Nice chatting with you the other night, albeit briefly. Boy, can I identify with you! I was in the ER every other week with dehydration. The more I drank the more I emptied. It seemed that nothing was working for me. I was having IVs put in every week and was taking a liter of fluid a day. I now have a PICC line and I still take a liter a day. I know this is only a temporary solution and I am constantly trying to find ways to stay hydrated. I consult with a nepheologist who helps and I am seeing a new GI doctor tomorrow so I'll see if she has any alternatives and I will share them with you.
Like everything with the ileostomy, it is trial and error. We are all different and respond differently to different therapies. But input from others in the same boat sure does help!
I tried the Immodium route and it blocked me up so bad myu stomach was like a rock for two days, and I'm not even sure I absorbed any extra fluids after all that!
The important thing to remember is that there is an answer somewhere, we just have to find it! Till later,
Also, if I am under a great deal of stress, it shows it ugliness in my gut. Bentyl helps then as well..
I went to a new GI doctor on Friday, she's the new one in my medical group. She had just reviewed my surgical notes from the many procedures I had during my various hospitalizations. She was a little overwhelmed by all of the complications I have been through. We didn't make much headway discussing hydration solutions but she did say they removed my ileo-secal valve (sp?) which might be an issue going forward (ileostomy reversal).
She knows my plan is to try the reversal in May so I don't think she was focusing too much on the hydration issues figuring that the reversal will solve that problem. I have seen a kidney doctor who really helped me to track my hyration and helped me get all of my numbers (creatin etc.) back to normal, mostly by taking the IV of Lactated Ringers. For a while I was getting a blood test every week just to make sure my #s were heading in the right direction.
One of the meds I take for a problem unrelated to the ileostomy is hydrocodone for sciatica. This pain killer tends to slow me down quite a bit. I do take Immodium, but, as I said in an earlier post, I have had some problems (pain & cramping) after taking it. I haven't tried Lomotil, Trydicyclomine or Loperamide.
I think my case is pretty extreme and most of our ostomates who have had hydration problems have resolved them on their own. Hopefully yours will fall into line soon.
I try to regulate my eating and drinking to manage my output but the condition doesn't stop me from living my life. I recently travelled to the Dominican Republic and I have returned to work. Yes, I have to empty a lot (probably 10 times every 24 hours) but I try and plan to not be far from a bathroom and I always empty when I get the opportunity.
I hope you feel better soon let us know how things progress and I'll keep posting on my adventures in hydration. The important thing is to keep plugging away. There's an answer somewhere!
Post Edited (Jazzism) : 3/2/2008 10:49:25 AM (GMT-7)