Son had rectum removed, doing very well

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JsMom
Regular Member


Date Joined Jul 2006
Total Posts : 57
   Posted 1/4/2008 10:57 AM (GMT -6)   
Hi everyone, just wanted to let you all know that my son, now 9 years old, had his rectum removed last month and is doing very well. (His colon was removed last July). Thank you God and thank all of you for being here. Your experiences gave us the courage to make this decision and we are confident that it was the right one. Shaz and Peggy, your experiences were exactly what my son experienced after surgery. Because of you, my husband and I were even better able to be a strong source of comfort for him. He is doing just great. Thank you so very very very much!!!!!!!!


Jsmom
Son, now age 9, and med free!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
UC diagnosed at age 4. Initially responsive to sulfasalazine, over time UC became more and more aggressive. Unresponsive to asacol and all variations tried, unresponsive to 6mp, endocort, enemas, and eventually also to prednisone. Some probiotics had positive effect, but only temporarily. We refused remicade.

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/4/2008 3:45 PM (GMT -6)   

Congrats on a successful surgery.  Please tell your son that we are here for him (and you and your husband, of course) if you have any questions.  Such good news to start the year off!!  Please keep in touch and let us know how he is doing and his progress. 

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/4/2008 4:45 PM (GMT -6)   
I wanted to congratulate your son on successful surgery as well. I was diagnosed with cd at 14 your son was only 4! i could hardly deal with changes to my body due to medications when i was at that stage of my life, i can't imagine how i would have felt facing that type of surgery. Especially being that I'm facing it now and am frightened of the future. He must be a strong young man. Sometimes I think its better to deal with these things as ur young, it gives you time to deal. I dont know, just one of the many crazy things I think about often. Anyway your son is in my prayers and I am sincerely happy for him!
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/4/2008 9:48 PM (GMT -6)   
I am so glad that your son is doing well! I cannot imagine how hard it would be to have a child with such an awful disease, but you guys definetly did the right thing by having his surgery. If my son ever gets it, his colon is coming right out. I am glad that ya'll have been able to find help here, and i hope you stay around. I will keep your son in my thoughts

JsMom
Regular Member


Date Joined Jul 2006
Total Posts : 57
   Posted 1/8/2008 4:32 PM (GMT -6)   
Thank you all so very very much! It is so comforting to have you here.

Jsmom

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 1/8/2008 9:46 PM (GMT -6)   
JsMom,
I'm so glad that your son is doing well. You definitely made the right decision, because surgery is a cure for UC. He is going to be such a healthy, strong boy and that good health will carry on into his young adult and adult years. You and God gave him the gift of life, twice. :-)


Cecilia
 
Dx'd Crohn's in '99 at 28. Proctocolectomy & ileostomy in '06.
Pain-free, med-free, and very thankful to be healthy again :)


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1246
   Posted 1/9/2008 2:26 AM (GMT -6)   
I'm so glad to hear he's doing well :) When he gets older you won't be able to call him anal retentive :)
I have had an ileostomy for 32 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!

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