OMG - I now know why I should NOT eat oranges!

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sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 2/13/2008 11:24 AM (GMT -6)   
This might be TMI, just a warning! Although, you guys can handle a good poop story, right?
 
Oh my!!! Until now I have not had problems with any foods. I have tried oranges - but small satsumas. While the fibers came out kinda the way they went in, they didn't give me any problems at all. But yesterday I had a BIG Naval orange.
Holy COW. I never heard so much sputtering. Big sections of the orange came out little by little. I went to bed, and when I woke up, my bag had leaked, and worse - I had this huge pain like I was full of gas. When I stood up to shower I felt like puking. When I went to change my bag there was a huge piece of orange STUCK  halfway out of the stoma. CRAZY! I've never experienced anything like  something stuck halfway out. So I pulled it out, and my stoma went crazy. Everything was backed up, but it all came out then!
Yikes! It was just like a drain plug. I do feel better, though! tongue
So, my lesson learned is not to eat oranges. My first food on the do not eat list.  :(  And I looove oranges.
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 2/13/2008 12:14 PM (GMT -6)   
You don't have to write them off forever. I had a partial obstruction with oranges my first year after surgery but haven't had one since. I eat an orange every day now with no consequence. The first year out of surgery we are more prone to have problems with certain foods, most of us are able to add that food back in time.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/13/2008 2:23 PM (GMT -6)   
wow i love oranges...but now i'm afraid to have one! lol glad u found relief tho!
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 
Temp Ileostomy performed 1/29/08
Still Adusting
 
Healingwell.com has been my Godsend...Thank you


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 2/13/2008 2:42 PM (GMT -6)   
Didn't mean to scare you! :) Just take it easy - don't devour a whol big orange all at once your first time!
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/13/2008 7:28 PM (GMT -6)   
that is a pretty gross story!
when i eat oranges i just spit the fibery stuff out, i dont' like it anyway

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 2/13/2008 7:42 PM (GMT -6)   
Summer,
I do the same thing!

JoAnn --- try mandarin oranges - not the same exactly but much safer!!!
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 2/13/2008 9:25 PM (GMT -6)   
I probably would have freaked out and would have been too afraid to pull it out! Oh well, look at it this way, at least now you know about how long it takes for your food to reach your stoma cool
Theresa

Originally diagnosed with CD in 1991
Only one serious flare up in 1998 and again in July 2007
Total colectomy August 2007 now saying "Undetermined Colitis"
2nd step J-pouch formation -January 2008
Takedown hopefully by April 2008


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/14/2008 10:55 PM (GMT -6)   
ok i solved the orange problem, i ate the most freaking orange in the world today, it was called a minneola and it was SOOOO good, and very juicy, i think you could make a whole glass out of one orange, but it doesn't have much of the fibery stuff at all!

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 2/15/2008 7:18 AM (GMT -6)   
Wow, Joann, what an ordeal! I'm glad you fixed the problem and are feeling better.

Summer, thanks for the tip on the Minneola orange. Being from Florida, we can grow oranges in our yard, so I'm glad to know there's one out there with very little fibery stuff. I'm going to look for them at the store. They must be a Florida orange, because there's a Lake Minneola near Orlando.

I just Googled it and found this write-up about it:

"The Minneola tangelo is a Duncan grapefruit x Dancy tangerine hybrid released in 1931 by the United States Department of Agriculture Horticultural Research Station in Orlando. This tangelo is therefore 1/2 tangerine and 1/2 grapefruit. The fruit is quite handsome and a genuine pleasure to eat."

I love the last line! tongue
Cecilia

Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Pain free, med free, and very thankful to be healthy again :)


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 2/15/2008 11:07 AM (GMT -6)   
Oh, I want to eat a handsome and pleasurable fruit!!! Sounds yummy to me! :)
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 2/15/2008 3:53 PM (GMT -6)   
I can only eat fruit that is pulp free and very soft. My major craving has been canned apricots. I usually do NOT eat anything in a can but these are very, very soft and they move great. As for oranges, I juice oranges and strain the pulp and drink the fresh juice. This is not nearly as satisfying as sucking on a nice sweet orange but it's good.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


donut
Regular Member


Date Joined Jan 2008
Total Posts : 54
   Posted 2/15/2008 6:21 PM (GMT -6)   
OMG..your story about the oranges was so funny! I have had a few people tell me that they could eat anything, but I have not wanted to take any chances. I have been soooo careful because I think I would have passed out if I saw an orange sticking out of my stoma! I had a White Castle hamburger and I was pretty appalled that all the little onions came out exactly the way they went in!(And I thought that I chewed everything like crazy).

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 2/15/2008 7:10 PM (GMT -6)   
Oh man, I forgot all about Minneolas... my folks grew them when they had a home in FL.   Cece, you have to plan a couple of those trees!!!  They are fabulous.  A well hidden secret.  If I remember correctly, they were even good before they were ready to be picked but if you can restrain yourself until they are totally ripe, they are absolutely awesome.  And, I do remember being able to eat them and not have a real problem with them.  We used to juice them for breakfast too when I visited them.  Definitly, an orange (tangelo) that you need to stand over the kitchen sink to eat - the juice just runs down your arm to your elbow!!!   Oh, the memories..... thanks Summer for the trip down memory lane!!

Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/15/2008 8:53 PM (GMT -6)   
i know, it was so juicy! i was eating it inthe living room, and i had to wash my arms off afterwards! i bought some tangelos too, but havent' eaten any of them yet

AngMichelle
Veteran Member


Date Joined Apr 2006
Total Posts : 932
   Posted 2/16/2008 2:52 AM (GMT -6)   
for me it was almondes. I had sooo many hard chucks it was crazy. and hurt.
I even made my mom feel it through my bag....it was funny.
DX-Migraines:PCOS(should have seen this list before!!)
Meds; imitrex inj, stadol ns PRN severe h/a
 ProzAC 40mg, Klonopin 1mg BID , Ambien 10mg
PRN, Pherergan, Actiq 600mcg(fentanyl suckers) for migraine breakthrough pain
 Doing engergy medicine!!!! Psych-K (look it up)
OFF ALL MEDS! AND DOING GREAT. still have h/a's but they aren't ruining my life anymore!
 
May God give you a reason to smile today, an extra reason to laugh, and bring joy to your soul.


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 2/16/2008 7:01 PM (GMT -6)   

I once had a B vitamin come out whole. sad  I found out on here that those of us with ileos can't digest pills that are extended release. I've had my ileo for two years now and have learned more on this site in the last 6 months than I ever knew before. You all are the best!!

:-) Cecilia


Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/17/2008 11:35 AM (GMT -6)   
oh i got the greatest b vitamin thing, it disolves under your tongue and it tastes yummy!

Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 2/17/2008 2:07 PM (GMT -6)   
While on the subject of food...how does everyoen do with popcorn? It is my very snack food. I've had a temporary ileostomy since July 23, 2007. I didn't eat popcorn for several months, but now eat with about 3 times a week.

I've seen big piece of food come through my bag when draining. It's very strange. Sometimes, I've got to really look at it to figure out what it is.

donut
Regular Member


Date Joined Jan 2008
Total Posts : 54
   Posted 2/17/2008 9:54 PM (GMT -6)   
Isn't weird how you look so closely to see if you can identify what food just came into your bag??I can't believe I do that and would have never guessed I could have done that a year ago...I would have been grossed out to even think about it!

Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 2/19/2008 6:23 PM (GMT -6)   
Donut, I didn't quite understand your reply to what I said. No, I don't look at "everything" that comes out of my bag. Sometimes, there may be a big piece of something and I'll look at it to see what the hell it might be. That's all. I don't mean that I put my face in toilet. I think your visualization is a bit off. Believe me...I'm not a gross person and no I don't enjoy viewing things draining out of my bag.

donut
Regular Member


Date Joined Jan 2008
Total Posts : 54
   Posted 2/19/2008 9:39 PM (GMT -6)   
I am sorry if I offended you..I was really talking about myself, not you. I am just saying that I am amazed that I have been able to deal with all of this, being that I have ususally been kind of wimpy about stuff like this in the past. I used to get faint at the sight of blood and pass out when I had shots when I was younger. Now here I am dealing with all of these bodily fluids and with the help of everyone at this forum, I have been able to handle it better than I thought I could at first. I think maybe I was just caught up in the conversation...maybe I will just read and not post comments...sorry again.

Ash83
Regular Member


Date Joined Nov 2007
Total Posts : 128
   Posted 2/19/2008 9:42 PM (GMT -6)   
donut,

Sometimes I forget that it's POO that I'm looking at and trying to figure out what the heck it was that I ate. Quite comical at times! Man, the things we obsess over...

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 2/20/2008 2:09 PM (GMT -6)   

donut,

I understood exactly what you were talking about.  I'm a 23 1/2 year ileostomate and I too check the output, especially if it is not the watery output that I am used to.  Ya just never know what you may learn to steer away from eating if the output isn't what you expect! 

I also was the needle-fearing child, and here I am giving myself B12 injections IM every 2 weeks!  It's amazing how the convenience and cost of doing it yourself when you know it will be the rest of your life outweighs the fear of needles.  I even tell the folks at the lab which vein to use to draw blood!!!

Looking forward to hearing you post soon,

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/20/2008 11:47 PM (GMT -6)   
why are shots of B12 better than just pills?

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 2/21/2008 2:24 PM (GMT -6)   
Shots are only necessary when you don't have the part of the intestine where the B12 is absorbed by the body... that would be me!  So, it wouldn't matter how many B12 pills I swallowed, my body would not be able to absorb any of it.  Now, I probably would be able to absorb a sublingual pill, the ones that you let dissolve under the tongue.  But I am sure of the dose of B12 when I give myself the injection, and it is really critical for me. 

Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 

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