Severe Hair Loss

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resa
Regular Member


Date Joined Apr 2006
Total Posts : 141
   Posted 1/27/2008 2:23 PM (GMT -6)   
Hi Everyone,
 
I had my colectomy 10 months ago almost 11.  I have had severe hair loss and getting worse.  This morning I found a bald spot half the size of a dime.  I had to cut my long hair short but I think I even need to go shorter.  Does anyone have a suggestion about what I can take.  I am going to Whole Foods today to pick up some liquid vitamins and I hope they help me.
 
Please any suggestions I would appreciate it.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/27/2008 10:19 PM (GMT -6)   
about three months after a major illness or sugery usually you get some pretty bad hair loss. But i dont' know what would cause it to continue. Have you been to a dermatoligist?

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 1/28/2008 6:18 AM (GMT -6)   
I'm sorry you're having hair loss. sad My hair started falling out while I was taking methotrexate for Crohn's. I used Rogaine for Women, and it really worked! You just spray it on your wet hair after a shower. One little bottle lasted me a month, and that's all I had to use. I hope it works for you, too.
Cecilia
 
Dx'd Crohn's in '99 at 28. Proctocolectomy & ileostomy in '06.
Pain-free, med-free, and very thankful to be healthy again :)


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 1/28/2008 8:31 AM (GMT -6)   
Resa,

Oh I am so sorry that you are going through such an awful experience. Have you had your thyroid tested? My hair was really thin before I found out I was hypothyroid. Also, have you thought about a food allergy? Are you allergic to gluten or dairy? I cannot process gluten. You may want to aviod some of the high allergy foods for a while: peanuts, wheat, dairy and such. You can try alternatives: gluten-free pasta, soy, tofu. How is your fingernail growth? Usually, hair and nails grow about the same because they both need calcuim. Do you take enough calcuim? You may want to look at taking a prenatal vitamin. I realize you are not pregnant but these vitamins are a little higher in certain elements which may be beneficial.

I hope you find some help. Please keep us posted.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 1/28/2008 11:11 AM (GMT -6)   
I, too am suffering from this. My surgery was in August, though. I think everyone's advice is great, andI just wanted to add that while this is going on, you should try to avoid ponytails and things like that. I had been wearing my hair back to hide the bald spots, but it made them worse - once I left my hair down again, the hair loss slowed a little.
I haven't tried prenatal vitamins, but that makes a lot of sense. Anyone know if you can get prenatals in a liquid form?
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


ConsideringABag
Regular Member


Date Joined Aug 2007
Total Posts : 65
   Posted 1/28/2008 6:28 PM (GMT -6)   
Resa,

When I would get very sick with Crohn's my hair used to fall out, too. :( My dermatologist said I probably needed more iron (I was anemic), Or I needed more Biotin (a B-vitamin you can buy at the store, which is somehow important in growing hair.)

Anyway, I started taking these 2 vitamins, and my hair was back to normal in 6 months (my hair grows Slowly!) Just a caution, might want to ask your doc if it is okay to take iron pills--you can actually take too much and become sick, but most people like us--who have problems absorbing nutrients--do not have this problem ever!

I hope you find a solution! I was very self-conscious and stressed because I only wanted to wear my hair certain ways, so I feel your pain!

Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 1/28/2008 6:39 PM (GMT -6)   
My doctor and sister in-law, who is a nurse, told me that anesthesia can cause hair loss. I was under anesthesia five times between June 21 and October 9, 2007 and lost a bunch of hair. Luckily, my hair is thick so it wasn't noticeable. I just remember lots of hair coming out when I washed my hair.

Here's some helpful info on vitamins and minerals:

Healthy Hair Vitamins

Vitamin A - Antioxidant that helps produce healthy sebum in the scalp. Food sources: Fish liver oil, meat, milk, cheese, eggs, spinach, broccoli, cabbage, carrots, apricots and peaches. Daily Dose: 5,000 IU. Warnings: More than 25,000 IU daily is toxic and can cause hair loss and other serious health problems.
Vitamin C - Antioxidant that helps maintain skin & hair health. Food sources: Citrus fruits, strawberries, kiwi, cantaloupe, pineapple, tomatoes, green peppers, potatoes and dark green vegetables. Daily Dose: 60 mg.
Vitamin E - Antioxidant that enhances scalp circulation. Food sources: Cold-pressed vegetable oils, wheat germ oil, soybeans, raw seeds and nuts, dried beans, and leafy green vegetables. Daily dose: Up to 400 IU. Warnings: Can raise blood pressure and reduce blood clotting. People taking high blood pressure medication or anticoagulants should check with their doctors before taking Vitamin E supplements.
Biotin - Helps produce keratin, may prevent graying and hair loss. Food sources: Brewer's yeast, whole grains, egg yolks, liver, rice and milk. Daily dose: 150-300 mcg.
Inositol - Keeps hair follicles healthy at the cellular level. Food sources: Whole grains, brewer's yeast, liver and citrus fruits. Daily Dose: Up to 600 mg.
Niacin (Vitamin B3) - Promotes scalp circulation. Food sources: Brewer's yeast, wheat germ, fish, chicken, turkey and meat. Daily dose: 15 mg. Warnings: Taking more than 25 mg a day can result in "niacin flush" - a temporary heat sensation due to blood cell dialiation.
Pantothenic Acid (Vitamin B5) - Prevents graying and hair loss. Food sources: Whole grain cereals, brewer's yeast, organ meats and egg yolks. Daily dose: 4-7 mg.
Vitamin B6 - Prevents hair loss, helps create melanin, which gives hair its color. Food sources: Brewer's yeast, liver, whole grain cereals, vegetables, organ meats and egg yolk. Daily dose: 1.6 mg. Warnings: High doses can cause numbness in hands and feet.
Vitamin B12 - Prevents hair loss. Food sources: Chicken, fish, eggs and milk. Daily dose: 2 mg.


Healthy Hair Minerals

Calcium - Essential for healthy hair growth. Food sources: Dairy, tofu, fish, nuts, brewer's yeast, beans, lentils and sesame seeds. Daily dose: Up to 1,500 mg. Warnings: Too much calcium can inhibit the absorption of zinc and iron; An acid found in chocolate can inhibit calcium absorption.
Chromium - Helps prevent hyperglycemia and hypoglycemia, both of which can cause hair loss.. Food sources: Brewer's yeast, liver, beef and whole wheat bread. Daily dose: Up to 120 mg. Warnings: People who are allergic to yeast should not take chromium supplements.
Copper - Helps prevent hair loss as well as defects in hair color and structure. Food sources: Shellfish, liver, green vegetables, whole grains, eggs, chicken and beans. Daily dose: Up to 3 mg. Warnings: High levels can lead to dry hair, hair loss and sever health problems.
Iodine - Helps regulate thyroid hormones and prevents dry hair and hair loss. Food sources: Fish, seaweed, kelp, iodized salt, garlic. Daily dose: 150 mcg.
Iron - Prevents anemia and hair loss. Food sources: Liver, eggs, fish, chicken, whole grains, green vegetables and dried fruits. Daily dose: 15 mg. Warnings: Too much can lead to malfunctions of the liver and spleen.
Magnesium - Works with calcium to promote healthy hair growth. Food sources: Green vegetables, wheat germ, whole grains, nuts, soy beans, chickpeas and fish. Daily dose: 280 mg.
Manganese - Prevents slow hair growth. Food sources: Whole grain cereals, eggs, avocados, nuts, seeds, beans, peas, fish, meat and chicken. Daily dose: 3-9 mg.
Potassium - Regulates circulation and promotes healthy hair growth. Food sources: Avocados, bananas, lima beans, brown rice, dates, figs, dried fruit, garlic, nuts, potatoes, raisins, yams and yogurt. Daily dose: 3,500 mg.
Selenium - Keeps skin and scalp supple and elastic. Food souces: Brewer's yeast, meat, fish, grains, tuna and broccoli. Daily dose: 55 mcg. Warnings: An excess of Selenium can be toxic, leading to the loss of hair, nails and teeth.
Silica - Strengthens hair and prevents hair loss. Food sources: Seafood, rice, soybeans, green vegetables. Daily dose: 55 mcg. Warnings: An excess of Selenium can be toxic, leading to the loss of hair, nails and teeth.
Sulfur (methyl-sulfonyl-methane or MSM) - Sulfur is a main component to hair's structure. Food sources: Onions, garlic, eggs, asparagus, meat, fish and dairy products. Daily dose: 1-3 g.
Zinc - Zinc and Vitamin A work together; a deficiency in either can lead to dry hair and oily skin. Food sources: Spinach, sunflower seeds, mushrooms, whole grains, red meat and brewer's yeast. Daily dose: 12 mg. Warnings: Too much can interfere with iron absorption.

Good luck. There are also bottles that are dedicated to Hair and Nails.

resa
Regular Member


Date Joined Apr 2006
Total Posts : 141
   Posted 1/28/2008 7:48 PM (GMT -6)   
Hi Everyone,

Thank you all for your advice. This has been going on since March 07. My hair was thick but not now. Lucky it was thick or I'd be bald by now. I was accepting the hair loss pretty well until I noticed the bald spot, as small as it might be, then panic hit me.

I bought some liquid vitamins yesterday and some liquid minerals.

Ohio 43 - The labels on what I bought seem to have most, if not all, of the vitamins and minerals you mention. I eat a lot of the foods you mention when in season.

flchurchlady - If you use Rogain do you have to continue using it forever? That is what I am nerveous about starting something like that.

Amey - My nails have been just as bad since my colectomy. They will not grow at all anymore and one nail splits up and hurts. I am allergic to soy. That is the only food product I know I am allergic to.

Maybe it is the anesthesia. I have had three surgeries since March 2007.

Again thank you all for your help.

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 1/28/2008 8:11 PM (GMT -6)   
Resa,
I only used Rogaine for one month. The hair loss stopped, so I never used it again. My sister recently complained about hair loss due to stress, so I bought her some Rogaine and a bottle of hair and nails vitamins at the grocery store. She said they're working for her. I hope they work for you, too. :-)


Cecilia
 
Dx'd Crohn's in '99 at 28. Proctocolectomy & ileostomy in '06.
Pain-free, med-free, and very thankful to be healthy again :)


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/28/2008 10:58 PM (GMT -6)   
knowing about your nails def makes it sound like a definecy, when your body runs out of something, or needs more of it, it takes it from fingernails and hair first, things that aren't needed as much.

resa
Regular Member


Date Joined Apr 2006
Total Posts : 141
   Posted 1/29/2008 7:31 AM (GMT -6)   
Hi

Flchurchlady - I might try the Rogain. It can't hurt I guess. Does the vitamins for Hair and Nails come in liquid?

I go to a new GI doctor on 2/13. I am going to ask him to runs some blood tests to check for deficiencies. I hope he will.

tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 1/29/2008 10:26 AM (GMT -6)   
Resa,
I was going to post the same issue. I've been losing my hair since November and my hair is thin and curly to begin with! The doctor told me that it's expected after surgery especially bowel surgery where we are not absorbing the proper nutrients. They said that it should quit shedding and start growing back within 6 months, but I'm afraid I'll go bald by then! My hair was long and right now looks like I have a mullett because it's so thin and sparse in the back and the sides! I'm going to give in and get it cut shorter as soon as I can drive and if worse comes to worse, I can always get a wig--maybe I can try dreadlocks!
CD diagnosed in 1991
Only one serious flare up in 1998 and again in July 2007
Total colectomy August 2007 now saying UC
2nd step J-pouch formation -January 2008
Takedown hopefully by April 2008

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