I read on another post that you are feeling so frustrated that you are considering going back to an ileo. That is a very personal decision but I would encourage you to try a couple of suggestions for a few weeks before you make up your mind.
Are you doing rectal exercises? I found that increased continence dramatically. Pretend there is a pebble up your butt and clench it. Hold it as long as you can and then release. I do it with weight lifting. No one can tell what you are doing and that way I know I am getting between 30 and 60 exercises completed per day.
To stop the butt burning I take 1/2 a dose of prescript
ion Questran powder twice a day to bind up the acids. Questran also lowers your cholesterol. I do not have a cholesterol issue but it is a nice side effect. I take Immodium three times a day. I eat a fairly low residue diet. I no longer need the pads and Depends. I am still nervous about
it so I stick to foods I know will not increase D. I am three weeks out from my reversal and loving it. I am old and did not expect to have such a fast recovery. Some people prefer to take Metamucil to add bulk to their body waste. The less liquid the output, the easier it is to control. My surgeon had me switch to Balneol to clean my butt followed by a thin gauze pad covered in Calmoseptine placed directly on the hurt area. Leave the gauze pad in place until the next time you empty your pouch. You can find both products at pharmacies. It took two days for the burn and blisters to stop hurting. I am still a little tender but sooo much better. I hope you feel better quickly!
Diagnosed 1987 with lower left ulcerative colitis. Hospitalized often. Mega toxic pan colitis Dec. 1999. Perforated colon and total colectomy April 2011. First j-pouch surgery March 8, 2012. Five other damaged organs removed at that time. Ileostomy reversal June 26, 2012. Aiming to go white water kayaking in August!
Post Edited (Subzeromambo) : 7/18/2012 11:03:32 PM (GMT-6)