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Ash83
Regular Member


Date Joined Nov 2007
Total Posts : 128
   Posted 1/10/2008 12:53 AM (GMT -6)   
I've seen the word come and go many times on this forum and others, but what exactly is it?
 
 
Do ALL reversal candidates who are getting their small bowel connected to the rectum get a j-pouch? I'm pretty confused what the options and differences are.

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5418
   Posted 1/10/2008 8:58 AM (GMT -6)   
J-pouch surgery is for people with ulcerative colitis and some types of bowel cancer. It's not usually used for people with colonic inertia or Crohn's disease. The surgery consists of removing both the colon and the rectum, pulling down about 9-12 inches of small intestine, creating a pouch, and then connecting that to the rectal cuff (about 1-2cm or remaining rectal tissue). The completed jpouch, after a period of adaption, functions as a rectum.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


mjmr1989
New Member


Date Joined Jan 2008
Total Posts : 11
   Posted 1/10/2008 5:23 PM (GMT -6)   
I was kind of wondering about that myself. Thanks for that explanation :) I'm fairly sure thats what they're going to do for me. Sue, I'm wondering about the adaptation and times per day you have to poop and how long it takes to get to a steady number per day. <---With a J-pouch, I mean.

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5418
   Posted 1/10/2008 9:59 PM (GMT -6)   

Expect adaptation to take a full year.  Be patient and remember recovery is two steps forward one step backwards.  I have no idea what my frequency is, I don't count.  Whatever it is it does not get in my way of enjoying life.  If I were to guess I would say it's somewhere between 5-10/day.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


candyland
Regular Member


Date Joined Nov 2007
Total Posts : 98
   Posted 1/12/2008 10:56 AM (GMT -6)   
Sue,
I like reading your posts b/c you seem to have adapted so well to the j-pouch. I had my colon and rectum removed in October and my surgeon created the j-pouch at that time. He said the surgery went great and he was able to create a "high capacity" pouch. I'm currently living with a loop ileostomy while everything is healing, but now I've gotten the go-ahead to schedule the takedown and reverse the ileostomy and start using my j-pouch. As much as I hate my temporary ileo, I'm also eternally grateful not to have painful, explosive, uncontollable diarrhea anymore and be scared to leave the house all the time. I'm worried about how everything will feel and function once I reverse and use the j-pouch. I understand there's still a high frequency, but how contollable is it? Diarrhea? Pain? Sorry for all the questions!

Ash83 - do I remember seeing that you're in the Atlanta area? That's where I am and my surgeon is awesome and does the j-pouch surgeries a LOT. He came highly recommended from several different sources.

DW38
New Member


Date Joined Jan 2008
Total Posts : 16
   Posted 1/13/2008 1:09 PM (GMT -6)   
my take down is scheduled for feb 8th. im going to assume that i will go as much as i empty my bag now,, and in time the pouch will adapt, and slow down some. like they say, everything always gets better. might be slowly, but it will. Im headed into this looking up. not down.
 
 
 
 
 
______________________________
Life is what we make of it.
 
Ulcerative colitis for 15 years
Total Colectomy-ileoanal reservoir
Now disease free
 


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5418
   Posted 1/13/2008 3:13 PM (GMT -6)   
Takedown can be frustrating, especially since you are feeling really well.  Number 1 is you have to be paitent with your recovery after your second surgery.  It might take your new jpouch up to a year to adapt.  Just remember you are asking your small intestine to take over the role of rectum/colon and it needs time to learn its new job.  You might have to adjust your diet for a while.  For me I had to cut out fresh fruits and vegetables for about the first 6 months as they sped through me.  It wasn't painful, just uncomfortable.  Everyone reacts differently so you may or may not have to restrict your diet.  The good news is that it is temporary.  Having a pouch is not painful nor do I live with diarrhea.  My stools are well formed.  Be sure to take a variety of skin salves (diaper rash ointment) to the hospital with you.  There is a condition called butt burn (I have never had it) that some pouchers experience and the salves help reduce the discomfort.  Also every poucher should have a tube of calmoseptine ointment on hand.  You can buy it independent drugstores (the type that sell ostomy supplies) or you can order it online at www.calmoseptineointment.com
 
Be sure to visit www.j-pouch.org  Lots of support from over 6,000 pouchers on that site.
 
Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 

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