What's the deal with me and the paste...

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summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 1/14/2008 10:26 PM (GMT -6)   
Wed, i changed my bag, and i always lay my stuff out on the counter, and some of the paste came out on the counter, well i thought i cleaned it all up.  Sometime that night, like a 3am i got up to use the bathroom, well i knocked my contact case off the counter and bent over to pick it up, when i did, i felt something go in my hair, and looked up and saw what i thought was some hand soap that i had spilled earlier, and so i didn't really think anything about it, i just went back to bed, that might be gross, but i thought, it's just soap.  Anyway, when i woke up thursday morning i had this huge spot of hard hair on my  head, right where the soap had gone!  and so i went to look, and it wasn't soap, i had goteen some of that paste in my  hair! 
It was sooo gross, it took me washing my hair like three times to get that stuff out! 
SO, moral of the story, at all costs avoid getting that in your hair!

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 1/14/2008 11:08 PM (GMT -6)   
Leah, your wafer changing stories always crack me up!! tongue


Cecilia
 
Dx'd Crohn's in '99 at 28. Proctocolectomy & ileostomy in '06.
Pain-free, med-free, and very thankful to be healthy again :)


Indabag
Regular Member


Date Joined Aug 2007
Total Posts : 254
   Posted 1/15/2008 4:10 AM (GMT -6)   
I guess there is finally an advantage to being bald! tongue

Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 1/15/2008 8:49 AM (GMT -6)   
I guess you discovered a new type of hair gel...LOL
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


Slice
Regular Member


Date Joined May 2004
Total Posts : 277
   Posted 1/15/2008 9:24 AM (GMT -6)   
Whats that old commercial? Gee, your hair smells.......like an ostomy.

My problem with the paste is that the tube turns hard as a rock after using it once. I don't know what else to do. I used it once last week, put the cover back on right away, and the next time i tried to use it it was rock solid. Ugh. Couldn't even wash my hair with it.
 
Crohn's for what seems like forever
Bagged in August 2006
@ssless as of 11/2007
 
 


candyland
Regular Member


Date Joined Nov 2007
Total Posts : 98
   Posted 1/15/2008 1:37 PM (GMT -6)   
"Something about Mary" has a whole new look!  Great story! :)

peggy113
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Date Joined Aug 2007
Total Posts : 1998
   Posted 1/15/2008 2:06 PM (GMT -6)   
Geez! LOL!!! Only you, Summer!!
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/15/2008 2:19 PM (GMT -6)   
Lol u guys r funny! Just imagine if ud gotten stuck 2 ur pillow!I needed a laugh today. Got a lot on my mind. But y do u have paste? I thought the wafers were like sticky or something? Bear with me I haven't gotten mine yet lol
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/15/2008 2:24 PM (GMT -6)   
Some folks use Stomahesive Paste (Convatec's version) to help with the seal just around the stoma.  It's like thick toothpaste that you can squeeze a bead of clear around the stoma opening of the wafer.  I have recently switched to the Eakin Seal, which is much like the wafer; but it acts like an additional barrier to the stoma's output in providing a better seal.  Does that make sense?
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/15/2008 2:37 PM (GMT -6)   
I think so, thanx peggy. So this paste go on the wafer not the skin right? When I meet with the ostomy nurse she should explain this to me? I think I'd prefer whatever system that is the least amountof maintenance.
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/15/2008 2:54 PM (GMT -6)   
Some folks don't have to use the paste, some do.  You ostomy nurse will get you started with a system and explain it to you.  If it needs adjusting, you may have one up on the nurse by way of the information you gather here!  I used the paste from 1984-2007, until my system needed some adjusting. 

Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/15/2008 10:38 PM (GMT -6)   
i just use the paste because they told me too, i don't know what would happen if i didnt' use it. It isn't a big deal to put it on. However, for me, it does seem to be a big deal to keep it from stickign to my hair!
praying-i thought about that after i got up, especially after the way it got stuck to my towel that time!

justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 1/16/2008 7:57 AM (GMT -6)   
LOL--I just love your paste stories!

dreamerpet1
New Member


Date Joined Jan 2008
Total Posts : 3
   Posted 1/16/2008 11:52 AM (GMT -6)   
scool  good morning all
this is my 1st time here  and from reading  these little notes i think i will enjoy this site
 i have had chrons since 93 24 hours of the lose stuff to the point of standing in the tub while talking on the phone i have had every treatment there was out there seen by many quote unquote dr.s who are the TOPS on this  well 1 yr ago this past nov. i had a clostomy as much as a pain in the butt it is  it means a new life for me i had been house bound since 1993  with a few outings but far between. i thank this new life on a dr. who i had the most faith in and thank him every day for  my new life 4 days before we were to meet again and discus a reversal he  passed away unexpectidly from a stroke. i thank him for my life and am so sad he did not live long enough for to see me live it to its fullest.he became a great friend as well.but its all done now and a reverse isnt an option anymore so i am in for the long haul. but for the 14 months i have had this little treasure i have had my share of goffy things happen to it n me. like the glue in the hair
 got one better
 didnt realize i had gotten some on the counter  and put my round hair brush down in it
 hopped int he shower got all put back together dryed my hair then hit the hair brush witht he dryer
 u have not had fun till this has happened to you and there is no one there to help u seperate the hair the glue and the brush
 i have since learned a new langue for this time  my husband says it hysterical when i have little screw ups doing this
or the time the prep was put on and i went a little to high and glued my bust to my chestas my colostomy is just under the breast
 but i do think this is going to be a good place for me as we all know unless you had a colostomy thee arent many who understand what the heck its all about
 thanks for having me and look forward to meeting you all in a chat somewere if i can figure how to get into  one
 

praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/16/2008 1:11 PM (GMT -6)   
Welcome dreamer! And yes u will enjoy this site I guarantee it. Not only are the members extremely helpful, but they say just the right things at the right times and never hesitate to make u smile. Their sense of humors are astounding.

But one question if u don't mind my asking, y were u no longer able 2 receive the reversal?
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


dreamerpet1
New Member


Date Joined Jan 2008
Total Posts : 3
   Posted 1/16/2008 2:02 PM (GMT -6)   
yeah   thanks for the warm welcome
 
 the crohns was at the point that i was on opium drops  25 to 30 drops in 2 oz.s of water 5 to 6 times a day to shop or slow down the bowel flow needless to say after 9 months of it it wasnt working they use it as a last resort but the part of the bowel that is left is to infected with the crohns  next step would be to remove the rest of the bowel but all seems to be good rt now so im happy with  the way of life i got now
 
 
worry is only natural if you do have an ileostomy trust me there is a period of saddness to follow but if u r like me you have to have a sense of humor like i find something funny in everything now  the nurses who came to the house following the colostomy were amazed at how i was handling it
 they would set their knee on the bed  and look at it and i would crack jokes about not today dear i have a headache before i had mine done i went to a few web sites my doctor gave me his code so i could go into sites for dr.s and i actually watched the video so when i went to see him i told him how it was done. some of the co.s out there sent me videos how to take care of it after and at the hosp the day after i had one nurse tell me i was so imformed i could tell them what to do.
 just keep your sense of humor and all the worries and the sadness will mean nothing

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/16/2008 6:36 PM (GMT -6)   
i love the hair brush story! and you know that heat made it ten times worse!
So i believe that we should all remember to keep our paste and supplies far away from anything that may touch our hair, or anywhere in that area!
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