dehydratoin picc line

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Feb 2008
Total Posts : 115
   Posted 3/9/2008 7:19 PM (GMT -6)   
Was at the hospital today for IVs for dehydration.I have to go two or three times a week, because of hight ileostomy output. I might have to have a PICC line put in.
This has been going on for a month and im getting scard.
I have tried so many things that I don't know what else to do.

Regular Member

Date Joined Jan 2007
Total Posts : 300
   Posted 3/9/2008 7:24 PM (GMT -6)   
How long have you had your ilestomy? I hope you start feeling better. Dehydration can be tough. I am new with the ilestomy but have you tried the SCD electrolyte drink that you can make? I use to get really dehydrated with UC because of "D" so I would make that drink and it really helped me.
Pancolitis - July 2006
Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months
Medications:  Predisone - 5mg (and tapering to zero)
Supplements:  multi-vit, calcium
Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.

Regular Member

Date Joined Feb 2008
Total Posts : 115
   Posted 3/9/2008 9:57 PM (GMT -6)   
I have had my ileostomy for ten weeks and it is perm. I really don,t know what to do. I'm so tired all the time and spend alot of time at the hospital getting IVs dehydration. Hope you have better luck than I do.

I had a PPIC line for over two weeks when I was in the hospital in Dec.07 and hate to think of haveing another one. It took one and a half hours just to put it in.

The ileostomy saved my life for now, as I had small bowl blockage from scar tissue. I have had alot of sergery in the past six months that shouldn't have turned out like this.

Thanks, Jan,

Regular Member

Date Joined Aug 2007
Total Posts : 254
   Posted 3/10/2008 12:02 PM (GMT -6)   

Hi Jan:

As you know from previous posts I have a PICC line that I use just for hydration purposes.(one liter a day). I have had 3 lines over the past 9 months. It's easier to put in a replacement PICC line than the original line. Prior to this I was getting an angiocath each week in order to get the fluids. My arms got totally scarred up and are still healing from all the "sticks". Prior to the angiocaths I was in the ER every other week with severe dehydration.

My thinking was to treat the symptoms, dehydration, and then try and treat the cause. I have felt much, much better since I have been adequately hydrated. I have returned to work, I have travelled to the islands and I have felt much stronger overall.

I know the PICC line is not a permanent solution but I believe it is buying me time to try and find the ultimate answer. It sure beats feeling terrible and going to the ER.

I have other issues than most, I have had 2/3 of my pancreas removed, etc. and I have never suffered from UC or Crohns, but I think all of us ostomates have had difficulties, in varying degrees, with dehydration.

I am looking into the Sandostatin shot and other alternatives and I will keep you posted. I hope you feel better soon.




Regular Member

Date Joined Feb 2008
Total Posts : 115
   Posted 3/10/2008 1:19 PM (GMT -6)   
Rihard do you do your IVs at home? Who takes care of the pick line? I think that is what I will end up with.

I have been going to the er two times a week for IVs and they are having a hard time finding a vane to put the needle in. I'm so tired of all af this.

This been going on so long that I don't think I will ever get better. It has been so hard on Bob. He has been great threw all of this.

I did not suffer from uc or chrons either. I will e-mail and tell you my story.

Thanks Jan,

Regular Member

Date Joined Feb 2006
Total Posts : 140
   Posted 3/10/2008 5:26 PM (GMT -6)   
I'm so sorry to hear of all the trouble ur going through.  I'm know it's frustrating.  I was in your shoes not to long ago.  I had a picc line for 4 months and how it worked was I had a nurse come once a week to change the dressing and everynight I was on a 12 hour TPN (nutrition).  I was also really dehydrated and I pushed myself to drink lots and lots of water.  My output is very high so it's very hard for me to keep hydrated.  I have been picc free for almost 4 months now and feel great.  I was told to increase the salt on my food because salt makes u thirsty where ur forced to drink a lot.  Also I take zone protein bars 3 times a day and one carton of muscle milk a day for protein purposes. I currently drink about 8-10 bottles of water a day not including sodas, tea, coffe..etc.  I truely wish u luck and hope everything works out.  I know it's a struggle but we have to push ourselves to not let it take control of us.
Let us know how things work out
Crohn's Free Since April '06
Total colectomy/ileostomy April '06
Reversal July '06
Bowl resection/ileostomy July '07
Currently trying to learn about the "new me"

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, October 20, 2017 9:08 PM (GMT -6)
There are a total of 2,885,048 posts in 316,547 threads.
View Active Threads

Who's Online
This forum has 157650 registered members. Please welcome our newest member, seffesjfse1.
352 Guest(s), 11 Registered Member(s) are currently online.  Details
DBwithUC, oldbeek, Mr.Scott, Lapis_29, mattamx, The Dude Abides, Jaybee&GG, dar2017, Joyful Noise, NKinney, mcloud

Follow on Facebook  Follow on Twitter  Follow on Pinterest

©1996-2017 LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer