ileostomy with left side pain

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nurse42
New Member


Date Joined Dec 2007
Total Posts : 18
   Posted 2/4/2008 1:22 PM (GMT -6)   
Hello, I had my colon removed on Dec 18 2007 and got my ileostomy due to UC. Its been 6 weeks and Im having more pain than i did directly after surgery. Not sure if its just part of the healing cant figure out why it would be worse now. Im back to taking Percocet at least twice a day. I called the surgeons office and spoke with nurse and she just thought i might have pulled something I dont feel like i over did it. Im very tender on the left side more so than the right which is the side my iliostomy is on. My ileostomy is working fine I guess every now and than its like water in my pouch, is that a concern? I go back in May to have my rectum out, i have decided to not have the j-pouch but Doc says rectum has to come out. I did phone my surgeon again and im going for a visit Feb.6th to get checked out. Anyone have any ideas???  nurse42    

Lialdia 4tabs/day

Prednisone 40mg in Am just started this week

Imuran 150mg

Folic acid

protonix 40mg


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 2/4/2008 2:24 PM (GMT -6)   
I'm sorry you're having so much pain. sad I don't know why that would be. Hopefully someone on here will be able to offer some helpful suggestions.

I usually get pure liquid in my pouch when all I've had to drink is coffee in the morning. It's normal for the output to fluctuate based on what you've eaten or had to drink. Some foods that help thicken the output are bananas, peanut butter, bread, and potatoes.

I hope your pain goes away soon, so you can enjoy being UC free! :-)
Cecilia

Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Pain free, med free, and very thankful to be healthy again :)


nurse42
New Member


Date Joined Dec 2007
Total Posts : 18
   Posted 2/4/2008 2:43 PM (GMT -6)   
Hello Ash83 i had an open surgery which went really well. Adhesions due to healing?? nurse42

Lialdia 4tabs/day

Prednisone 40mg in Am just started this week

Imuran 150mg

Folic acid

protonix 40mg


Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 2/4/2008 3:04 PM (GMT -6)   
i get pain now too, it is especially noticeable when I cough....

maybe i have adhesions too? what a drag! sorry to be nagative guys, it's just one of those days.
"The things that make us feel so abnormal, are actually the things that make us all the same" - from PostSecret: Extraordinary Confessions from Ordinary Lives - by Frank Warren


Paperboy40
New Member


Date Joined Feb 2015
Total Posts : 3
   Posted 2/10/2015 8:21 PM (GMT -6)   
I had an ileostomy reversed in November 2014, 3 surgeries in 14. Create ileiostomy, remove portion of colon due to diverticulitis disease. Then reversal. Doing fine but having side pain (and sometimes full abdominal pain) to right of where stoma was located. Surgeon says didn't do anything over there, family doc says probably intestinal spasm. Getting worse, not better. Any ideas? Have increased fibre tablets, began probiotics and have resorted one time to laxative. Thoughts would be appreciated

Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 1202
   Posted 2/11/2015 8:08 PM (GMT -6)   
Bumpin this up. It is an old thread, and I wanted your question to get a response.
I can't add anything, don't know...
Daughter, 21 diagnosed 1-08 w/ UC
Drug sampling: Asacol,Cortifoam,6mp,Colazal,Rowasa,PPI'S, Flagyl, Pred.,Diet not directly impactful.Remi w/adjustments= remission 4 yrs, re-remission with Tacro 6 mo. Back to Endocort, Uceris,Canasa, hospital(#10), more Pred. Pancolitis, not just Left sided.Retried Remi. Entyvio, didn't stop train-surgery Step 1, 8/28/14 Step 2,12/05/14 Step 3 Mar.23, 2015

Rabbit81586
Regular Member


Date Joined Nov 2012
Total Posts : 414
   Posted 2/14/2015 9:33 PM (GMT -6)   
So Ive had my jpouch for a little over 5 months now and I'm a little over a year since my colectomy. I'm interested in how this pain can be described? The reason I ask is because ever since my colectomy I had a dull-moderate pain in my middle left abdomen that comes and goes. I've talked to my surgeon several times about it over the year and so far we haven't determined anything. I had all of my procedures done laparoscopically and nothing was "tacked" (adhesions were one of the first suggestions) up on the left side at all, in fact she had no reason to go to that side of my abdomen at all.

The way I can describe the pain is kind of like a runners cramp with varying intensity and duration. I'll feel it more so when I take deep breathes or cough really hard or something like that. I can kind of put pressure on it but there's no lump or sharpness to the pain it's just this dull ache that varies. It's the oddest thing. It comes and goes and the further from surgery I get the less frequent/intense it has become.

The only thing I can say is that the pain does get better/go away completely (if it's the same thing). My friend who's an aesthesiologist (and was fortunately on my operating team), well his wife also has a jpouch so have them as a resource has been incredible. He tells me his wife (who had the surgery like 6-8 years ago) still gets "phantom" abdominal pains every once and a while. The way he tries to explain it is something mental, almost like the stuff people go through when they lose a limb. It's like a very long mental adjustment. Now, obviously I cannot say that's what it is but it does seem to make sense. At least from my perspective I can never associate with anything specific, like hydration (though I have notice that it helps ache subside a bit just not consistently), certain foods, gas or holding in my stool. Nothing, it's just the oddest thing.

Sorry if this doesn't help, if you find anything definitive please share but so far in my experience it's nothing but discomfort and it has seemed to go away for the most part

Paperboy40
New Member


Date Joined Feb 2015
Total Posts : 3
   Posted 2/16/2015 4:10 PM (GMT -6)   
I have found the pain to go away after a good bout of diarrhea even though I have had good, steady and regular bowel movements. Thanks for responses
Paperboy40

traveller11
Regular Member


Date Joined Jan 2015
Total Posts : 69
   Posted 3/12/2015 5:09 PM (GMT -6)   
My son just experienced this for the first time today. He also says the mid area of his back hurts from time to time. :(

Paperboy40
New Member


Date Joined Feb 2015
Total Posts : 3
   Posted 3/12/2015 8:23 PM (GMT -6)   
It has been several days since I have experienced side pain. My regular physician has speculated that I was having intestinal spasms due to not having anything in the intestines for several months. Not ready to say I'm over the pain but hopeful.

Paperboy40
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