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RITAS
Regular Member


Date Joined Feb 2006
Total Posts : 140
   Posted 2/21/2008 2:32 PM (GMT -6)   
Hi Everyone,
 
I don't post very much but when I do it about the same complaints!! There has to be another way to shower with an ileostomy.  Is anyone else as disturbed as I am?? Ok so, I tried showering with the bag and then blow dry it after...that didn't go so well, by the end of the day I had a leak so wafer is obviously getting loose from the water.  I refuse to take showers with the ileostomy exposed.  There's just NO WAY!! The bag is really no problem because i use the two piece system.  It's the wafer that I'm worried about.  I ordered 3' water proof tape to try that but I doubt it'll work.  How do I go back to showering daily??? I just don't get it and I can't find a way.  I'm sooooo frustrated with this, please help me pllleeassseeeeee!!!
Rita
Crohn's Free Since April '06
Total colectomy/ileostomy April '06
Reversal July '06
Bowl resection/ileostomy July '07
Currently trying to learn about the "new me"


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 2/21/2008 2:53 PM (GMT -6)   
I have a solution for you!!!!!!!

Hold on, let me find a link!
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 2/21/2008 2:53 PM (GMT -6)   
Rita,

Is the wafer pulling loose around the outside edge or around the stoma?

Someone here on this board (was it Glad Bag?) recommended using Glad Press 'N Seal to protect the wafer from getting wet. I haven't tried it, but I did suggest it to someone here in my town, an older gentlemen who is a new ileostomate, and he emailed me after that and told me that it works for him. Just a thought....

Also, could it be the soap that you use? I'm just trying to think of anything that might be causing the wafer to loosen? Do you use lotions that could be running off your body when you shower causing the wafer to loosen?

I take a shower daily, and in the summer many times more than one a day. I do use a blow dryer after I shower. I have not had any issues with the wafer coming loose around the tape edge. I have had some issues with the wafer coming loose around the stoma and Eakin Seals have worked wonderfully for me and for several others here.

I sure hope you can find something that works for you.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 2/21/2008 2:53 PM (GMT -6)   
Rita,

Is the wafer pulling loose around the outside edge or around the stoma?

Someone here on this board (was it Glad Bag?) recommended using Glad Press 'N Seal to protect the wafer from getting wet. I haven't tried it, but I did suggest it to someone here in my town, an older gentlemen who is a new ileostomate, and he emailed me after that and told me that it works for him. Just a thought....

Also, could it be the soap that you use? I'm just trying to think of anything that might be causing the wafer to loosen? Do you use lotions that could be running off your body when you shower causing the wafer to loosen?

I take a shower daily, and in the summer many times more than one a day. I do use a blow dryer after I shower. I have not had any issues with the wafer coming loose around the tape edge. I have had some issues with the wafer coming loose around the stoma and Eakin Seals have worked wonderfully for me and for several others here.

I sure hope you can find something that works for you.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


RITAS
Regular Member


Date Joined Feb 2006
Total Posts : 140
   Posted 2/21/2008 2:59 PM (GMT -6)   
Peggy,
Thanx for getting back to me so quickly. I guess around the stoma becuase it has to be loose around the stoma in order for the fluid to leak our right? I actually did try the glad press'Nseal but it didn't work for me. I actually was reading posts and came across someone that swims regularly and they recommended using the coloplast assura extended wear wafer. I'm going to call for a sample. Hey, I was wondering about the Eakin seals how do u use those I use the paste and it's been pretty good but always looking for something better. Wow u shower daily with no problem? What products r u using??
Rita
Crohn's Free Since April '06
Total colectomy/ileostomy April '06
Reversal July '06
Bowl resection/ileostomy July '07
Currently trying to learn about the "new me"


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 2/21/2008 3:01 PM (GMT -6)   
Okay - I have two solutions.

#1 http://www.edgepark.com/shopCatalog/ShowItemDetails.cfm?psku=ALRS0110

Those are thin seals to put OVER your wafer. Like a thin clear piece of tegaderm. It's water proof. It helps we two ways - It holds small leaks from under the wafer, AND keeps the wafer dry. I just put one on, and the it stays on until I change bags. These work wonders for swimming!

#2 The Glad press and Seal that peggy mentioned. It sticks to your skin quite well. I still use this for showers, cause I fold up the bag and then cover the wafer and the bag with the press and seal. Then NOTHING gets wet. Super easy.
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


RITAS
Regular Member


Date Joined Feb 2006
Total Posts : 140
   Posted 2/21/2008 3:08 PM (GMT -6)   
sfgiantsjo!!!

Hey, thanx so much. Like I said the pressNseal didn't work for me. I'll try it again though. So the thin seals are placed over the wafer then I would clip the bag on??? Is that how it works? Ok, I'll order a sample.

I wrote u about the spanx suggestion u made in another posting did u get it?
Rita
Crohn's Free Since April '06
Total colectomy/ileostomy April '06
Reversal July '06
Bowl resection/ileostomy July '07
Currently trying to learn about the "new me"


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 2/21/2008 3:13 PM (GMT -6)   

Rita,

I use Convatec SurFit 2 pc, with a Convex ring inserted in the wafer and I use the Eakin Seal in addition to the wafer.  It comes in 2 types:  Eakin Seal wafers, and Eakin Seal strips.  The wafers come in a small size and a large size.  I simply cut strips off of the large size wafers (pretty cheap to do it this way) and apply them to the sticky side of the wafer that you are going to apply to the skin AROUND the stoma opening making sure that it is pressed against the wafer esp around the stoma hole opening.  Make sense?  Made all the difference in the world for my wear time which had dwindled to 3 days.  I'm back up to 7 days easily now!!!!


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 2/21/2008 3:14 PM (GMT -6)   
p.s.
 
There are several people that read this forum that use the Eakin Seals now, and have had a lot of success with them too.
 
 
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 2/21/2008 4:35 PM (GMT -6)   
Yup - You would put the sure seal over the wafer, then snap on the bag. Definitely give them a try. You probably want to fight the battle from two sides. If you're leaking from under the wafer, then you gotta stop that. Then, if the wafer is getting wet, and peeling up, you can solve that with the Sure seals.
I did see your post in the other thread - I answered it there. But, you were saying your output is usually thick, right? I don't know , but two pieces (try as I migth, cause I love 'em) just don't work well for me. The one piece seems better for my thicker output.
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/21/2008 5:17 PM (GMT -6)   
peggy whats the ring? and with the surefit ( i use convatec too, and its time to start finding supplies that work for me) is the two piece like a snap on? has n e one tried the 2 piece adhesives? i was wondering how those work

Also, are different companies products interchangeable with eachother? who makes these sure seals?
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 
Temp Ileostomy performed 1/29/08
Still Adusting
 
Healingwell.com has been my Godsend...Thank you


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 2/21/2008 6:02 PM (GMT -6)   
Ritas,

I bought a large Eakin seal and cit it into small long thin strips. I take one of the strips and roll it like I am making a snake out of clay. Then I line the Eakin all around my wafer to prevent water from getting under my wafer. I put the Eakin strip that I create right under the wafer tape. This helps me a lot. I normally take 2 showers a day. I hope you have some success with this idea and the other ideas presented here.
Amey
 
 
Ileostomy 8/2007
Revised Coletomy/ Reset Anastimosis 2006
Revised Colectomy/ Obstructions 2005
Sub-total Colectomy 2001
 
Prov. 16: 20 Whoso trusteth in the Lord, happy is he.
 
Zelnorm, Colace, Motilium, Citrate of Magnesium, Nexium, Amitiza, Potassium, Magnesium, Miralax, Milk of Magnesium, Corgard, Glycerin Suppositories, Sorbitol, Bentyl, Senokot


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 2/21/2008 6:41 PM (GMT -6)   
Ritas,
 
Here is a really good article/FAQ about Eakin Seals:
 
The only difference between what they recommend and what I do is that I apply the Eakin to the wafer, rather than directly on my skin around the stoma.  Just easier for me. 
 
The Convex Insert snaps into place inside the rim of the wafer where the pouch snaps into place.  The pouch snaps right on top where it usually does.   What this does for me is it makes the stoma actually protrude a little more.  It seems as tho since I have gained a little, and I mean little, weight, my abdomen has changed and so the stoma doesn't seem to protrude quite enough.  With the convex insert, it allows the stoma to stick out when it is "outputting" and not force output under the wafer around the stoma. 
 
OK, now does that make sense?
 
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/21/2008 9:09 PM (GMT -6)   
Peggy,when u say u apply them to the wafer instead of ur skin do u mean the back of the wafer where it sticks to u, or the front where the stoma comes thru?

Amey, u said u place the eakin strip under the wafer tape? is this for everyday use? does it make the appliance stick out further from ur skin? I have some eakin strips from the hospital, but they didnt give me any instructions, they just gave me four little circles.
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 
Temp Ileostomy performed 1/29/08
Still Adusting
 
Healingwell.com has been my Godsend...Thank you


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 2/21/2008 9:27 PM (GMT -6)   
Praying,
 
Yes, you apply them to the sticky side of the wafer & then apply the wafer to the skin as normal; or, if you prefer, you can just apply them directly to the skin around the stoma and then place the wafer right over them.  Please check out this website... good info!  They recommend warming the Eakin between your hands when you apply so that they adhere well. 
 
 
Also the Eakins can be flattened out pretty thin. 
 
Amey... have you read the above article?  They talk about exactly how the makeup of the Eakin actionally works.  Pretty neat reading!
 
 
 
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 2/22/2008 6:00 AM (GMT -6)   
Rita,
I shower every day and and get 7 days wear time using the Coloplast Assura Extended Wear Wafer with an Eakin Seal underneath. I used to use Stomahesive paste, but found out on this forum that Eakin Seals last longer. I gave them a try, and they do. They're much thicker than the paste and prevent leaks from around the stoma. I've never tried the Sure Seals, but they look like a great product, too.

Praying,
A good tip for removing wafers easily is to use adhesive remover wipes.

Hope this helps!
:-) Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 2/22/2008 9:58 AM (GMT -6)   
I also use the two piece Assura Extended Wear Wafer and I order mini-caps (I think they are used for urostomies-they are the size of a coffee cup) and I take off my bag and pop on the mini and take a shower or bath. They can also be used for intimate times and excersise or anytime you want a smaller bag for a short time. I order mine from Edgepark # 622808 (red) or # 622807 (green) Assura Uro Minicap 2 Piece Closed, Opaque Pouch> the colors are for matching the wafer. You can call your supplier and ask if they have anything similar.

I used to use the press and seal, but this is so much easier for me.

Peggy, I now only get about 3 days wear time from my wafers, but have only been using the paste, I think I'm going to try the Eakin seals and see of I can get more. Will it still work if the stoma is flush with the skin?
Theresa

Originally diagnosed with CD in 1991
Only one serious flare up in 1998 and again in July 2007
Total colectomy August 2007 now saying "Undetermined Colitis"
2nd step J-pouch formation -January 2008
Takedown hopefully by April 2008


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 2/22/2008 12:23 PM (GMT -6)   

Tbraz,

If your stoma is flush, have you ever tried a convex wafer?  That is kinda what was happening with my stoma a few months ago.  When I gained a few pounds, my abd contour changed enough to cause problems with my wafer...  or maybe it was just the "grazing" I was doing!!!   I wear Convatec Surfit 2 pc and was able to get a Convex Insert to pop inside the flange of the wafer before I pop on the bag.  It forces the stoma to protrude out from the skin level just enough to help with wear time.   It doesn't hurt and isn't really noticeable for me. 

Using the insert along with the Eakin Seal was how I got my wear time back to 7 days --- and sometimes, I change at 7 just because it falls over the weekend and is easier for me since I do it first thing out of bed in the mornings. 

 The wear time was the biggest issue to resolve and these items worked well for me.

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 2/28/2008 2:53 PM (GMT -6)   
Do the sure seals go on the outside (non-sticky side) of the two-piece before you snap on the bag, right? please clarify, I am gonna have to try one of those...
"I am he as you are he as you are me and we are all together!" - The Beatles

doesn't that just sound cool when you sing it?


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/28/2008 3:34 PM (GMT -6)   
i'm ditto "ing" gladbag
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 
Temp Ileostomy performed 1/29/08
Still Adusting
 
Healingwell.com has been my Godsend...Thank you

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