Does anyone have a favorite tip for bag survival?

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nene205
Regular Member


Date Joined Jun 2007
Total Posts : 302
   Posted 3/5/2008 10:15 AM (GMT -6)   
 Another day as an ostomate has come, and I'm surviving. I've always been an upbeat, gregarious person ,so there is no need to change now. I am only 6 months into this new way of life and have stumbled across a few tips which may or may not be the easiest way.  For instance, I take a Sharpy and write the date I change the waffer on the tape so I won't forget. I have been reusing the drainable bags by washing them in Dreft (smells good) and letting them dry overnight. However, I don't reuse the bag more than once.I always keep a container of tictacs in my purse for my bag and breath. And if I go anywhere, I have my cute little soft lunch bag with school buses all over it. Inside is a complete ostomate "first aid" kit. I am eager to learn new ways to adapt to living with a stoma. My friends tell me I have a good attitude and that is what I am striving to keep. Ya'll keep the faith!

OhSal
New Member


Date Joined Nov 2007
Total Posts : 6
   Posted 3/5/2008 11:27 AM (GMT -6)   
nene........I'll have my colostomy 5 months tomorrow and am finished with all the draining, cleaning of the bags (have tried em all) and have resorted to using just the Convatec tape flanges and the disposable bags.....sooooooooo much simpler to dispose of and just put on another.......I always thought I'd have to see what was going on and wore the transparent but have learned my stoma has a mind of it's own so I quit all the fussing and worrying and decided to just keep it simple.....makes my emergency kit practically nil! a couple of wipes, a few disposeables and I'm off to the races! Ohhh..and I change my flange every 4-5 days for good measure........these disposables sure work for me.

nene205
Regular Member


Date Joined Jun 2007
Total Posts : 302
   Posted 3/5/2008 6:47 PM (GMT -6)   
Good idea. I have an illeostomy which drains alot. I do have some closed bags that were sent to me by mistake and I just kept them. Is that what you use? Don't think I can afford to use them all the time though. I'm with you when it comes to transparent bags. I just don't want to see what's going on!!! Glad to hear that you are doing well at 5 months.

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 3/5/2008 10:23 PM (GMT -6)   
Those are great tips! Here are a few of my own:

1. I like to cut the hole in the new wafer before I take the old one off. That way, I'm ready to put it on quickly if my little friend decides to become active.

2. Using adhesive remover wipes makes the wafer slide right off.

3. Shaving the little hairs on my belly around my stoma makes wafer removal much less painful.

4. Mouthwash makes a great deodorizer.

5. Eakin Seals last a lot longer than Stomahesive paste.

:-) Cece
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1243
   Posted 3/6/2008 6:16 AM (GMT -6)   
If it itches, change it!
 
3% hydrogen peroxide (no stronger than 3%) is great for eliminating odours. A few drops in your bag and next time there should be no odour.


I have had an ileostomy for 32 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


OhSal
New Member


Date Joined Nov 2007
Total Posts : 6
   Posted 3/6/2008 8:41 AM (GMT -6)   
nene205 said...
Good idea. I have an illeostomy which drains alot. I do have some closed bags that were sent to me by mistake and I just kept them. Is that what you use? Don't think I can afford to use them all the time though. I'm with you when it comes to transparent bags. I just don't want to see what's going on!!! Glad to hear that you are doing well at 5 months.
Good morning!nene.......I don't know that much about illeostomies but I understand they're more of a nuisance than colostomies and am not sure if a closed disposable would be the right pouch for you depending on the frequency and amount of your output......I've had a couple of days where I had to change twice in one morning, but wore the 2nd. bag until the next morning......I buy them 60 in a box (have some insurance) but I also keep some reg. ones on hand for my Dr/Surgeon appointments......
 
You sound like you're doing good with your, ille, too.....thank you! This is my 2nd. colostomy in 20 yrs and you'd think I'd know the ropes but times sure have changed.......duhhhhh
 
 

nene205
Regular Member


Date Joined Jun 2007
Total Posts : 302
   Posted 3/6/2008 9:45 AM (GMT -6)   
Does anyone use bags with mold able openings on the waffer? I have been trying this type with ConveTec. I like the idea about using a closed bag during the day. Think I could manage that. Also, to change the subject. Doctors have now noticed(according to yesterday's paper) flat pancake type growths inside the colon during colonoscopies. These growths could be even more dangerous, they say, than the larger polys. My doctor must be ahead of his time because that is what alerted the need for my colectomy! Just interesting.
Jennie

praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 3/6/2008 10:32 AM (GMT -6)   
ne ne! im so glad u asked about the moldables, i was just going to post on those, im ordering supplies today and was wondering if n e one used them and how they worked. I was going to try those, they seem like much less of a hassle. I dont like the cutting to fit part, and i hear theyr good for preventing leaks. how have they worked for u?
 
Also, sorry to hear about the polyps, but mayb its good they caught them in time! good luck w/those


25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 
Temp Ileostomy performed 1/29/08
Still Adusting
 
Healingwell.com has been my Godsend...Thank you


nene205
Regular Member


Date Joined Jun 2007
Total Posts : 302
   Posted 3/6/2008 10:33 AM (GMT -6)   
Another thing. Ya'll have given me a great idea . When I'm off shopping out of town ,etc., I'm going to carry a spray bottle of peroxide in my emergency bag. When I have to change bag in a public bathroom, I'll spray peroxide in the sandwich bag, pop the used bag inside the sandwich bag and place the whole thing inside the box for used sanitary napkins. Thanks. Keep the good ideas coming.
Jennie

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 3/6/2008 5:30 PM (GMT -6)   
A lot of folks really like the moldable wafers since there is no cutting involved. I guess I'm still old school (or just plain Cheap!), but I have stuck with my Convatec Surfit 2 pc since my surgery A Long Time Ago. I just added the Eakin Seals instead of the Stomahesive Paste. Wear time is at about 7 days. Eakins have eliminated my leaks.... knock on wood!!!

Like Shaz said, if it itches, change it! Now if I have a trip away from home planned for a week, or long weekend, I try to "time" my change so that I won't have to do it while I'm away. Otherwise, I've been changing on Sat or Sun mornings.

I also like to get everything ready to go for the change before starting it. Sometimes, I do that before I go to bed the night before so that I can "take care of business" right out of bed in the morning before my buddy becomes active (and before I drink or eat anything).

I love hearing how well all of you are adjusting and trying new products. I love to hear your critiques of the products too. Keep up the good work and do keep your positive attitudes.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Indabag
Regular Member


Date Joined Aug 2007
Total Posts : 254
   Posted 3/6/2008 5:31 PM (GMT -6)   
Peggy:

Where's Amey?

Richard
Indabag
 
Ileostomy since August 2005.
As result of surgery (modified whipple) for necrotising pancreatitis. Removal of gallbladder, 2/3 of pancreas, resections of large and small intestines. Massive infection. 8 months in ICU at Westchester County M.C. (I think that's a record). Second surgery for resection due to fistulas in January 2007. Been slowly recovering since then. Possible reconnection candidate.


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 3/6/2008 5:55 PM (GMT -6)   

Richard,

I was thinking about the very same thing.. I wonder what she's up to?  Maybe I will send her an email to check on her and let her know that we are thinking of her.  I'll let ya know if I get a response.

How have you been with working way too much and all?!

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 3/6/2008 5:58 PM (GMT -6)   
Richard,
 
I sent the email just now --- will keep you posted.
 
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 3/6/2008 7:03 PM (GMT -6)   
I've been wondering where Amy is, too. I hope she's doing okay. I miss her!
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


Clo Bo
New Member


Date Joined Mar 2008
Total Posts : 5
   Posted 3/10/2008 11:57 PM (GMT -6)   

Hay guys,

I find if you use baby nappie bags that are allready deoderised to put the used ones in when changing  that covers the smell and air freshner helps too. Also i have found if you feel your stoma over you cloths and bag and it feels like it is too large or too small - it means it has leaked !!  hope this helps !!


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 3/11/2008 8:16 AM (GMT -6)   
*still wondering where amey's been*

o, one tip that has helped me. i used to be really anal about cleaning the tail of my bag, id sit for like 20 mins trying to clean it w/anti bacterial wipes and tissue and so on. Now, when i empty, i cuff the tail of my bag back as far as i can. That way it doesnt get dirty, and therefore i dont have to spend time trying to clean it. Thats wonderful for me!
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting
 Healingwell.com has been my Godsend...Thank you


Scrappyjrt
Regular Member


Date Joined Jul 2006
Total Posts : 212
   Posted 3/11/2008 11:40 AM (GMT -6)   
Moldable wafers and disposible pouches work great for me.

  1. Colostomy May07
  2. Rectum removal and hernia repair Oct 07

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