her and hope you both have a healthy and peaceful new year, Gillian x
Ileostomy - Feb 05, Hernia on site.
Fluoxetine - 20mg March 05 - july 06
Citalipram - 20mg July 06 - upped to 40mg now.


Dancerpeg
Regular Member


Date Joined Dec 2007
Total Posts : 43
   Posted 12/28/2007 11:38 PM (GMT -6)   
Hi David,
I would like to tell you that thing are going to look bright for you and your wife. I left her a messages on your other thread. My husband name is David and he also has a ileostomy and has active crohn's. I usually don't help him with his ostomy. But he has a drainage on his back that we have to put a ostomy and I have to empty it because I put it on wrong way so that he could empty it. We are dealing with lots of infections with his back bone. I can't wait until this battle is over. They are talking to put a TPN in him because he is having lots of fevers. Well I'm glad you are feeling better..
Peggy

Indabag
Regular Member


Date Joined Aug 2007
Total Posts : 254
   Posted 12/29/2007 10:42 AM (GMT -6)   

Dancerpeg:

 It seems like you and your husband are dealing with some tough issues. And it also seems that you both have a good attitude towards battling these problems. Keep us posted on his progress and know that we are praying for you both.

Amey:

Life without the g-tube has been great! I still look like I have a bullet hole through my abdomen but the surgeon said it will heal over time. Thanks for asking.

Richard


ME!
Regular Member


Date Joined Aug 2007
Total Posts : 185
   Posted 12/29/2007 1:24 PM (GMT -6)   
Dan

So glad you are doing better.

Amey,

Hope the kidney doctor can find a resolution for the hydration problem.

((HUGS)) to you both

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 12/30/2007 4:49 AM (GMT -6)   
Hello David and Barbara,

I have been MIA for a few days *without internet at my MIL's over the holidays!* and was wondering how you have been doing? I noticed you have given us ileos some helpful hints already!!! Good for you. Are you keeping hydrated now? Are you feeling better? I'm just full of questions, aren't I?

I hope you are on you way to feeling "human" again. Been there, done that as they say, so I have walked in your shoes - albeit quite some time ago however.

Regards,
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


dandbj13
Regular Member


Date Joined Nov 2007
Total Posts : 37
   Posted 1/2/2008 11:50 PM (GMT -6)   
Happy New Year everyone!!! I let David keep you up to date on his progress but found that I missed chatting with all of you. And also found out he was not keeping you up to date as I thought he was. Progress is being made, if only in small steps, but it is hard for David to see it. He is quite depressed, which is normal I am sure. He is still battling the dehydration. Slow, fast, slow, fast, and on it goes. I don't empty his bag at night so much any more, just to tired. So far no accidents. A wound and ostomy specialist nurse came today and checked every thing and all are looking pretty good. He said the small intestines where never meant to absorb liquids but your body can relearn to absorb some in time. For those that don't know, David had a second surgery that got infected and is not an open wound, that is right next to the stoma. Talk about a delicate balance to keep both of them clean. The wound has to be cleaned every day and the ostomy every 3 days. We have a great support system. Our friends from church have been bring us meals and helping with any thing that needs to be done, so that I can go to work. (David said to tell you all he is having a bad bag day! it is running a lot. ) One couple brought us a book called "Everyone Poops" by Taro Gomi. That really is a good laugh. Good things include, getting is taste back 85%, going on long walks, and even went to a movie. I guess that will have to do for tonight as I have to get up really early to go to the dentist. Yuck!!!

I hope all of you have a really great year in 2008!!! Barbara

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/3/2008 10:26 AM (GMT -6)   

Barbara,

So good to hear from you and know that David is doing much better.  If he has been going on long walks and out to a movie, I'd say that is excellent progress.  All of us ileos have had to battle keeping hydrated.  I really do believe that in time the small intestine learns to absorb some of the fluids to help stay hydrated.  I've had mine since 1984 and I will have to say that the only time that I really get into a bad situation with hydration is when I have a bug.  Then it becomes a real problem.  

Do you know the "pinch" test for hydration???  That's when you pinch the skin, like on the top of your hand, and it holds its position when you are dehydrated.  When I took care of my mom when she was going thru chemo and radiation, I was constantly "pinching" her cuz she was so prone to dehydration (even w/o an ostomy).  She was always saying "Quit pinching me!", but she knew what/why I was doing.  It was our little joke!!

Keep your chin up and tell David I said "congrats" on his progress.


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Ash83
Regular Member


Date Joined Nov 2007
Total Posts : 128
   Posted 1/17/2008 11:52 PM (GMT -6)   
Barbara,


How are you guys doing? It's been awhile and I've been wondering how David's recovery has been going.

Hope all is well!

Gillcom
Regular Member


Date Joined Nov 2007
Total Posts : 272
   Posted 1/18/2008 4:39 AM (GMT -6)   
Hi,

I too have been wondering how everything is goin? Hope you both are well, keep us posted.

Gillian x
Ileostomy - Feb 05, Hernia on site.
Fluoxetine - 20mg March 05 - july 06
Citalipram - 20mg July 06 - upped to 40mg now.


Indabag
Regular Member


Date Joined Aug 2007
Total Posts : 254
   Posted 1/18/2008 1:33 PM (GMT -6)   
Barbara & David:

I have been wondering too. I hope no news is good news!

Richard
Indabag
 
Ileostomy since August 2005.
As result of surgery (modified whipple) for necrotising pancreatitis. Removal of gallbladder, 2/3 of pancreas, resections of large and small intestines. Massive infection. 8 months in ICU at Westchester County M.C. (I think that's a record). Second surgery for resection due to fistulas in January 2007. Been slowly recovering since then. Possible reconnection candidate.


Gillcom
Regular Member


Date Joined Nov 2007
Total Posts : 272
   Posted 1/21/2008 8:21 AM (GMT -6)   
Bump
Ileostomy - Feb 05, Hernia on site.
Fluoxetine - 20mg March 05 - july 06
Citalipram - 20mg July 06 - upped to 40mg now.

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