Coming home Sunday!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Wendy88
Regular Member


Date Joined Dec 2007
Total Posts : 68
   Posted 2/8/2008 4:40 PM (GMT -6)   
Most of you know my brother has been in the hospital for 2 months now.  He is doing much better and all of his numbers are looking good so he's due to be released on Sunday!!!
 
I have two quick questions about home recovery:
1)  He just started eating small meals again about 3 days ago but he says he feels "funny" after he eats.  He can't really describe it but he just doesn't feel right.  Is that normal after not eating for a month (plus going through dialysis and a bunch of other things this past month)?
 
2) When asked what my brother's restrictions would be, his surgeon just said when he's ready he can drive, etc.  That doesn't make sense after all he's been through!  His 1st surgery was on 11/28 and the 2nd surgery (for the bag & open wound) was 12/5.  When he was sent home the 1st time on 12/27, they told him not to lift anything heavier than a gallon of milk. Just curious what everyone else's experience was like. 
 
Thank you all for your support during my brother's horrendous ordeal!  I count my blessings for my online friends and all that you do for everyone else who posts on here. 

praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/8/2008 6:42 PM (GMT -6)   
ash is usually right. congrats for ur brother!
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!


tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 2/8/2008 8:17 PM (GMT -6)   
Wendy,
I am so glad to hear that your brother is finally going home! I agree 100% of what Ash said about not lifting anything for at least 6 weeks and I didn't drive until I was off the pain meds and felt strong enough. I'm sure your brother has lost a lot of weight and is very weak after everything he's been through, so rest is the best thing for him. As long as he doesn't have pain after eating, I'm sure he will be ok and will slowly build back up an appetite. A lot of us lost our appetites after surgery and it came back. I wouldn't be surprised if he has a fear of food with all the nausea he had before and doesn't want to overdo it. I wouldn't suggest for him to do much other than light walking when he does get home. I assume his kidneys are working ok now? Is he off dialysis completely or will he have to continue dialysis as an outpatient?

I pray that he continues to recover and it will be so much easier for him being home and in his own bed. Congratulations!

Theresa

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/8/2008 10:13 PM (GMT -6)   
i am so glad that he is gettign to come home, he has had a hard time!
i agree with everyone else, it's bound to be weird to be eating again, and as for driving he should wait a while, and be really careful lifting

lbw
Regular Member


Date Joined Apr 2007
Total Posts : 24
   Posted 2/9/2008 12:44 AM (GMT -6)   

Hi Wendy,

I had my surgery last June and was in hospital for about 2 months as well. I didn't really eat at all until just before i got out and I didn't  get any funny feelings when I ate but it took me about a month before I felt up to driving and going out and doing normal things again but one day I just felt like going for a drive and my sister came with me just in-case I needed her to drive if I didn't feel well. I think he will probally know within himself when he is ready to get back into things.

I hope all goes well for you guys when your brother gets out.

Luke


Wendy88
Regular Member


Date Joined Dec 2007
Total Posts : 68
   Posted 2/10/2008 6:53 PM (GMT -6)   

Thank you everyone for your wonderful feedback and advice!  I will definitely need to keep an eye on him so he doesn't overdo it when he finally gets home.  Unfortunately I spoke too soon and my brother did not come home today mad

He had 4 good days with no nausea or issues but Saturday he had a headache and he was throwing up again.  No one seems to know why he has this issue.  Today he seems ok again.  He's still on the TPN but they're trying to slowly ween him off of it.  I wonder if it's the TPN that's making him sick at this point.  The kidney issue is completely done (his numbers are back to normal and he no longer needs dialysis).  He's been eating small meals like soup or canned fruits or ensure.  I just don't understand how he can go 4 days of feeling pretty good to throwing up again on the 5th day. 

Ash - your post was mentioned but I didn't see it. 


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/10/2008 8:09 PM (GMT -6)   
i'm sorry to hear he didnt get to go home. to me the promise of going home and then the disappointment of not was worse than not knowing when i could go home at all. Im glad he has you on his side. I'm glad to hear about the kidney's as well! It seems as if he's taking 2 steps forward and 1 back...but hey...i say thats better than another 2 or 3 back...he's still better than he was a few days ago. He's in our prayers.
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 
Temp Ileostomy performed 1/29/08
Still Adusting
 
Healingwell.com has been my Godsend...Thank you


UCinNC
Veteran Member


Date Joined May 2007
Total Posts : 528
   Posted 2/10/2008 9:59 PM (GMT -6)   
Wendy - sorry your brother hasn't been able to come home yet. he is in my thoughts and I hope he can return soon. I am wondering - do the drs. know what caused all of this? I mean, did he get a diagnoses, a cause for the torn intestine that started all of this?
30/Female/NC
Pancolitis dx 3/07
9 Colazal a day (was on 12 Asacol/day, but suddenly got sick from it)
150mg Imuran/day (steroid dependent, reached this dose 9/07)
Various vitamins, bit of fish oil, a probiotic.
Getting married October, 2008!!!!


Wendy88
Regular Member


Date Joined Dec 2007
Total Posts : 68
   Posted 2/11/2008 7:12 AM (GMT -6)   
UNinNC:  The doctors aren't positive what caused the torn intestine.  They said it looked like he had surgery before because there was a band of scar tissue around the intestine that eventually folded or somehow weakened and tore.  My brother had two "episodes" before the emergency surgery in Nov....one in Oct. and the first episode was in Sept.  One doctor said his appendix may have started a slow leak then stopped which is possibly why the pain passed after a couple days in Sept. and Oct. and possibly explains how that scar tissue formed (from the leaked fluid).  The pathology reports, etc. show no signs of UC, Chroans, IBS, etc.
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, October 17, 2017 7:27 AM (GMT -6)
There are a total of 2,883,114 posts in 316,356 threads.
View Active Threads


Who's Online
This forum has 157488 registered members. Please welcome our newest member, 4wheelinmama.
397 Guest(s), 14 Registered Member(s) are currently online.  Details
John_TX, aphysicalwreck, RedLabel, 81GyGuy, Kent M., NiceCupOfTea, gumby44, lovefishing, enginerd, ChickenArise, Supportive Daughter, straydog, JkorourkeRN for husband, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer