prednisone taper after surgery

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chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 2/28/2008 9:21 AM (GMT -6)   
I am alittle unclear about recommended prednsione withdraw after my 1st surgery of 3 step procedure.  The perscription that they gave me is confusing and the person that gave it to me really had no clue.  So, I came here on 10mg which I have been on for like 2 weeks.  I have been on prednsione for 1 1/2 years and get to 5mg and start UC symptoms so steriod dependent (reason for having the surgery really).  I am VERY motivated to get off prednsione because that is the whole reason why I did the surgery but I certainly do not want anything to go haywire.  So, how would you all recommend I taper?
Pancolitis - July 2006
Medications:  Predisone - 5mg ,asacol - 12 tablets per day
Supplements:  multi-vit, calcium, folic acid
My wish:  get off prednsione....been on straight since 8/2006


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 2/28/2008 9:45 AM (GMT -6)   
You have been on prednisone a long time so I think it's worth getting the advice from a doctor. If you cannot get your surgeon to weigh in ask your GI. I wouldn't risk this to laymen, pred taper can be dangerous and difficult.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 2/28/2008 9:50 AM (GMT -6)   
Yup, I definitely would get this explained to you by a Doctor. Pred tapers are not fun and very dangerous when done incorrectly. Not something to mess around with, IMHO. :) Hope you can find a doctor to explain it in a way that makes sense!
UC diagnosed: December, 1999
Asacol: 1600 MG daily
Immuran: 150 MG daily
Prednisone: 4 MG daily (Woo-Hooo! Getting lower and lower!)
Remicade: Infusion every 7 weeks
Probiotics 4 billion CFU Daily
Glutamine 500 mg 2x Daily
 
OFF all meds!! Liver failure, and emergency surgery as soon as liver levels return to normal. ACK!
 
Surgery August 24, 2007. Home now!


chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 2/28/2008 10:05 AM (GMT -6)   
Well, the stoma nurse came in and interpertated it: I guess 10mg for 7 days, then 5 for 7 days then 1 for 7 days. I told her that I thought it sounded like a big drop from 5 to 1mg but she said to follow his advice. I would have thought 10mg to 7.5 to 5mg to 2.5 to 0 but I guess I will follow his recommendation. I have been fortunate to not have the side effects of prednsione so my fingers are crossed to get off uneventful. What are some symptoms to look for that are dangerous? Like nausea, vomit or bigger than that?
Pancolitis - July 2006
Medications:  Predisone - 5mg ,asacol - 12 tablets per day
Supplements:  multi-vit, calcium, folic acid
My wish:  get off prednsione....been on straight since 8/2006


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 2/28/2008 4:35 PM (GMT -6)   
Flu-like symptoms are usually common. I remember when I tapered after being on 60 mg/day orally, plus cortenemas and suppositories that I had a horrible time dropping under 5 mg. After many attempts, I ended up actually "shaving" off bit by bit of the pill and finally was successful.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 3/2/2008 12:22 PM (GMT -6)   
I remember being really tired the same day I tapered off prednisone. Since you've had the surgery to remove your colon, you should not experience the UC symptoms anymore, but listen to your doc.
Theresa

Originally diagnosed with CD in 1991
Only one serious flare up in 1998 and again in July 2007
Total colectomy August 2007 now saying "Undetermined Colitis"
2nd step J-pouch formation -January 2008
Takedown hopefully by April 2008

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