In support of Glad Bag's opinion

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nene205
Regular Member


Date Joined Jun 2007
Total Posts : 302
   Posted 2/18/2008 11:26 AM (GMT -6)   
 With the risk of sounding like I have sour grapes, I don't want to have the take-down surgery either. It might have something to do with the fact that my surgeon said he wouldn't consider a j-pouch because I'm over fifty. Since then, I have read about people over 70 having the take-down surgery. Anyway, why would I want to put myself in the position of experiencing pain and misery once again? Plus, having 6 or 7 soft stools a day is what I don't want to experience again!!! Many time over the past 20 years, I experienced embarrassing epidodes of un controllable bowel movements!!!! UC is the pits of hades.Now with my illeostomy, I am in control. Since August1, I have grown accustomed to the ostomy appliances.  With the exception of a little itch now and then, I have not had any serious problems with the Convetec appliances I use. I know everyone is different and I don't want to offend anyone, but to quote Glad Bag-"screw the surgery." Glad Bag rocks tongue .
Jennie

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/18/2008 9:42 PM (GMT -6)   
my thoughts exaclty!  except for the age thing, that is the exact reason i did not want the j-pouch! honestly, i didn't ever want poop to come out my butt ever again! my GI tried to push it on me, and i said, well why would i want to go 4-8 times a day? that's what's wrong with me now!
 

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 2/19/2008 8:18 AM (GMT -6)   
No one surgical choice is perfect for everyone. It takes a lot of research and education to select the best option for YOU and based on your lifestyle. Your family, your doctors, and your friends cannot make this decision for you. The nice thing is that we now have options. Twenty years ago the standard procedure for refractive UC was a permanent ostomy. Today we have more choices; koch pouch, BCIR, and the j-pouch.
There is also no "perfect" surgery. Each option comes with it's own postives and negatives. The only perfect surgery is the one that works perfectly for you.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 2/19/2008 3:13 PM (GMT -6)   
I agree with Sue; however, since none of us chose to have UC, CD or any of the other situations that have given us our ostomies, at least some of us have an option to choose how we'd like to try living life somewhat "normally" again, if indeed living with an ostomy just doesn't work for you. No one can make that decision for those who are eligible, but gaining as much information before making those decisions will allow you to make an informed one. Life is not always peaches and cream as we all know, but we have learned to deal with many things. Does that make any sense?
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


candyland
Regular Member


Date Joined Nov 2007
Total Posts : 98
   Posted 2/19/2008 3:37 PM (GMT -6)   
Peggy - what you say makes a lot of sense. I've been going back and forth with this for months! My surgery included steps 1 and 2 so I already have my j-pouch, but I keep putting off the takedown for fear of going back to "the way it was." Of course, I currently have pneumonia so it's not really an option for a while, but I feel like I should try it when I'm well enough just because.....because it's an option that I should try before I decide if its for me. I know Sue does very well with hers, but I've been to the j-pouch.org forum and I find it very discouraging. Then again, that's just a select few people. As you can see, I'm very up in the air about this decision. sad
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