Home from the hospital need help please

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feelfine
Regular Member


Date Joined Jan 2008
Total Posts : 56
   Posted 2/6/2008 8:29 AM (GMT -6)   
Hi I just came home from last night from my surgery and I don't know what to do.

I have a nurse come in tommorrow to help me with my bag but I have some questions.

1. My bag has allot of air inside even after I drain it out. Is that normal?

2. I am getting more water than stools even after I eat solids.

3.I get a little pain when stuff comes from my stoma. Is it stuck? Should I call the nurse?

4. How long does the healing last? I feel a little weak since I came from the hospital. I feel I will never get my strengh back. I'm not even worried too much about my stomach just this stoma that keeps emptying.

Please help me.

Thanks
34 just diagnosed with UC
 
on Colazol 9 pills a day
 
4 times a day Predocine
 
 


Irish_Mom
Regular Member


Date Joined Apr 2007
Total Posts : 385
   Posted 2/6/2008 9:33 AM (GMT -6)   
It's nice being home from the hospital, isn't it? I always think you heal better/faster when you're at home in your own bed. I don't have an ostomy, so I can't answer your questions, but I'm sure someone will be along soon that will be able to help you. Welcome home!

Terri
 
_________________________________________________________________________________
Breast Cancer at 36. Diagnosed in 2000. Bilateral mastectomy with reconstruction.
Sub-Total colectomy in September 2007 for colonic inertia.
Son diagnosed with Crohn's and UC at 17 (now 21). Taking Asacol and 6MP with Prednisone and Rowasa added during flareups.
Husband HLA B27 postive with ankylosing spondylitis and psoriatic arthritis.


blue85
Regular Member


Date Joined Mar 2005
Total Posts : 62
   Posted 2/6/2008 9:39 AM (GMT -6)   

Hi!

I will try and answer your questions the best I can.

1)  Yes alot of air in your bag is normal, mine was the same way.  But after a while it calmed down and now it doesn't happen as frequently.  If you are wearing a two piece system you can just pop the seal and release it, nothing to worry about.

2)  Watery output is also normal.  In the beginning after my ileostomy everything was constantly liquid, but after a while in thickened up.  It will of course never be "normal consistency"  but tooth paste consistency is what its like most of the time.

3)  At first I did get a little sensation when the output would come out of my stoma, but I definately wouldn't call it pain.  The only time I have had pain is when I ate to much lettuce and didn't chew it well.  But if output is coming out and your not in severe pain then its probably ok.  But you know your body better than anyone so if your concerned then call the nurse.    Also the stoma will have output all the time....

I was also very weak for several weeks following my surgery.  I think I had just been so sick that it just took me a litte longer to bounce back.  Give yourself about a month and then you won't be able to sit still you will have so much energy. 

Good luck

Blue 85



Dx: with Crohns in 10-2003 then changed to Ulcerative Colitis 1-2007
 
Proctocolectomy with Ileostomy June 19th 2007 - Doing great.
Prednisone 60 mg (currently tapering by 10 a week until zero), 6MP 125 mg po qd, Pentasa 500 mg 3 po tid, Calcium 400 mg with D tid, Iron po tid, Vit C po tid, Tylenol #3 prn, Multivitamin, Remicade - Quit working, Asacol, Colozal, Abatacept Study
 
 
 


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/6/2008 10:02 AM (GMT -6)   
Iv been home for a week and I had all of the exact same questions. Blue85 gave the same answers I would have given from what I've come to learn. The gas can b a pain. Especially when it gets loud which n my case is often which I hate. I don't know how I'll handle that when the time comes to return to work.
As far as letting the air out of the seal, u may want to b careful. If ur like me and ur belly is still tender from surgery, snapping the pieces together can b a challenge. And u have to snap them tight or smells and leaks will happen. My nurse told me to let it out thru the clip and in that case I just go empty.
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


feelfine
Regular Member


Date Joined Jan 2008
Total Posts : 56
   Posted 2/6/2008 2:25 PM (GMT -6)   
Hi I feel a little sensation when something comes out of of stoma it feels like a little pain but it goes away.

Plus my bag is very heavy and full of air.

I had lunch two hours ago and it is all mostly watery I am worried that it is stuck, I was formed beore but it is not. Should I call the nurse?
34 just diagnosed with UC
 
on Colazol 9 pills a day
 
4 times a day Predocine
 
 


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 2/6/2008 2:51 PM (GMT -6)   
Feelfine,

I think you are doing fine. Your body is adjusting and trying to regulate to the new system. Give yourself permission to heal and relax. Allow your body to feel uncomfortable, sore, and tired. This is all normal. Your intestines was just cut, pushed through your stomach wall, flipped inside out, and stitched. It is going to be sore when food passes through that area for a while. I am 6 months post and I feel every ounce of food that comes through my stoma. However, my stools are thick like paste which is a lot different than your output. Please try not to feel so much stress over your recovery. Stress will just prolong the healing process. Allow your body to heal both mentally and physically.

Best Wishes to You. :o)
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/6/2008 6:46 PM (GMT -6)   
i dont think u need to call the nurse, my output is still consistantly inconsistant. one minute it thickens, the next its like pure water. My stoma nurse said as long as something is coming out then the chances are nothings stuck. as far as that sensation when the food passes, if u look back a few posts i asked the same exact thing! everyone says its normal. i still feel it all, and the bag getting heavy is a pain, i think more so when its liquidy b/c it doesnt take long to fill back up. I literally changed my bag in the bathroom and by the time i washed my hands i emptied again simply b/c i knew it wouldnt be long at the rate it was putting out all the liquid.
i do know however, that if we are putting out alot of liquid you need to drink more fluids. also, like they told me, fruit juices make u liquidy. try tea (de caffinated in my case). i dont drink water at all...which i know is unhealthy
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


EricaM
Regular Member


Date Joined Jan 2007
Total Posts : 184
   Posted 2/6/2008 7:04 PM (GMT -6)   
Hi!

I was 32 when I received my ostomy and it does take your body a while to adjust:

1. My bag has allot of air inside even after I drain it out. Is that normal?

This is very normal, just burp your bag....I love soda so I get a lot of air.

2. I am getting more water than stools even after I eat solids.

This will thicken up over time. Water absorbtion accurs in your colon and what is left is your stool. Your small intestine just needs time to learn to aborb water from the foods you eat. Dehydration can occur during the first few weeks so drink lots of water! Don't get discouraged if you do have to go back to the hospital to get "tanked up"-IV fluid to rehydrate yourself. It happened to me and I drank a ton of water.

3.I get a little pain when stuff comes from my stoma. Is it stuck? Should I call the nurse?

Yes this is also normal gas was extremely uncomfotrable at first when it passed.

4. How long does the healing last? I feel a little weak since I came from the hospital. I feel I will never get my strengh back. I'm not even worried too much about my stomach just this stoma that keeps emptying.

I remember the day I walked to the end of the driveway I was soo proud of myself! Evryone is different but if you are sleeping a lot more, increased fatigue, or light headed you might be dehydrated and call your doctor.

Good luck!
Erica
Erica
Crohn's and Ostomy in 2004


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/6/2008 10:09 PM (GMT -6)   
you can take two gas-x before you go out places, or at home, and that will help the gas lessen! lots of gas at first is normal, and after you have had it a while, some foods will still give you lots of gas.
Don't worry about the watery stuff, or being able to feel it come out. I can still sometimes feel it a little, like someone said, after eating lettuce, that i don't chew well, lol. And if you have gas you can sometimes feel like a tickle.
the healing takes a while, erica is right though, if you are feeling dizzy or any of those other things, also if you feel like your heart beat has increased, drink lots and lots, and if htat doesn't help, then call the dr, don't be suprised if you have to go get fluids at some point I had to go about two weeks after i had surgery.
Good luck

praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/7/2008 10:32 AM (GMT -6)   
i had a question about the Gas-x! i thought gas x just allows u to let out the trapped gas...so in a sense wouldnt that just cause MORE gas?! i'm very intrigued by this issue...thats why i havent used it yet...my gas is really loud and embarrassing already! When my brothers friends come over i just sit with a pillow on my stomach the entire time and tell em that its for my belly cuz it hurts when i laugh lol which is partially true. I wont be able to sit with a pillow on my stomach at work tho...dont know what i'll do then :o/
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/7/2008 10:47 PM (GMT -6)   
well i have heard that about the gas-x too, but i know that if take it my noise and gas are less than if i don't take it! my theory is that kind of keeps the gas from starting at all.
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