Sharing some good news!

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peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/13/2008 9:55 AM (GMT -6)   
I had my annual GI appt this week and just wanted to share some of my good news!  
 
After several years of being under a lot of stress, with the death of both my parents - one totally unexpectantly in 2000, and the other from lung cancer in 2005 (I moved out of state during this period and was the sole caregiver during my mom's 19 mo. battle,) dealing with estate settlement issues, I have now reached a point where I am slowly coming off of some of my maintenance meds to control symptoms like cramping, panic attacks, etc., that I have been on for several years...  We all know what stress can do to the digestive system and whole body, right?!
 
My BP was 90/52, I've gained a much needed 20+ pounds in the last 14 months, no symptoms of gastric ulcer (originally from stress probably), no symptoms of CD, and shoulder surgery in Nov can finally be called a success.   Just wanted to WOOOO-HOOOOO with you all since you are my extended family. 
 
Thanks for listening!
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 1/13/2008 10:07 AM (GMT -6)   
Peggy,
I am so happy that things are turning around for you, you've sure been through a lot! I hope that this year is a new beginning for all of us and the struggles that we have had to face will be just distant memories this time next year! I wish you continued health and hope that you continue to succeed! You are such a blessing to people on this site and you deserve the best!
Theresa
CD diagnosed in 1991
Only one serious flare up in 1998 and again in July 2007
Total colectomy August 2007 now saying UC
J-pouch surgery to be scheduled in 08


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/13/2008 10:30 AM (GMT -6)   
tbraz,

Thank you so much for the nice thoughts. Tho I almost deleted my message after I sent it. I cannot tell you, after all of these years, how happy I am to have FINALLY gained the weight I have been trying to gain since I was diagnosed in 1978! So you know what that means? I can actually buy some new clothes because all of my others don't fit anymore!!! I have a real reason!!!! jk
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Indabag
Regular Member


Date Joined Aug 2007
Total Posts : 254
   Posted 1/13/2008 11:09 AM (GMT -6)   

Peggy:

This is great news! It is especially great that it happened to someone who is so informative and caring. I always read your posts when I see them because of the information I gain and your inspirational attitude. We're doing the happy dance in New York for you!

Richard

 


justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 1/13/2008 11:34 AM (GMT -6)   
Wonderful!!

praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/13/2008 12:28 PM (GMT -6)   
Congrats Peggy! I can imagine what a load off that must be! Stay Well! U give us hope!
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


ME!
Regular Member


Date Joined Aug 2007
Total Posts : 185
   Posted 1/13/2008 12:39 PM (GMT -6)   
Peggy,

I am so glad to hear you are coming out the other side of such traumatic experiences. It's good to hear about someone who has taken meds when their life required them and now their life is at a better place they can go off of them. I'm so glad you are at that better place now. You've made it thru the fire and give those around you hope!

Thanks for sharing your experiences with us :)

I'm dancing with you!!

Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 1/13/2008 2:43 PM (GMT -6)   
Peggy,

This is such wonderful news. Thank you for sharing this with this forum. I am so happy that your shoulder is finally healing well and you are able to feel normal again. It is always a great feeling when you are able to take less medications. I am so proud of you for attempting to get off some of these meds. Are there any side effects associated with withdrawl?

Thank you for being an inspiration. You really deserve all of the great blessings that are being sent your way.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


headphones
Regular Member


Date Joined Jan 2006
Total Posts : 242
   Posted 1/13/2008 4:34 PM (GMT -6)   
congrats peggy! that's so nice to hear good news. that experience of starting to look and feel normal is so incredibly exciting after feeling so crappy for so long. you seem like such a sweet person, and have already helped me a lot with your kind words and advice. keep up the good fight, it's inspiring! yeah
headphones
29 yr. old female
diagnosed with pancolitis uc 7/05
emergency ileostomy 11/07

vitamins, TPN
pregnant~ due in march


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/13/2008 5:57 PM (GMT -6)   
Amey said...
 It is always a great feeling when you are able to take less medications. I am so proud of you for attempting to get off some of these meds. Are there any side effects associated with withdrawl?
I am going to try to cut out the Nexium that I have been taking for years to help heal my ulcer.  Now that my ulcer is healed I should be able to stop the Nexium... but we are going to wean off of it.  I hope that since I have changed my diet, I will be able to maintain "optimum stomach health" on my own - like no dang ulcers!!!  I used to take 20 mg three x day.  I am down to one a day now.
 
I am also going to wean off of the one 20 mg. Bentyl that I take in the mornings.  We'll see about that one tho.  Seems like my first meal seems to give me crampiness and I am not to keen on that.  I used to take it with every meal when my life was really stressful.
 
I still take 3 Imodium first thing in the morning to help with "slowing" things down a bit.  Again, my first meal of the morning seems to fly right thru -- I have, for some time now, been eating a banana pretty early in the morning with my breakfast fruit bar.  This combination with the Imodium seems to work really well for me.  I used to take 3 Imodium with every meal just to maintain -- that is at least 9 per day.  I have already cut that way back over the summer.  I slowly came off of these to try to avoid any setbacks.  Now, of course, if I have an intestinal bug, I have plenty of then to take.  Or if I know that I am going out and have fried food or a glass of wine... well, I might as well go ahead and take a couple before I leave the house.
 
So, Amey, in answer to your question, no I shouldn't have any withdrawals from what I am planning on doing.  If I do it slow enough, I'm hoping my body won't know the difference!
 
I have also cut my Paxil back, with doc's permission, but we decided to stay on 5 mg (which is 1/2 of the smallest dose pill you can get) just to control my post menopausal hot flashes.  It really has worked wonders for me for several years and that one is worth taking a while longer!!!   What makes Peggy "happy", makes the whole house Happy!
 
I'm rambling...  thank you all for the well wishes and congrats! 
 
I have a follow up appt on Tues with shoulder surgeon to get his blessing, but I can tell by the way it feels that I'm on the road to a full recovery.  Now for the pain of strengthening the muscles - ewwww!
 
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 1/13/2008 9:03 PM (GMT -6)   
Peggy,
I am sooooo happy for you!! yeah You are such a sweetheart and deserve all the best.
Cecilia
 
Dx'd Crohn's in '99 at 28. Proctocolectomy & ileostomy in '06.
Pain-free, med-free, and very thankful to be healthy again :)


candyland
Regular Member


Date Joined Nov 2007
Total Posts : 98
   Posted 1/14/2008 10:21 AM (GMT -6)   

Peggy,

That's wonderful news! I'm so happy for you. You're such a positive influence on this forum, it's only fitting that you should be on the receiving end of some good news. You have my best wishes that things will continue to get better and better for you. Congratulations!  :-)


Ash83
Regular Member


Date Joined Nov 2007
Total Posts : 128
   Posted 1/14/2008 11:35 AM (GMT -6)   
Peggy,

How wonderful! You're such an inspiration and it's so nice to hear things are looking up. Let's hope 08 is full of all things positive and healing!

sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 1/14/2008 1:35 PM (GMT -6)   
YAY Peggy! Congratulations on your good news. I love to read these happy posts, it's so uplifting! And, since you guys are like my little xtended family, what makes you guys happy, makes me happy, too!!!
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 1/14/2008 1:49 PM (GMT -6)   
Thanks for the thorough update Peggy. Good luck with reducing the Bentyl and Imodium. However, is there any long term harm in taking these medications? If they help slow things down, you may need them.

Keep us posted on your progress.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/14/2008 3:59 PM (GMT -6)   

 

Amey:  It seems as though my digestive system has changed quite a bit over the last year - for the good.  Things are slowing down on their own, mostly in part to my change in diet (I think).  So, based on the way my system is acting, I want to slowly try to get off of them..  doc is ok with it and encourages it.  BUT, he said too, that after all of these years, I know my body better than he does and that if it doesn't work, don't sweat it.  The big one for me to try to eliminate is the Nexium just because it has worked so well for me WHEN I had a real problem.  Now I just want my gut to get back to normal.  Bentyl would be my second  one to eliminate.   If I get stressed tho, the first place that I feel it is in my stomach and intestines.  Controlling stress is the key for me.  (And we are in the process of building a new home - my husband and I are the general contractors. No Stress There, right?!!)

To Everyone who has wished me well -  Thank you so very much.  You all are my extended family and I do keep up with the reading of all of your posts.  We are pretty busy with our house right now, so I haven't been able to post much lately. 

To all of you that are contemplating or waiting on surgery - I wish you the very best.   My ileostomy has been the best thing that happened in my life and I hope that it will be for you too.  Ask questions - don't feel anything is too trivial.  Be prepared because knowledge is the key to a successful surgery and speedy recovery.  I certainly wish I had all of the different resources to choose from back in 1984 that you all have today.  The biggest being this forum and information on the internet.

For those of you recovering or post surgery, be patient.  It will get better with each day.  Be positive.  Enjoy eating again, whatever your diet is right now.   And continue to ask those questions.  We are here on this site for you.  If you are having leakage problems, wafer problems, or any other appliance issues - try changing or altering your system.  As you all know by know, I am such a believer in the Eakin Seals.  One of the folks here on this forum suggested the Eakins to me, and it worked.  I feel like she was watching over me.  It worked!  Then I recommended it to another member and it worked for her too.

Thank you all for being there and being understanding and so caring.  I hope I can repay you in the days, weeks, months to come.


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 

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