Temp. colostomy after assalt..

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

AngMichelle
Veteran Member


Date Joined Apr 2006
Total Posts : 932
   Posted 2/14/2008 1:01 PM (GMT -6)   
In Jan someone broke into my home, and assaulted me leaving me with injuries to the rectum. I remeber laying in the ER and some doctor simply telling me without emotion I would be having an emergency colostomy. Dealing with this has been just as hard, if not harder, than the event its self.
I should have a reversal in a month or so.

I'm having trouble with my skin with the adhesive.
Do you recommend a two piece rather than once piece bag?

I commend you all, I don't know what I'd do if this was permanant. I guess you just deal with it huh

Thanks, and advice would be great.
Ang
DX-Migraines:PCOS(should have seen this list before!!)
Meds; imitrex inj, stadol ns PRN severe h/a
 ProzAC 40mg, Klonopin 1mg BID , Ambien 10mg
PRN, Pherergan, Actiq 600mcg(fentanyl suckers) for migraine breakthrough pain
 Doing engergy medicine!!!! Psych-K (look it up)
OFF ALL MEDS! AND DOING GREAT. still have h/a's but they aren't ruining my life anymore!
 
May God give you a reason to smile today, an extra reason to laugh, and bring joy to your soul.


donut
Regular Member


Date Joined Jan 2008
Total Posts : 54
   Posted 2/14/2008 1:12 PM (GMT -6)   
Wow..you have been through a horrible experience which must make the ostomy seem like one more assault to your body. You sound like quite a strong person. I, too have a temp ostomy and the months are going by quickly. Once I got the hang of it, it does not seem so bad, even though I have problems with the skin. I use a two piece and have had no problems. My nurse originally used pink tape to give the flange an extra seal, but the tape made my skin bright red and "burnt". i have never had a reaction to anything on my skin before, so it was surprising. I use the Coloplast convex light 2 piece. I have not had any problems and they stick very well for me. Good luck to you..in not too long, it will only be a memory.

Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 2/14/2008 4:15 PM (GMT -6)   
Ang,
My heart goes out to you. No one should ever have to have an experience such what you encountered. My husband is a prosecutor who deals solely with sex crimes. I truly hope the defendant in your case is brought to justice.

As for your question, I perfer a two-pc system. I am allergic to every system out there except for Hollister. My skin was red, rashy, and bleeding. My Dr called me in a perscription of Nystatin powder because my skin developed a yeast infection. You may want to talk to your Dr about this over the phone. I love Hollister for the different bag sizes that they offer. Also, you can attempt irrigating your stoma and then wearing a small cap during the day. Other people who have colostomies have this luxury.

I hope this helps you.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 2/14/2008 6:03 PM (GMT -6)   
Ang,
I just wanted to let you know that if you have any questions, any at all, please don't hesitate to post them here. We are a very compassionate, understanding group of folks. Someone here will be able to either answer your question, or point you in the right direction.

Hang in there! It will soon be behind you. I've had my ileostomy, a little different than a colostomy, for 23 1/2 years now. Yeh, we just learn to deal with it. For a lot of us, having an ostomy means that we are NOT living in excrutiating pain 24/7 and that in itself is a blessing.

Remember, no question is taboo in this forum.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/14/2008 7:43 PM (GMT -6)   
ang im glad u found this site. you are an extremely strong person. I just had my temp ileostomy performed last month and i have not had any skin problems as of yet ( THANK GOD, Hoping i don't). just wanted to say i dont know what i would have done without this site, i'm sure u will find it of great help to you, hope to see you posting soon!
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 
Temp Ileostomy performed 1/29/08
Still Adusting
 
Healingwell.com has been my Godsend...Thank you


ME!
Regular Member


Date Joined Aug 2007
Total Posts : 185
   Posted 2/15/2008 9:43 AM (GMT -6)   
Ang,

I'm so sorry hon (((HUGS))) you are having to go thru this. The experience is bad enough w/out it being under such horrible circumstances.

My home was broken into and I was assaulted. I understand what you're going thru. I hope you have a safe place/environment to stay.

They never caught the guy who did it to me, but I am sure that his life has not been a pleasant one. And his afterlife certainly won't be!

I had my colon removed last Oct. I don't have a bag since they were able to hook everything back up to my rectum. But I understand what you are going thru.

If you need to talk about anything just come here. We are very understanding.

(((HUGS)))
Kim

AngMichelle
Veteran Member


Date Joined Apr 2006
Total Posts : 932
   Posted 2/16/2008 2:47 AM (GMT -6)   
Thanks so much for the replies It helps having someone know at least this part of what I'm going through.
OMG...today I had a BM through my rectum! IT freaked me out. THey said that since my surgery was ER that some old bowl had made its way down. I didn't know what to think. Thank God for the ostomy nurse who calmed my fears.

I have a question. In every picture I see peoples stomas are stcking out from there skin, and small. I have a large round indented hole. Yes its gotton smaller but its more IN my stomach not sticking out AT ALL. its really goes in more than anything. Is this norma? I"m trying a convex bag, but the dumb stoma is right where my fat has a big crease and its hard to get a seal.
oh, and I cannot use the paste. The alcohol burns badly. I found the barrier rings to be very good.
my skins looks like I'm been burt with a big round thing.
Also, if you know, when I get the reversal, what will they do with this massive hole in my abdomen?? I want scar revison. for that and my LifePort scar.
sorry for the rambling.
Hope you all are doing well.
Luvs,
Ang
DX-Migraines:PCOS(should have seen this list before!!)
Meds; imitrex inj, stadol ns PRN severe h/a
 ProzAC 40mg, Klonopin 1mg BID , Ambien 10mg
PRN, Pherergan, Actiq 600mcg(fentanyl suckers) for migraine breakthrough pain
 Doing engergy medicine!!!! Psych-K (look it up)
OFF ALL MEDS! AND DOING GREAT. still have h/a's but they aren't ruining my life anymore!
 
May God give you a reason to smile today, an extra reason to laugh, and bring joy to your soul.


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 2/16/2008 3:21 AM (GMT -6)   
Ang and Kim,
I'm so sorry that happened to you. sad
My heart goes out to you both.
(((HUGS)))
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.

Disease-free, medicine-free, and very thankful to be healthy again :)


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/16/2008 10:09 AM (GMT -6)   
Ang,

yes old bowel will pass thru...and if u still have parts of ur colon remaining u may still continue to get the urge to go thru the back. It will be mucus. Its the mucus that the intestine creates to help food move thru, and as long as we have any parts of it remaining we will still need to expell that mucus. It shouldnt b much coming out tho. It freaked me out too!

Sounds like ur stoma is flush with your skin. I don't have that problem ( at least not at this point) but there are many people on the site who do, hopefully they'll b able to help. Alot of them use eakin seals. I'm not exactly sure what happens to the whole, i've seen pictures of people who've gotten it stitched or stapled up, and also those where u have to pack it until the healing rises to the stomach. Thats a question i will have when it comes time for my reversal as well.

I hope someone answers ur questions better...if not. Repost, with that specific topic. Stay strong!
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 
Temp Ileostomy performed 1/29/08
Still Adusting
 
Healingwell.com has been my Godsend...Thank you


nene205
Regular Member


Date Joined Jun 2007
Total Posts : 302
   Posted 2/16/2008 4:04 PM (GMT -6)   
I recently met a lady who has had her illeostomy reversed. She showed me the spot where her little "illie" used to be and it was just a little half moon scar. Of course, I couldn't help but feel a little bit sad for me because I will never have a reversal. I have a permanent stoma and that's it. However, I try to be as up beat as I can each and every day. This forum helps me a great deal to cope.

donut
Regular Member


Date Joined Jan 2008
Total Posts : 54
   Posted 2/16/2008 4:35 PM (GMT -6)   
AngMichelle...my stoma is just like yours. I see pictures of ones that stick out but mine is like a big indented hole with the stoma inside of it. It is also oblong, not round, so hard to cut the flange to fit at first. I found that using the convex wafer and the eakin seal helps, but because it is so far into my skin, it seeps under and has given me an ulcerated area. The seals have helped a lot, because the nurse has shown me how to put the seal all the way up to the stoma with no skin being exposed. You will figure out what works best for you. It just takes some experimenting.
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, October 18, 2017 3:32 AM (GMT -6)
There are a total of 2,883,562 posts in 316,414 threads.
View Active Threads


Who's Online
This forum has 157532 registered members. Please welcome our newest member, Fishkeeboy23.
291 Guest(s), 4 Registered Member(s) are currently online.  Details
lkasgjkal01, amandasmile, dbwilco, Fishkeeboy23


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer