Have you tried these????

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sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 1/18/2008 1:54 PM (GMT -6)   
So, someone on my sparkteam for people with osotmies reccomended these seals....they sound like a great idea, especially for me and the kinds of leaks I get...
 
 
They are seals that go ON TOP of your entire wafer. So the wafer always stays dry, and if you have just a small little leak, it keeps things together until your workout is over, or you get home or whatever. It's almost like a piece of tegaderm over you entire wafer, I think....
 
For my leaks, which are usually very slow, weepy leaks..not usually stool, usually just gunk form the sore I have by my stoma, these seem perfect to get me through the day.
 
I am definitely going to give them a shot, but has anyone ever heard of them or tried them? She likes them, and ran marathons with them.
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/18/2008 2:10 PM (GMT -6)   

Sf,

Never heard of them but look interesting.  I guess it would just be an extra layer, tho very thin, of confidence and may come in really handy for you until you get your leaks resolved.

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 1/18/2008 2:23 PM (GMT -6)   
I would try anything once...what is the harm in trying? Of course, my insurance covers almost everything so I get to try nearly everything I want.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 1/18/2008 3:00 PM (GMT -6)   
Just out of curiosity, what's a sparkteam?
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 1/18/2008 3:17 PM (GMT -6)   
It's a website, sparkpeople.com....you can join or make "teams" of people with similar weight loss, nutrition, or exercise goals. For example, training for a marathon, or losing weight after an ostomy. It has really nice tools for tracking nutrition, calories, and exercise, and you can post messages and questions and support for hose in your groups. So, on that website, the "teams" or groups you "join" are called sparkteams.
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 1/18/2008 4:13 PM (GMT -6)   
She says it does help a lot. This could be an answer for people with "shower" problems. I'm excited to try them. Apparently the company's website is down, but you can call for a sample 1-877-257-4562

UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 1/18/2008 4:14 PM (GMT -6)   
Oh, and the website home page, which is all that works right now, shows people swimming and in the bath...if that's any indicator. www.alpglobal.com/

UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


candyland
Regular Member


Date Joined Nov 2007
Total Posts : 98
   Posted 1/18/2008 4:16 PM (GMT -6)   
I would love to find something - anything - to keep the wafer tape from getting wet in the shower. The rash that I have from it getting wet is driving me to drink! Well, maybe I was enjoying that already, but it IS driving me crazy. :) I haven't checked these out yet. Will they work for that?

sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 1/18/2008 4:23 PM (GMT -6)   
I think that that is what they are manufactured for - keeping the entire wafer, including the tape, dry. I have an order on the way, so I'll let y'all know!
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 1/18/2008 5:01 PM (GMT -6)   
Ash,

Are you saying that the tape around your rim of your wafer comes up? Because I bike a lot and bend a lot, my wafers used to come up all the time. Now I apply a very, very thin layer of Eakin just under my tape area and it sticks GREAT! The Eakin is thinner than thin spighetti. I cut a long thin strip of the Eakin and then apply it all the way around my wafer tape.

This may work for you also. Eakin seals are wonderful. Next, I think I will see if I can use them for household repairs...ya know, if a handle comes off the cabinet, they an Eakin...LOL just kidding.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 1/20/2008 7:29 PM (GMT -6)   
Yeah, Amey, who needs duct tape when you've got Eakin seals??
Cecilia
 
Dx'd Crohn's in '99 at 28. Proctocolectomy & ileostomy in '06.
Pain-free, med-free, and very thankful to be healthy again :)


jacksns4
New Member


Date Joined Jul 2007
Total Posts : 18
   Posted 1/21/2008 3:39 PM (GMT 0)   
Wow...I am the Sparkperson that found the Sure Seal Rings by Active Lifestyle Products! I earlier posted on this site what to use when exercising and sweating off the wafers. I was training to 'walk' a Half Marathon and the wafers were melting off or got leaks during long 11 mile walks in Houston heat and humidity. I tried Pink Tape by Nu Hope and that worked a little but still would pull up with sweat. I went to one of my Houston Ostomy group meeting and a nurse there told me about these seals! They had them at a local supply shop across town. I got some samples from them to know what size to get. I love the medium ones that are big enough to cover my whole coloplast assura wafer with thin clear film. Tricky putting on with the paper backing but well worth it. They help great for showers and they say good for hot tubs and swimming.

I finished the Houston Half Marathon last Sunday in 3 hours and 53 minutes! Fun walk with everyone running past my husband and I. Thank goodness I didn't have to use any porta potties on the walk but one in the convention center after it was over (no toilet paper redface ) I like these seals all the time. My edgepark was out of them for a while...seems the company was bought out and that is why the website is down. www.alpglobal.com They do take calls and emails. There is a small size and medium size and I did get them to send me some samples also. They are great and so glad I found them...I can go 7 days now sometimes! You can see if there is a leak from the side of the wafer before it makes a mess.

I tried the eakin seals but they were to big for my wafer? Do you cut them up and put under the wafer? Around the stoma like paste or around the edge of the wafer? I ordered them and don't know what to do with them to get them to work?
Ileostomy April 26,2006
Ulcerative Colitus 2x 2001 & 2005
Want to get J-Pouch eventually!


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/21/2008 10:05 AM (GMT -6)   

Congrats on the marathon!!

Here is something I posted on another thread about Eakin seals:

There are 2 types: Eakin Seals and Eakin Strips. I buy the Eakin Seals, which look like a flat round disk, and make my own strips since the only area that really degrades quickest on me is right around the stoma. Think of them as a firm, but sticky, stomahesive paste (if you ever have used that). I simply cut the seals into strips and line the back side of the wafer just around the stoma opening hole. You can also apply it directly to the skin right around the stoma. I find applying it to the wafer better for me. I can also press it firmly against the wafer, esp around the edges of the already cut or pre-cut hole in the wafer to create a really tight seal between the wafer and the Eakin before applying to my skin. Some folks use the entire Eakin Seal by cutting the area that fits around the stoma the same size that you cut your wafer. Eakin Seals come in a small size and a large size. Small being about 3" across from one side to the other, and large being about 6" across. Again, I personally just need the extra help just around the stoma and cutting it into strips works fine for me.  I do know that some folks have issues with the wafer sticking around the outside edge too and either placing a few strips around that edge or using the whole Eakin seal works for them.

Good Luck,


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 

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