Looking forward to reversal

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donut
Regular Member


Date Joined Jan 2008
Total Posts : 54
   Posted 2/14/2008 6:27 PM (GMT -6)   
I just heard from my Dr.s office that my last x-ray shows my fistula has closed and so I am going to schedule my reversal for sometime in the next two weeks...a Happy Valentine's Day for me! I am so thrilled,but a little nervous, hoping that when everything starts working again, I don't have another problem. I hate to be a pessimist, but not much has gone right so far...

Ash83
Regular Member


Date Joined Nov 2007
Total Posts : 128
   Posted 2/14/2008 7:10 PM (GMT -6)   
donut,

Woohoo for the fistula closing! I bet you let out a huge sigh of relief when you got the news. The best advice I can give is to educate yourself(which I'm sure you've done) and be prepared for a touch and go recovery. We all heal at our own paces, and although doctors can give us an estimate, they truly can't tell us what we're going to experience and on what timeline.

Let your past experiences give you the strength to pull you through this next surgery. Take it one day at a time and take advantage of the wealth of knowledge and information that fills this forum.

praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/14/2008 7:39 PM (GMT -6)   
Hey donut! I'm glad to hear the news! what a great gift! How long did u have ur fistula? How often did you check to see if it closed? I'm hoping for the same results. Don't be a pessimist, everything will go fine, and if it doesnt, we'll b hear for you to yell and scream about it to lol
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 
Temp Ileostomy performed 1/29/08
Still Adusting
 
Healingwell.com has been my Godsend...Thank you


tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 2/14/2008 10:13 PM (GMT -6)   
Donut,

I'm so happy for you! It'll be over with before you know it and the struggles you have overcome you will look back on and see how strong of a person you are!
Theresa

Originally diagnosed with CD in 1991
Only one serious flare up in 1998 and again in July 2007
Total colectomy August 2007 now saying "Undetermined Colitis"
2nd step J-pouch formation -January 2008
Takedown hopefully by April 2008


needreassurance
New Member


Date Joined Feb 2008
Total Posts : 12
   Posted 2/21/2008 8:27 AM (GMT -6)   

Congratulations on your upcoming reversal, donut.

My husbnad had his takedown 2/1 after 5 month ileostomy.  The dr cut a few inches of (I think) the ileum where his stoma had been, and left the incision wound open.  I was surprised at how large the hole looked to me.  According to dr and nurses, it wasn't big.  But it needed a whole 4X4 to pack it for some time.  The wound is healing very nicely.  It's amazing to me how our bodies heal.  He was in the hospital a week.  At first he couldn't eat anything, actually for about 6 days.  They gave him Reglan to get his peristalsis working again.  He's on a normal diet now and has a good appetite.  But he almost always feels like he has to run to the bathroom, and will have diarrhea.  Most often he can't go at all, or has a little bm.  The dr says it's just his colon readjusting and reminds us the colon was not working for 5 months.  Donut, I hope this isn't too much information.  I agree with someone else who wrote, that once there is healing from the reversal, a person can be grateful to get back to normal.  I wish you God's strength and presence throughout your ordeal.  It'll be worth it in the end.

I wish I'd find someone who has gone through the takedown.  I'm curious how long it takes for the body to adjust, and if some get back to normal digestion etc.  The dr says add fiber.  So my husband takes fiber tablets, and we are once again eating things like whole wheat bread, and will add lettuce and tomato soon.  We had not been eating much fiber when he had his ileostomy.

I think we just need patience and good nutrition.  Thanks for listening. 


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 2/21/2008 8:38 AM (GMT -6)   
Need Reassurance,

You can meet 6000 people who have had the reversal at www.j-pouch.org In fact you might be able to meet some of them face to face if they live in your area. The adaption to a pouch can be trying but it will get better. Expect improvement in 6 week increments. It takes weeks to adjust, not days. If he struggles with certain foods eliminate them and try them again several weeks later. I had a tough time with wheat and vegetables but was able to add them back. Today, by choice, my diet is mostly fresh fruits and vegetables.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


needreassurance
New Member


Date Joined Feb 2008
Total Posts : 12
   Posted 2/21/2008 8:46 AM (GMT -6)   
Thanks, Sue. I have heard the six week increment for improvements. I'm just over eager for things to get back to normla. I'll go to j-pouch for info, but I don't understnad the pouch. Is that for if the colon is totally removed? After 5 months with a stoma, Ken's surgeon cut the area where the stoma had been, cutting off a few inches of the intestine, then simply "relocated" the intestine right through the stoma hole, which he left open for healing. No pouch. I'll educate myself with j- pouch. And if you care to let me know what is a j-pouch. Thanks. (I have to calm down. Ken is doing as well as can be expected. It's been hard to see him go through so much. And that, after almost dying of pulmonaryemboli in July.) Thanks again.
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