B12 Deficiency

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Pouchman
New Member


Date Joined Jan 2008
Total Posts : 3
   Posted 1/8/2008 1:23 PM (GMT -6)   
Greetings Ostomates,
 
I had the j-pouch surgery back in 2000 and then a continent ileostomy on 2002 (j-pouch failed). I have been diagnosed with B12 deficiency about 4 months ago. Apparantly this is quite common for those who've had similar surgeries.  I started B12 injections in August (1000mcg) and now do them monthly. While many of my symptoms have disappeared - the tingling, numbness, foggy feeling - I still have fatigue, especially in my legs. Have any of you had similar experiences? How long does it take to fully recover? My symptoms began in 2003 so maybe I just need more time. Are monthly injections adequate?
 
Thanks
 
Matt

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/8/2008 4:16 PM (GMT -6)   
I have had my ileo since 1984 and have been self injecting 1 cc every 2 weeks since then. Yes, I can tell when I am due for the shot --- I feel like a "slug" w/o appetite, lethargic, etc. I did not experience any of the tingling, numbness feeling.

Are you well hydrated? Dehydration can also result in some of these symptoms.

How about your potassium levels? Have you had lab work to check all your levels lately?
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Pouchman
New Member


Date Joined Jan 2008
Total Posts : 3
   Posted 1/8/2008 5:20 PM (GMT -6)   
Peggy,

Yes, I definitely drink a lot of water as it helps me with emptying my pouch. I'm not sure of the other levels. I've had a lot of lab work done recently and nothing else has come up. Since I went about 4 years without treatment, maybe I just need to give the B12 shots more time. I'm going to ask my GI and Neurologist about going to bi-weekly injections instead of monthly. Maybe that will help. Do you know if your 1cc injection is the same as my 1000mcg shot? I tried Googling it and I came up with conflicting answers.

Thanks for your reply.

Matt

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 1/8/2008 6:04 PM (GMT -6)   
Matt,
 
I used to get weekly B-12 shots before my ostomy, due to vitamin deficiency from Crohn's, so you can ask your doctor for weekly or bi-weekly doses.
 
Take care,
Cecilia

Dx'd Crohn's in '99 at 28. Proctocolectomy & ileostomy in '06.

Pain-free, med-free, and very thankful to be healthy again :)


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/8/2008 7:07 PM (GMT -6)   
From what I can tell: 1 cc is equal to 1 ml

However according to my B12 vial:
1000mcg/mL and it contains 10 mL - a multiple does vial.
1000mcg/mL is the concentration per mL.

I think I just confused myself!!! That's is how I am reading it.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 

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