Surgery Scheduled for monday

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oilenz
New Member


Date Joined Jan 2008
Total Posts : 3
   Posted 1/17/2008 2:03 AM (GMT -6)   
Hello all. My wife has a partial colectomy scheduled for monday the 21. We are posting this to get some real answers. She has been diagnosed with colonic inertia. The doctor will be removing about 85% of her colon. The remaining colon that is attached to her rectum will be joined to her intestines. Has anyone had a similar procudure? If so are you happy with your results. If you could turn back time would you rather deal with stool softeners and laxatives or have the surgery? What are the real long term effects of this procedure. Can we expect to ever be normal after this procedure. Reading through this forum we see alot of painful side effects and complications. Will we be trading one set of problems for another or do patients end up better that before? Please respond to this posting we just want to hear the truth from someone who has experienced this. Thank You

Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 1/17/2008 8:11 AM (GMT -6)   
Oilenz,

I have had this surgery (a sub-total colectomy) for CI. However, your wife's reaction to the surgery is going to be unique to her specifically. No one, not even Drs, know the reaction from the surgery until your wife is healed. However, I can tell you that in a study done about 6 years ago, 75% of women said that they would have the surgery again. A sub total colectomy is NOT a cure for CI. It normally helps with the symptoms but does not eliminate the problem. Your wife will probably have to combat other side effects from the surgery - bloating, stomach discomfort, and such. Further, if the slow transit exists in her small intestines, she may still have constipation problems. Check under the thread at this forum titled "colonic inertia" for more information.

I hope this helps.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
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ME!
Regular Member


Date Joined Aug 2007
Total Posts : 185
   Posted 1/17/2008 8:51 AM (GMT -6)   
oilenz,

I had the surgery October 07. Yes I would choose to have the surgery again if I had to do it all over again.

Below is a copy of what I posted in another thread to a woman asking this same question. I hope it's helpful to you and your wife.

I was dx'd with colon inertia. I took the sitz marker test and after 5 days 23 out of the 24 markers were left in my colon.

The surgery was the hardest thing I've ever done in my life! I don't mean to scare you but I do mean to prepare you. That being said I'm 3 months out now and I can say it's one of the best things I've done for my health.

I was told I would be in the hospital around 6 days. But because my bowels didn't 'wake up' I ended up being in the hospital 11 days. When you have the surgery your bowels stop working and have to wake back up. They were afraid I had a blockage and did x-rays and then a Cat scan, but it was clear.

They wouldn't let me eat anything. I was only able to have ice chips and suck on hard candy. My advice on this, if your bowels are taking long to wake up and they aren't allowing you any nutrients then ask about a TPN. It's nutrients given thru the IV. I got very weak and was losing weight.

Then around 6am the morning of the 11th day I was in bed and my bowels just broke loose. I had no control. They got me unhooked from my IV pole and let me get in the shower and the poor nurse had to clean up my bed.

I had to eat a meal and see how I felt before they would release me. (Hospital food never tasted so good) You'll be on a low residue diet once released. My first meal home was: Roasted chicken, salad greens with dressing, cooked carrots, baked potato without the skin but with plenty of sour cream :), string beans and a dinner roll.

Everyone is different but I only had one accident after I got home. You might want to buy some Chucks to keep underneath you wherever you sit and on your bed.

I had bad spasming of my small intestines. The doctor said that sometimes people dx'd with IBS before the surgery have this. He gave me Symax which helped but he mentioned how stress effects the gut and to try and keep the stress down (yeah, right). Well, I have a perscription for Xanax so I thought I would try taking one with my meals and lo and behold that has helped tremendously. I've only had to use the Symax once after eating a sandwich with whole grain bread. I'm suppose to be able to eat whole grains by now but I guess my gut isn't listening to the doctor, so no whole grains for me.

I also take a stool softner because after about two weeks things seemed to have slowed down. I think my bowels are just slow, so I just take the stool softner for my own peace of mind. Maybe at some point I'll try not taking it and see how I do, but for now I do. I also take a good probiotics. After going thru this surgery the good bacteria in your gut is probably none existent.

I go out to eat with no problems. No worrying about making it to the bathroom. I thought that would be an issue but it hasn't with me. Depending on what I eat will depend on how thick or watery my stool is.

Also, no one informed me that this surgery would probably throw my menstrual cycle off. I had my period the week before surgery which I was glad about because I didn't want to be on my period at the same time, but I started my period a few days after surgery so be sure and bring proper underwear and pads just in case. The hospital pads aren't comfortable.

The most painful part for me was they pump you full of CO2 to do the surgery. Well that gas has to go somewhere and if your bowels aren't working you can't get it out. They tell you to walk, walk, walk. Well walking never got it out for me it made it go further up under my ribcage and shoulder. VERY painful.

Take advantage of your pain pump.

It's also good to have someone who you know is going to be there the first night and next day. My husband went home after the surgery and the next day when I was coming out from anesthesia I was confused. Didn't know what day or time it was.

If you have any questions please ask.

Post Edited (ME!) : 1/17/2008 1:59:19 PM (GMT-7)

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