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praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/15/2008 9:15 AM (GMT -6)   
Its the 29th of this month.
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1245
   Posted 1/15/2008 9:26 AM (GMT -6)   
Excellent :) I'll be thinking and praying for you on that date :) It'll be the start of a brand new life for you.
I have had an ileostomy for 32 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/15/2008 9:30 AM (GMT -6)   
I hope so shaz, I'm so nervous all over again. Thanx alot
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 1/15/2008 10:22 AM (GMT -6)   
The sooner the better, now that you've made the decision to do it. Now remember, things WILL be tough, but they WILL get better. You can do this! And you know what to expect, and you have us, so ask all the questions you want after your surgery. We can help you!! Keep us posted for sure, ok?
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/15/2008 1:58 PM (GMT -6)   
Ditto on what everyone has said... you should feel like part of the family now and know that we like to be there to help you and be supportive, even if you just want to vent! That's what we are here for.

Best of luck to you. I will be thinking of you. CHIN UP! Be brave and be positive. You will come thru with flying colors.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/15/2008 2:28 PM (GMT -6)   
U guys are awesome! Thanx a lot all of u. I would say I'll keep u posted but u guys know I post everyday with some new weird issue lol. So ill probably b posting even more with questions that pop n2 my head now that this is a reality. I'm usually on my sidekick reading n e way cuz it hurts my bum 2 sit on my pc. So mayb if I'm not crying too hard I'll even post from the hospital lol.
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


ME!
Regular Member


Date Joined Aug 2007
Total Posts : 185
   Posted 1/15/2008 4:48 PM (GMT -6)   
Just remember that the pain will not last forever.

You'll be feeling much better by Spring!

I'm excited for you!!

praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/15/2008 5:20 PM (GMT -6)   
Hahahahahaha! I just realized that I typed "sit ON my pc"! Lol! I meant "sit at". Wow... I know u guys were like "what is this girl doing n her spare time ?!"
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


Indabag
Regular Member


Date Joined Aug 2007
Total Posts : 254
   Posted 1/15/2008 9:16 PM (GMT -6)   

Good Luck Praying! Remember it's all about feeling better so that you can enjoy a full and healthy life. Heal well!

Richard


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 1/16/2008 6:13 AM (GMT -6)   
I will be praying that the surgery goes really well for you and that your stoma starts working quickly. What's your first name? Thanks! :-)

Please don't be nervous. You're in good hands, and they're going to keep you very comfortable with excellent pain medicine. Make sure to talk with your surgeon about getting an I.V. pain pump. That way, you can push the button every time you want a dose of medicine versus having to call the nurse and wait for him/her to give it to you. If your nurse is busy with another patient, it can sometimes take up to 45 minutes for them to get to you, so you'll definitely want the pain pump.

You'll also want to get up and walk as much as possible, because that will help get things moving. The sooner things move, the sooner you can get out of there and go home. If you have any questions about anything, please feel free to ask. We are here for you and will be encouraging you every step of the way!
Cecilia
 
Dx'd Crohn's in '99 at 28. Proctocolectomy & ileostomy in '06.
Pain-free, med-free, and very thankful to be healthy again :)


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/16/2008 9:53 AM (GMT -6)   
Thanx cecelia,

I do have a few questions. What is a typical dose of the morphine n the pain pump? Iv been on it the last few times iv been in, but it offered very little relief from my actual pain. It just kept me sleepy so I stayed on it bc b4 I couldn't sleep at all.

Also, the last few times iv been n theyv wanted 2 give me a blood transfusion. They say my hemo is supposed to be 12 and its like 6.5? Does this make sense? Iv always denied bc my hemo has been as low as 4 b4 and iv been up and about. N e way so iv never really had an "invasive" surgery. Just surgical procedures. Is it likely that they will want 2 give me a transfusion b4 this surgery? I have a major fear as I know someone who got hep c after a transfusion. Has n e one else had this experience of having to get a transfusion b4 surgery? How does it work? And how did it go?
Lastly, my surgery is supposed to be laproscopic what's the shortest time that I can b n the hospital? How soon should my stoma start working?

Thanx guys, I'm trying to stop using the word "scared" and instead I'm using "nervous". And as these days wind down I'm getting extremely nervous. I feel like my body (and mind) will never be the same again
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 1/16/2008 7:18 PM (GMT -6)   

Praying,

It's been over a year since my surgery, so I can't remember what the exact Morphine dose was, but I'm sure someone on here will know. It made me sleepy, too. Are you also having your colon removed? They will have blood ready to give you if they feel you need it before or during surgery. They just give it to you as an I.V. drip, so it's not a big deal.

My hemoglobin has gone down to a 6 before, and I was almost fainting from the lack of oxygen flowing through my blood. I would get winded just walking a few steps. So, I've had to have several transfusions over the years, but have never had any problems from it. In fact, it made me feel a whole lot better. I know they test for hepatitis and HIV before giving it, so please don't worry about that. A hemoglobin of 4 is very low. I'm surprised you don't feel tired when it's that low.
 
A stoma can take up to two weeks to start working, and they will not discharge you until it puts out, so it's good to be prepared for that. Everybody is different. Mine took 10 days to work. Getting up and walking is supposed to help wake things up. I walked a lot, but it still took a long time to start working.
 
I honestly wasn't in much pain from the actual ileostomy surgery. One thing that hurt for me was trapped gas pain. I would advise bringing your own chewable Gas-X tablets, so you don't have to wait for the nurse to call the doctor to have it approved and then sent down to the pharmacy, etc., etc., before receiving some. That's what happened to me, and it took several hours before I received a couple of over-the-counter Gas-X pills.
 
The other thing that really hurt was changing my wafer for the first time... the adhesive pulled out all of the little blonde hairs on my belly one by one! That really hurt! So, I advise shaving the area on your tummy where the wafer is going to be, so you don't have to pull those little hairs out the first time you change your wafer.
 
I hope I've answered all of your questions. Please know that this surgery is going to make you feel sooooo much better! I know it's hard to believe now, but I promise you, it will. :-)

Cecilia
 
Dx'd Crohn's in '99 at 28. Proctocolectomy & ileostomy in '06.
Pain-free, med-free, and very thankful to be healthy again :)


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/16/2008 9:14 PM (GMT -6)   
Yea I'm starting geritol 2morow my blood is still at 6.5. That may b y I never regained my strength from being discharged last month. I don't get out of breath per say but I just don't have the energy to walk for long periods of time. This is a first for me.
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!

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