Choking Your Stoma..

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Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 12/31/2007 1:03 PM (GMT -6)   
OK, Don't laugh...but is it possible to choke your stoma?  Every time food passes by stoma my stoma hurts on the inside.  Some times I wonder if I am choking my stoma with my wafer and so my food is having a hard time passes through.  When I had a small bowel follow-through study, it revealed that the contents went through my intestines and then stopped at my stoma.  The stayed right behind my stoma for 5 hours before passing.  My Dr put his entire finger (OUCH!) inside my stoma and said my wafer was NOT too tight.  Today, I was in the shower and I felt that pain again behind my stoma so I removed my bag/wafer to see if the wafer was stopping the food from coming through.  After about 3 minutes of pain, honey dew (you know the green melon that tastes to good) came shooting out of my stoma in waves.  Now instead of having a clogged stoma, I have a clogged drain.  I ate the honey dew 2 days ago.  I cut it into tiny baby sized bites.  Well, I am out of the shower and I just put a one-pc on and I am keeping the cut around my wafer a little lose to see what happens for the rest of the day.  Right now my stoma is very sore from passing that fruit.  It feels like it is bruised deep inside my stoma..weird huh?
 
Any thoughts..
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 12/31/2007 1:04 PM (GMT -6)   
..Sorry for the typos in my post...that is what happens when I type and talk on the phone at the same time..
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 12/31/2007 2:04 PM (GMT -6)   
Amey,

That is exactly what my "blockages" feel like!!! Of course, they are not just right behind the stoma, but when they get to that point they do just what yours did - shoot out! What happens if you stick to a soft diet? Does it pass more easily? I have to be really careful with any raw fruit or veggies. And grainy and seedy stuff. I eat cooked veggies but watch really fibery stuff, as well as stuff like kidney beans - the skins are hard to digest. Potato skins too. If I do eat them I don't eat very much. It will pass but it just isn't comfortable. Like you said, it feels like the stoma and the area around it gets bruised. That's a good description. When I do get a more severe partial blockage, my whole gut feels bruised from it once it finally passes.

Ya learn something new each day with your naughty stoma, don't you? Keep experimenting... are you staying hydrated better? I think I read where you increased your sodium to help with that. I too had to do that, but I really like the salt shaker anyway. Love chips too. So I have that covered pretty well.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 12/31/2007 2:15 PM (GMT -6)   
Thanks Peggy..I think I am going to avoid solid foods for the rest of the day just to make sure I do not increase the chance of a blockage. As far as hydration, the soda really helped. I felt much better when I was drinking it. I did not drink it Saturday or Sunday to see how I did without it and today I felt dehydrated again and my heart rate was severely elavated. I guess I need to get another 2 litter of Dike Coke - yum, yum.

Thanks for your post Peggy. What is odd is that my stoma feels that briused feeling inside every time food passes. It was not just today. Some days it is so bad I have to pull my car over to the ride of the road until the pain passes...weird huh?
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 12/31/2007 2:24 PM (GMT -6)   
Amey,

With your motility issues, and your Ileo acting like a Colostomy, it doesn't surprise me that you would have some discomfort.... it is backing up and then trying to push thru a smaller opening. I still get that uncomfortable feeling, not pain, after all these years when I eat stuff that I know will not digest well for me. Yes, I still eat them in small amounts, but I can "feel" it.

You are still healing... remember the advice you give others!!! Be patient and let it heal. (LOL) BUT, if you feel that it is too painful after adjusting your diet a bit... well, I guess it should be looked into.

Feel free to call me anytime Amey...
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Indabag
Regular Member


Date Joined Aug 2007
Total Posts : 254
   Posted 12/31/2007 4:04 PM (GMT -6)   
Amey:

A finger in your ileostomy? That hasn't happened to me....yet. A couple of days ago I gorged on my wife's delicious pea soup. I was up five times that night to empty! I need to remember the sage advice of Peggy....small amounts of tough to digest foods! Happy New Year to All!


Richard
Indabag
 
Ileostomy since August 2005.
As result of surgery (modified whipple) for necrotising pancreatitis. Removal of gallbladder, 2/3 of pancreas, resections of large and small intestines. Massive infection. 8 months in ICU at Westchester County M.C. (I think that's a record). Second surgery for resection due to fistulas in January 2007. Been slowly recovering since then. Possible reconnection candidate.


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 12/31/2007 4:35 PM (GMT -6)   
Richard,

Thanks for your help and all of your kind words. Are you still a CPA or do you stay home now because of your illness? My husband and I wonder what would happen if he ever decided to go into private practice for myself. I know we could not afford the insurance.


Hey, I can still feel some of the blockage behind my stoma..should I get the vacuum? I wonder if a bulb syringe found work...you know the type you would use to suck the mucus from a baby's nose..any thoughts on this before I try it?
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


newbeginning
New Member


Date Joined Dec 2007
Total Posts : 18
   Posted 12/31/2007 5:04 PM (GMT -6)   
I am new to this site. i sport a colostomy going on 1 1/2 yrs. I too feel the buried stoma and has been going on since day one. I keep hoping one day it will be "normal". Right after my colostomy, i developed a prolapse and then hernia. I feel am still one the rode to recovery. I too had the finger in my stoma to see what was going on in there and many test to ensure nothing else was going on. There are time when I stay on my feet too long my stoma gets very swollen, gets very heavy, and it's very painful. I even video it and showed it to my surgeon, she says it's normal but I don't believe her. How can a stoma swell 2" round bulged out be very pain that it brings me to tears and be normal? Has anyone else experience anything similar?
Cancer Survivor - Colostomy '06, RA, Sjorens, Fibro, Depressed, Hashimoto's


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 12/31/2007 5:55 PM (GMT -6)   
Amey said...

Hey, I can still feel some of the blockage behind my stoma..should I get the vacuum? I wonder if a bulb syringe found work...you know the type you would use to suck the mucus from a baby's nose..any thoughts on this before I try it?

 

Amey,
 
Tell me you are NOT seriously thinking about doing this, right?
 
I recommend massaging your belly, take a warm bath ---  but I don't think sticking anything in the stoma (ileo) is a good idea - IMO only.   I know folks with colostomies do irrigate, and some do it on a regular basis to stay "regular", but I'm not sure about doing that with an ileo.  Be careful.  Maybe have another Diet Coke, or a glass of red wine as was recommended on another thread.
 

Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 12/31/2007 11:47 PM (GMT -6)   
LOL Peggy...trust me, I do not plan on putting a vaccum in my stoma. I was just wishful thinking. I can still feel something behind my stoma, but I am just going to wait it out.

Thanks for your thoughts. You are a sweatheart.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/1/2008 9:41 AM (GMT -6)   

Amey,

How are things flowing today?  Did all of your honeydew melon finally pass?  I love honeydew and cantalope.  I have better luck with really ripe cantalope tho, and can eat a decent serving of it, if it is really, really ripe, with no problems.  Honeydew doesn't seem to get very "soft", like watermelon or really ripe bananas and other fruits.

Did you try a Diet Coke yet to push it out?  Been thinking of you since your post!!!

Peggy


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 1/1/2008 9:58 AM (GMT -6)   
Peggy,

Things finally started to move at 2:45am. I fell asleep around 2am and the awoke when I felt the pain move through. I wonder if was struggling to move because my body was so tense from the paina and when I fell asleep, my abdominals were able to relax...just my theory. I am nervous about using the system today when I put on my usual wafer. I wonder if rollig the Eakin is too tight around my stoma and I am creating the obstruction. Yesterday, I put on a one-pc sample I got in the mail from Coloplast and I did not use an Eakin or anything. I just cut the wafer hole pretty large b/c my stoma was swollen and placed it on top. Needless-to-say, the poor bag never had a chance and it only lasted 12 hours so now I am wearing a cap. I will keep you posted.

Thanks for your help and advice.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


Gillcom
Regular Member


Date Joined Nov 2007
Total Posts : 272
   Posted 1/1/2008 3:03 PM (GMT -6)   
Amey,

Sorry to hear that pain you have been in, i have that sometimes too and usually it's maybe after i have ate onions or boiled peas, the pain goes as soon as they pass through though.

I am so glad the diet coke helped you i was scared that it might not work or fill you up with too much gas, i wouldnt want you to blame me, lol.

Anyway i hope your pain settles and you have a pleasant evening, Gillian x
Ileostomy - Feb 05, Hernia on site.
Fluoxetine - 20mg March 05 - july 06
Citalipram - 20mg July 06 - upped to 40mg now.


Indabag
Regular Member


Date Joined Aug 2007
Total Posts : 254
   Posted 1/1/2008 6:55 PM (GMT -6)   

Hi Amey:

To answer your question, yes, I still have my license to practice accounting. I have been in the business for almost 30 years. I had built up a decent practice with my partners (there are five of us). They have been able to service my clients in my absence and have retained about 80% of my share of the business. I was "off" salary after the first six months and I have been on disability since. They have stuck by me and I am so grateful. I am in the process of arranging with my disability insurance to return to work on a limited basis. It would be great if I can return for this tax season. I have to tell you that I am nervous about returning. I can't help thinking that people will view me as defective because of my long illness and I will have difficulty in dealing with this. But I made up my mind to simply do the best that I can and, with God's help, things will fall into place.

I didn't realize your husband was in this field. As you can imagine there are lots of pros and cons about going into practice on your own. I do know that accountants are in great demand in our area. Whatever he decides I am sure that he will think it through thoroughly. After all he showed such great judgement in selecting his wife!
 
Richard

Bugg
New Member


Date Joined Jan 2008
Total Posts : 1
   Posted 1/1/2008 10:59 PM (GMT -6)   
:-)  Hi! My name is MaryBug and I have had my Colostomy for 12 months now. I have a LOT of pain at my stoma no matter what I eat-I tied a totally liquid diet-Dr. Ordered Carnation instant Breakfast Plua for nutiets needed. I STILL Had had painful "balls" come out. My stoma bleeds every time I change it. It also seems larger-I have cut the opening larger so it wouldn't be so painful! Not working......:( Now, my husband wants sex again, after a 16 month hiatis. I found some cloth to cover lower body amd it worked as long as I kept a hold on it. But due too his diabeties and 2 storkes, he takes FOREVER and now I have a open wound because of friction. We used lubrication, but that only lasts so long.
I hate my body now! I used to be slim and kinda curved, now I have this huge lower abdomen-1/2 of my belly buttom is under my right breast and other side is near my ostomy, and interferrs with adherance of bag. I am sick of this! I can't wear normal clothes, that DUMB Dr. put the stoma at my waist. plus it's huge, and seems to get bigger everyday. I am so depressed, and I stay home instead of going out. When I do go out I worry about the bag springing a leak because of the adheasion problem=it happened during the summer, I was so embarassed!
 I drink a lot of water, I eat as balanced a diet as I can-I have collagenous colitis, so my gut dictates my diet.
It sure feels good to talk at people who have same or simular problems. I knew I wasn't alone but lacked the courage to try to find a support group.I think I found one tonight:)    MaryBug
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