New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 3/14/2008 9:39 AM (GMT -6)   
I took a shower w/out my bag! id like to thank they ostomy acadamy! thank you all for your encouragement and support! yeah


25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting
 Healingwell.com has been my Godsend...Thank you


RITAS
Regular Member


Date Joined Feb 2006
Total Posts : 140
   Posted 3/14/2008 10:02 AM (GMT -6)   
that's awesome!!!!!!!!!!!!! good for u!!!!!! now go ahead tell me exactly step by step what u did, hopefully i'll build up enough courage to do it too
Rita
Crohn's Free Since April '06
Total colectomy/ileostomy April '06
Reversal July '06
Bowl resection/ileostomy July '07
Currently trying to learn about the "new me"


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 3/14/2008 4:22 PM (GMT -6)   
i did everything they told me, i waited about a half hour after i woke up. Then i emptied the little that was in my bag, set up my stuff for the change, but i didnt take my bag off until i was ready to jump in the shower. Suprisingly, as active as my lil gal' is , she gave me time to take a shower, i did a thorough cleaning around the stoma, shaved, got out, and tried the new flange (moldable, i think it may b too big) , and put the bag on! no output! i was so proud of me! and i felt so much better!!

If i can do it rita, i'm absolutely sure u can
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting
 Healingwell.com has been my Godsend...Thank you


tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 3/14/2008 5:43 PM (GMT -6)   
Didn't it feel great having the water flow on your skin and to be able to soap it up and rub it and rub it and rub it!!!! :-)

You can also eat a couple of small marshmallows before hand to keep your "lil gal" quiet if you worry about output.

I wouldn't change my appliance any other way!
Theresa

Originally diagnosed with CD in 1991
Only one serious flare up in 1998 and again in July 2007
Total colectomy August 2007 now saying "Undetermined Colitis"
2nd step J-pouch formation -January 2008
Takedown hopefully by April 2008


RITAS
Regular Member


Date Joined Feb 2006
Total Posts : 140
   Posted 3/15/2008 4:08 PM (GMT -6)   
Praying,
Do u change the bag urself?? I usually have my husband help me. I've never done it byself. There's just to much going on and I change it lying down. Ethel (as I like to refer to her) is very active. It's to scary for me to take a shower without the bag. I'm so proud of u and very envious that u can do it alone. Hope u continue to enjoy ur showers appliance freeeeeee
Rita
Crohn's Free Since April '06
Total colectomy/ileostomy April '06
Reversal July '06
Bowl resection/ileostomy July '07
Currently trying to learn about the "new me"


Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 3/15/2008 5:09 PM (GMT -6)   
about every 3 to 4 days I take my pouch off and really clean the area. I take my showers off at night right after or within an hour after dinner. Since I've eaten lunch before 2 p.m., my flow is normally done come dinner time. They I have 1 to 2 hours to take a shower and get cleaned up. I like to eat two large marshmallows about 1/2 hour before I shower. This guarantees I will at least have a very thick output if there is any at all.

Rita, I've had my loop ileostomy for 9 months now. I understand your fear of changing your ostomy on your own, but you can do it. Just make sure you are completely prepared. Here's my preparation:

1st, I lay out all your stuff out on the bathroom counter (i.e., blow dryer, pouch, barrier, toilet paper, paper towels, skin barrier prep, paste, etc.)
2nd, I put a folded towel or mat on the floor to give me height so my stoma is over the sink ledge. If I it runs, it goes in the sink or on a paper towel, or I'm usually able to catch it on a piece of toilet paper. I'm short (5' 3"), so I like the added height.
3rd, I put my towel over the shower rail, so I don't have to step out of the bathtub when I'm through. I have a process so I can easily dry my body and anything that comes out goes into the bathtub.
4th step, I then put my washcloth and any other stuff I need in the shower.
5th, put a wastebasket near the bathtub. I also have one near the bathroom sink.
6th, I put a piece of toilet paper or gauze near the bathtub, so that when I'm ready to get out, I put it over my stoma to catch anything.
7th, When I'm dried off, I proceed to the sink and start the process.

Once the appliance is on, I clean up and thoroughly sanitize/disinfect the bathtub, sink and floor if necessary. I collect the trash and put it in the garbage can in the garage.

Pretty simple! You can do it and you're husband will be proud of you. I used to have a lot of anxiety about doing my changes. I'd worry and think about it all day. I still get anxious, but I stay come and remind myself that it's part of my life.

Something funny...my 21 year old son tells me I should embrace this. Oh my! : )

praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 3/15/2008 8:31 PM (GMT -6)   
ritas, ohio is right, when i first got my ostomy, i needed my mom to help me ( i also had a catheter in, which made the process a little more tedious), but im rather impatient. So i got tired of having to wait for her. once the catheter was out i decided it to try it on my own. i just asked my mom to sit next to me in case i needed help. i remember feeling like i needed 10 hands! but i got it, i did it on my own, the first couple of times with her next to me, then her just in the room, then her within screaming distance lol, now i do it whenever i need to, i just took baby steps, just try it a little at a time
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting
 Healingwell.com has been my Godsend...Thank you


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1246
   Posted 3/15/2008 8:38 PM (GMT -6)   

Well done Praying, it does feel good to have a shower totally naked doesn't it? lol

Ritas, I would strongly encourage you to try it on your own - in baby steps as those above have described. You've no idea the sense of achievement you'll feel once you've done it by yourself the first time :) After the first time, it does get easier :)

It will give you a feeling of independence and you will realise that you CAN do it esp if hubby isn't around when your bag needs changing. Just have everything cut and laid out before hand so you're not trying to stop your stoma from spurting everywhere while getting everything ready.

Good luck :)


I have had an ileostomy for 32 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/15/2008 9:18 PM (GMT -6)   
i had Dh it for me for a long time too, i also could not figure out how one person coudl do it alone. But here is how i change, i put my stuff out, lay the flange and bag, and two pieces of towel, and a mat on the floor, I take the old one off, standing up, with it hanging into a bag, that way if stuff runs out, it goes in that bag, i clean everyhing. I clean it all up and dry it off. THen i cover the stoma with a piece of towel, and lay down.
After that, i put a piece of towle, and the flange on my stomach, i quickly lift the towel that is on me, put the flange on, with my right hand, and have the towel in my left hand to cover it up. Then i can get it attached really well, then i put the bag on.
Here is a good way to practice.
Get a toilet paper roll, cut it about an inch high. Get a piece of cardboard and cut a hole in it, a little bigger than the toilet paper roll. Then you can practice getting the toilet paper roll uncovered iwth the towel and the cardboard on and recovered, with a clean towel, without making a mess.

praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 3/16/2008 10:19 AM (GMT -6)   
thats a good idea summer! i've never heard of that before. Am i the only one who changes my bag sitting down? is this a not so great idea?
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting
 Healingwell.com has been my Godsend...Thank you


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 3/16/2008 11:01 AM (GMT -6)   
I stand at the bathroom sink/vanity to change mine.  It seems to me that the more you can stretch the abdominal area to apply the  wafer, the better my seal.   Just my opinion.

Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/16/2008 5:32 PM (GMT -6)   
thank you prayingforhealing, i wish i had thought of it before i started doing the changes by myself, lol. But it does help me get faster at it.
i have never heard of putting it on sitting down, like indian style? or with your legs spread out?

praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 3/16/2008 5:39 PM (GMT -6)   
i do mine on the edge of my bed, i guess because the first time i got it changed i was sitting on my hospital bed. So i sit on the edge of my bed and lay everything out on a fold out table. i put paper towels in my pants or panties and let it hang out just in case my gal starts acting up. i'm like ash, n e where else it just seems there isnt enough room...papertowels fall of the bathroom sink, i get scared i'll drop something in the toilet lol etc.
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting
 Healingwell.com has been my Godsend...Thank you


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/16/2008 7:16 PM (GMT -6)   
ok well that makes more sense, i thought ya'll were sitting on the floor

chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 3/16/2008 9:41 PM (GMT -6)   
Praying
Didn't you love taking a shower without the bag? I wish I could take it off every day. Typically, I have always being a "quickie" in the shower but the days that I get to take a shower without the bag..................I could stay in the shower forever.
Pancolitis - July 2006
Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months
Medications:  Predisone - 5mg (and tapering to zero)
Supplements:  multi-vit, calcium
Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1246
   Posted 3/17/2008 7:03 AM (GMT -6)   
I usually change mine while standing up - gravity then takes over so the sagging tummy flattens out a bit so I get a (more or less) flat surface to adhere the wafer to.
I have had an ileostomy for 32 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


Ohio43
Regular Member


Date Joined Aug 2007
Total Posts : 212
   Posted 3/17/2008 8:57 PM (GMT -6)   
I remember when I had to change mine in a movie theatre bathroom. I was watching the movie when I felt myself get all wet and knew it wasn't good. I was surprised with how calm I was. I make sure I take plenty of supplies and an extra pair of underwear with me wherever I go! I especially try to always get in a handicap bathroom so I can lay clothes on the rails if I have to take something off. The rails are also handy for holding my water bottle to clean out the pouch.
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, October 19, 2017 10:16 AM (GMT -6)
There are a total of 2,884,182 posts in 316,465 threads.
View Active Threads


Who's Online
This forum has 157595 registered members. Please welcome our newest member, mystifyingyouth.
399 Guest(s), 15 Registered Member(s) are currently online.  Details
john wright, Michelejc, John_TX, lynzi2004, aphysicalwreck, RedLabel, Casa11, tickbite666, mystifyingyouth, Tick41, Sherrine, Saipan Paradise, lovefishing, Tim Tam, straydog


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer