Post Ileostomy Reversal Questions

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msfee
New Member


Date Joined Aug 2007
Total Posts : 6
   Posted 1/30/2008 5:49 PM (GMT -6)   
Hello Everyone,
 
I was diagnosed with Rectal Cancer Stage 3 in March 2007. I had radiaton/Xeloda therapy. A temp ileostomy was performed August 2007 followed by 6 more chemo treatments. I am so happy that I just had my reversal Jan 22, 2008 and discharged in 2 days. However, my abdominal area is much more tender now than when I had the initial sugery. Not having to wear a pouch is beyond words :-) . Maybe others who have gone thru a reversal could help me with my questions. I would really appreciate it.
 
 
My doctor said no diet restrictions. I was very surprised. He said we would discuss fiber at my 10 day post-surgical visit.  What did your doctors tell you regarding diet?
 
I haven't had the diarrhea or explosive BM that I have read about or the nurse told me about. I am the opposite. I am beginning to wonder if I may be a little constipated. I plan to contact the doctor tomorrow and ask about softeners. I think that I may be straining a little. Maybe that's why my abdominal area is so sore.  What kinds of foods are considered softeners? Did anyone not have diarrhea or numerous daily bathroom trips?
 
 I had reached my insurance out of pocket so now I have at least $500-700 worth of medical supplies...mostly unopened. Is there a place that I could donate these items to those who don't have insurance or having difficulty purchasing supplies?
 
Thanks everyone for all your help.
 
 felecia

vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 1/30/2008 6:54 PM (GMT -6)   
Hi msfee,
 
Sorry your no longer in the "club." I can't answer your question because I am an ileostomy "lifer." But I just wanted to wish you the best of luck. What size flange are your ostomy appliances, and are they one or two piece???

elishasummers
Regular Member


Date Joined Jan 2008
Total Posts : 29
   Posted 1/31/2008 1:11 AM (GMT -6)   
i personally think that anyone who has prevesily gone through an ilstomy will always be in the club,my sister will have her reversal in months i can't believeu where discharged in 2day was it a small surgey

msfee
New Member


Date Joined Aug 2007
Total Posts : 6
   Posted 1/31/2008 7:52 AM (GMT -6)   
elishasummers said...
i personally think that anyone who has prevesily gone through an ilstomy will always be in the club,my sister will have her reversal in months i can't believeu where discharged in 2day was it a small surgey
 
Elisha,
 
The reversal is not as intense as the initial ileostomy. It was liquid diet the first day but ready for a solid diet on the second day.They wanted me to walk the same evening. It was difficult because I felt so sick.  I thought the doctor wouldn't discharge me w/o a bowel movement, but I was told it was okay as long as I was passing gas. It has been a week and haven't had any major problems. I plan to call today with some questions. At this time, I plan to return to work in 2 weeks.
 
I wish your sister the best. How long will your sister have the temp ileo? It is great that she has family support. My mother was there every day and night with the first surgery.  Each day will get better.
 
  felecia
 
 

Jazzism
New Member


Date Joined Mar 2008
Total Posts : 12
   Posted 3/2/2008 5:16 PM (GMT -6)   
lol out of the club. How about graduated out of the club like me. Just had my reversal a week and a half ago.

I was on clear fluids the first day after and was starting to pass that night, nice and easy, didn't want to force it. The day after I went on crackers then that night regular food. Yay lasagna! 4 days in the hospital.

Yes the diet is open once your home, I just need imodium to slow the diarrhea down so I could at least sleep through the night, but accidents still happen.

UP to a year to get back to normal? :'('' That's so depressing. The medical people would specify between 'a few days' to 'about 3 weeks' or more. I wish there was more consensus to the length of time to get over the diarrhea phase.

Batt Chief
New Member


Date Joined Jul 2012
Total Posts : 2
   Posted 7/18/2012 9:56 PM (GMT -6)   
i had the reversal in April 2012. I still have a tendency to leak. I have learned where all the bathrooms are. I have had to start wearing pads and depends. I am trying to regulate my diet but not having much luck. Not able to go back to my job as a firefighter. Would love to go back. Doctors say it will get better. Any advice. Should I start using amodium? right now I go so much, but only a little at a time, that my butt really hurts by the end of the day.

Subzeromambo
Veteran Member


Date Joined Sep 2009
Total Posts : 1143
   Posted 7/18/2012 10:51 PM (GMT -6)   
Batt chief,
I read on another post that you are feeling so frustrated that you are considering going back to an ileo. That is a very personal decision but I would encourage you to try a couple of suggestions for a few weeks before you make up your mind.
Are you doing rectal exercises? I found that increased continence dramatically. Pretend there is a pebble up your butt and clench it. Hold it as long as you can and then release. I do it with weight lifting. No one can tell what you are doing and that way I know I am getting between 30 and 60 exercises completed per day.
To stop the butt burning I take 1/2 a dose of prescription Questran powder twice a day to bind up the acids. Questran also lowers your cholesterol. I do not have a cholesterol issue but it is a nice side effect. I take Immodium three times a day. I eat a fairly low residue diet. I no longer need the pads and Depends. I am still nervous about it so I stick to foods I know will not increase D. I am three weeks out from my reversal and loving it. I am old and did not expect to have such a fast recovery. Some people prefer to take Metamucil to add bulk to their body waste. The less liquid the output, the easier it is to control. My surgeon had me switch to Balneol to clean my butt followed by a thin gauze pad covered in Calmoseptine placed directly on the hurt area. Leave the gauze pad in place until the next time you empty your pouch. You can find both products at pharmacies. It took two days for the burn and blisters to stop hurting. I am still a little tender but sooo much better. I hope you feel better quickly!
Szm
Diagnosed 1987 with lower left ulcerative colitis. Hospitalized often. Mega toxic pan colitis Dec. 1999. Perforated colon and total colectomy April 2011. First j-pouch surgery March 8, 2012. Five other damaged organs removed at that time. Ileostomy reversal June 26, 2012. Aiming to go white water kayaking in August!

Post Edited (Subzeromambo) : 7/18/2012 11:03:32 PM (GMT-6)


Subzeromambo
Veteran Member


Date Joined Sep 2009
Total Posts : 1143
   Posted 7/18/2012 10:56 PM (GMT -6)   
Felecia,
I am sorry you are having problems. Some members here have had good luck with grape juice moving the system a little faster and softening things up.
Diagnosed 1987 with lower left ulcerative colitis. Hospitalized often. Mega toxic pan colitis Dec. 1999. Perforated colon and total colectomy April 2011. First j-pouch surgery March 8, 2012. Five other damaged organs removed at that time. Ileostomy reversal June 26, 2012. Aiming to go white water kayaking in August!
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