Post Edited (Ash83) : 2/8/2008 9:28:51 PM (GMT-7)
My gyn said the same thing to me, SJ30!!!! I told her what I suspected & what my symptoms were, she replies "Well, those areas are soooo close, geographically, even though you'd swear you're not wiping wrong, you'd be surprised!" Then she took a look, sent me to the lab for blood work, & that was it. I still haven't gone for my follow-up appointment- I keep putting it off because I know that A) she still won't believe it's a fistula. B) Since there isn't much to be done re. these, i'm not sure I want to press the issue for more invasive testing and/or surgery. and C) After having the discharge & other symptoms for 2-3 months now, I've pretty much gotten used to it! It's better than a bad UC flare-up, that's for sure. the way I see things is this- if/when my UC finally goes into real remission, the fistula ought to close up. And if I wind up getting a perm ileostomy, the fistula will close up then too! So either way, it's a win/win situation..... Just joking.... sort of!
Do you still have your rectum? I am assuming that you do (I may be wrong), but would removing the rectum, if you have it, resolve the fistula issues? I'm not sure, but I believe I had these 23 years ago...I had such horrible Crohn's then, which is one reason they removed the rectum when they did the ileo surgery.