Up date on my husband

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Dancerpeg
Regular Member


Date Joined Dec 2007
Total Posts : 43
   Posted 2/9/2008 12:19 AM (GMT -6)   
Hi All, Well we went to the University of Washington Medical Center today. This was a good visit we saw the surgeon first and she said we had to get the crohn's under control after that appointment we were sent over to GI doc. this is were we got a plan. He's going to start Dave on Remicade and Immuran for a couple months he told us we had a long road. If this doesn't work then he is going into surgery. But if it does work he will still have to have surgery to clean up the mess of what the disease did to his small bowel. Then after that appointment we had another appointment with their Infectious Disease doctor. So all the doctors has a plan together and we will see some results. He also is going to put him on disability until this is over. When they go in for surgery they don't want to give him short bowel syndrone so with remicade they are going to try to save some of the bowel that is farther up. Well this is going to be along year. I just want to thank you for listening. To everyone that just had surgery. I wish you well in your healing. Also I have another problem my mother has colon cancer and she is live's in Illinois and it's going to be hard for me because of Dave beening sick.
Dancerpeg

chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 2/9/2008 7:08 AM (GMT -6)   
Wow.  So much stuff at one time but you seem to be handling it all really well.  Things always have a way of working out so I hope that eveyone is well on their recovery soon.  Don't forget about taking care of yourself too!!!!

Pancolitis - July 2006
Medications:  Predisone - 5mg ,asacol - 12 tablets per day
Supplements:  multi-vit, calcium, folic acid
My wish:  get off prednsione....been on straight since 8/2006


Indabag
Regular Member


Date Joined Aug 2007
Total Posts : 254
   Posted 2/9/2008 7:23 AM (GMT -6)   

Dear Dancerpeg:

Thanks for the update. It is amazing how well you guys are dealing with everything. It is inspiring. It seems that Dave has some really good medical care and I am sure it's some relief just to have a plan in place. Hopefully your mom can get a plan of treatment in place too.

You will all be in our thoughts and prayers.

Richard


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/9/2008 7:57 AM (GMT -6)   
Peg,

I'm glad u guys have a plan. While it may be a long road, just knowing that your doctor has a plan of action can be a relief. U're a very strong wife and ur mom and husband, as well as you are in my prayers
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 
Temp Ileostomy performed 1/29/08
Still Adusting
 
Healingwell.com has been my Godsend...Thank you


tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 2/9/2008 9:35 AM (GMT -6)   
Peg,
Is it possible for your mom to go to the University of Chicago? They are ranked very high for Gastro. My dad had bladder cancer 15 years ago and went there and kept his bladder and has been cancer free. I assume that she will need to have her colon removed? If she is able to go there, I live about an hour away and would be more than happy to meet with her and answer any questions that I can about the surgery itself or go see her while she is in the hospital. Let me know if there is anything I can do.

Theresa
CD diagnosed in 1991
Only one serious flare up in 1998 and again in July 2007
Total colectomy August 2007 now saying UC
2nd step J-pouch formation -January 2008
Takedown hopefully by April 2008


ME!
Regular Member


Date Joined Aug 2007
Total Posts : 185
   Posted 2/9/2008 12:26 PM (GMT -6)   
I'm so sorry you are going thru this w/ your DH and your mom. I pray for strength for you. You seem to be holding it together well. (((HUGS)))

I hope your DH's body will respond well to the meds and that your mom will have a full recovery.

Kim

Dancerpeg
Regular Member


Date Joined Dec 2007
Total Posts : 43
   Posted 2/9/2008 7:00 PM (GMT -6)   
Hi all thanks for all that encouragement. Well my mom live's down by Evansville, In. She will have to have a part of her colon removed and put back together. If she survives the surgery she will be okay. She is 81 years old on the 23rd of Feb. I just pray that she makes it through. All my sisters will be there to be with her I have 3 sister, she live's with one of them.
Okay, I do need to take care of myself. I have be dealing with Diabetes this last year. But I did have it under control but I've put back on some weight that I had lost so I guess I will have to start over.
Well I have to start the paper work for SSI and I'm not looking forward to dealing with the state. They think it's their money when actually we've all work for it not them.
Theresa that's sweet but she live's too far away. She's way down south in Illinois.
But I'm ready to get back to work myself and have a little life outside this house. But I still have to be available to take him into the doctor office and up to Seattle.
Again Thanks all for listening. I love this website and all you guys that understand my husband but also understand what I'm going through as the wife..
Dancerpeg
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