FEELING BETTER................

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lipgloss
Regular Member


Date Joined Jan 2008
Total Posts : 70
   Posted 3/7/2008 9:33 AM (GMT -6)   
Hi every one tanku all for ur welcome messages. i'm feeling better and it's been 5 weeks since my second surgery. i'm able to walk about the house and make stuff to eat. i hav alot of help from family as u know. My sista Elisha has gone to Pkistan for a holiday and shes loving it. we hav a family wedding there and all my family has gone. my mom has cancelled cos she wanted to be here with me, i'm glad i was at home when everyone went this way they know i'm at home. i still have the fone calls asking if i'm really o.k.
i also have one of my sisters here to help she is Elisha's twin.
 
u all must know wat i went thru, if i went thru the details it would take ages. but all i can say is God gave me a second chance. the night of my second surgery wen they had to take the infectin out, they called my husband, sista and brother and said that they were keepin me asleep for 24hrs and if she wakes up then thats good but there is a chance i would die.
my husband told me that he couldn't speak, it was like something had hit him.
 
but all is well, still got fluid on my right lung, so i get breathless but at least i'm home with the kids.
my husband is off to pakistan with my two older children as it's his brothers wedding.
 
the surgeon foned today an said i could fly out and as much as i would love to, i can't risk anything.
 
as u know i also have a weird stoma the surgeon said cos they couldn't pull any more of my small bowl out, it used to leak all the time, and know i have found a bag that stays for 2-3 days, even though i'm sore i'm grateful that it dosen't leak.
sorry got to go my daughters callin.
 
p.s praying how r u doing , i'm so glad ur surgery went well.
 
luv u all
 
take care
 
 
 

Indabag
Regular Member


Date Joined Aug 2007
Total Posts : 254
   Posted 3/7/2008 12:30 PM (GMT -6)   
Dear Lipgloss:

Wow! This is great news! You had a real close call and it's great that you are back home with your kids. I get so much encouragement from your courage & perseverance. God bless you and I hope your recovery continues and you get back your strength.

Richard
Indabag
 
Ileostomy since August 2005.
As result of surgery (modified whipple) for necrotising pancreatitis. Removal of gallbladder, 2/3 of pancreas, resections of large and small intestines. Massive infection. 


lipgloss
Regular Member


Date Joined Jan 2008
Total Posts : 70
   Posted 3/7/2008 1:41 PM (GMT -6)   
Hi Richard, tanx for ur compliment, can u please tell me wat ur suffering with and wats happening at the moment, i've probably read about it but forgotten.

and u know wat we are all here for each other, wen i read about other people and wat pain and agony they go thru i feel for them and feel my suffering is nothing.

one night in hospital i cryed so much that i could'nt speak. my bag kept leakin an the nurses on the ward didn't really hav much idea about my stoma, so i decided to change my bag my self as the skin around it was bleedin and i was not going to let the nurses scrub it cos it killed and they were not feeling the pain. the next day i told myself i should stop feelin sorry for myself and get on with it.
anyway that day a lady came in lookin weak, she looked about 16 but was alot older, she had crohns and had 19 operation and now she had a fisctula( hope i spelled it right) but it leaked so much that it burned her skin, i would wake up at night and she would be crying and i would cry for her and pray for her.

the point here is that there is always someone worse off than me, so i kept going, i keep intouch with her abnd shes still the same.

sorry to bore u.

but whoevers reading don't be put off surgery cos it does'nt happen to everyone.

luv u all.

take care

samiexxx

chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 3/7/2008 2:28 PM (GMT -6)   
Wow. Sounds like you have really had a life changing experience. It is pretty amazing how our own sickness really opens our eyes to see so many others that suffer more. I feel like I see so many sick people now..............perhaps because I am getting older but it does seem kinda odd that I see many more people that struggle with their health. I am glad that you are home and better now.
Pancolitis - July 2006
Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months
Medications:  Predisone - 5mg (and tapering to zero)
Supplements:  multi-vit, calcium
Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 3/7/2008 7:15 PM (GMT -6)   
lipgloss i'im soooo glad ur home and feeling better!!! i've been praying for you constantly. I'm ok, im adjusting, getting ready to go back to work in like 2 weeks. That will be an adjustment in itself.

What bag are u using? u mentioned an unusual stoma that doesnt protrude much, from what i've heard the convatec moldable technology is best for these types of stomas and you dont have to cut them to fit. the swell around ur stoma and bring it out alittle more, preventing leaks. I ordered my first batch yesterday.

Please keep us posted! I'm glad u and ur family are doing well!
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 
Temp Ileostomy performed 1/29/08
Still Adusting
 
Healingwell.com has been my Godsend...Thank you

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