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Ash83
Regular Member


Date Joined Nov 2007
Total Posts : 128
   Posted 1/15/2008 3:10 PM (GMT -6)   
Does anybody else suffer from pain/acheyness from them? What do you do to help ease the discomfort?
 
 
My family doctor essentially told me to just "get through" the pain, but I'm not so sure that'll work forever.

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/15/2008 5:56 PM (GMT -6)   

Ash,

Yes, I have suffered from the pain of adhesions - or so that's what's been determined.  Keep moving is all that I can tell you.  Maybe massage the area, hot showers, tub baths, heating pad.  I do know they can be painful.   Keep eating as you can too.

The place that I have had most of my adhesion problems is around the outside of my duodenum and stomach!  It took several years for that to be diagnosed, but thru a process of elimination, WE (meaning me and my doctor) figured it out.   For me, the upper GI follow thru went thru just fine -- it is semi liquid, no digestion really to take place, no breakdown of food.  Those tests came out just fine.  Still in pain tho.  After my original surgeon ran a scope thru the stoma to check to see if I had any other Crohn's active (negative), I was referred back to my GI doc locally to "manage the pain".  I have to admit it was awful.  I was on Duragesic patches for a while UNTIL I got sooooo frustrated that I called my GI and we had a real heart-to-heart talk.  He told me that we had pretty much exhausted all of the testing that he could run.  We could feel and see  the distention and feel the areas that felt like knots.  So, I asked him why we couldn't run a scan or xray or something IMMEDIATELY after I ate foods that I knew would cause a real problem?  He was game to do it and to schedule me for the test as soon as I walked into the hospital xray area so everything was still in the area that was causing me sooo much pain.  Guess what they found?  My stomach, first of all, is now laying in the shape of a U, not like a kidney bean.  And the food was obviously being "STOPPED" by some sort of adhesion or stricture right where the stomach empties into the duodenum.  YIPPEEE!  We actually Found SOMEthing.   The Cure:  He did an EGD

Esophagogastroduodenoscopy (EGD) is an examination of the lining of the esophagus, stomach, and upper duodenum with a small camera (flexible endoscope) which is inserted down the throat.

and when he blew my stomach up with the air so he could take a look around, well, I hate to admit this, I used some not-too-nice words.  Keep in mind that you are kinda out of it at the time.  You can respond to commands, but don't remember anything.  The wonders of Versed!  Anyway, he knew he was in the right area and as soon as I woke up, I knew the pain was gone and it had worked.   So about once a year (knock on wood) I have to go thru this.  Only when I have horrible, horrible heartburn and pain in the stomach tho.  (btw, that is how I initially developed my gastric ulcer which is healed now).  The EGD is not painful in any manner for me that I remember and Now I apologize in advance to the doc for what I am about to say!!!!!!  We laugh about it.

Sorry for the rambling.  Just my story.  Most never ever have to deal with this.  I am prone to adhesions and I do, but it is fixable for me.  Thank goodness.  I do know the pain of adhesions.


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


TGandJsMom
Regular Member


Date Joined Sep 2006
Total Posts : 41
   Posted 1/16/2008 5:50 PM (GMT -6)   
I have them in my pelvic area and the left side of my abdomen... Right now they hurt when I think things are "kinked up" and my doc is trying to ascertain what is causing it and if it is the adhesions we know are there...

I try lying on my stomach and if that doesnt't help, I put my vibrating heating thing on the spots and it helps a little.

Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 1/17/2008 5:56 PM (GMT -6)   
how can any doctor tell you to "work thru the pain"?

i would ask for a referral to a pain management doctor and if he says no, then appeal thru your insurance company.
"The things that make us feel so abnormal, are actually the things that make us all the same" - from PostSecret: Extraordinary Confessions from Ordinary Lives - by Frank Warren


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/17/2008 6:12 PM (GMT -6)   
Glad,
 
My guess is that they say that because they have never HAD to DO it!
 
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/17/2008 6:38 PM (GMT -6)   
Sorry guys but what exactly are adhesions? Are they a comon concern after ostomy surgery?
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/17/2008 6:52 PM (GMT -6)   
Adhesions are Scar tissue that can and usually form after any surgery.  The more surgeries, the more scar tissue.  However, very few people just get an abundance of adhesions like myself.  My surgeons were amazed at the amount of internal adhesions they saw in between one surgery and the next.  They are really hard to "see" on any test because they are a soft tissue.  If there is some sort of stricture, then the stricture will show and usually it is assumed it is scar tissue.  Does that make sense?

Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/17/2008 7:19 PM (GMT -6)   
Ok, so it has already been determined that I have a stricture that made it difficult to scope me b4...this would be considered an adhesion? This ileostomy will b my first surgery ever.
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


spasman
Regular Member


Date Joined Jul 2006
Total Posts : 361
   Posted 1/18/2008 12:39 AM (GMT -6)   
BigMomma said...
I have them in my pelvic area and the left side of my abdomen... Right now they hurt when I think things are "kinked up" and my doc is trying to ascertain what is causing it and if it is the adhesions we know are there...

I try lying on my stomach and if that doesnt't help, I put my vibrating heating thing on the spots and it helps a little.
 What is your vibrating heating thing ?
-IBS induced by NSAID
-IBS-A,C with meteorism(trapped gas) and pubic burning-
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/18/2008 1:29 PM (GMT -6)   
Scar tissue inside of the bowel can also be caused from disease--- like a cut on the surface of your skin and heals and gets recut and reheals. You form scar tissue. Having scar tissue inside of the bowel, or diseased bowel can make a stricture causing difficulty "scoping" the area.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 

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