It's good to be home

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flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 3/26/2008 12:14 PM (GMT -6)   
Hi everyone,
Thank you so much for your thoughts and prayers while I was in the hospital, and a big thank you to Peggy for keeping you all updated on how I was doing.
 
I went into the hospital on March 12th with a small bowel obstruction caused by adhesions from my proctocolectomy surgery in October 2006. The doctors were hoping it was a partial blockage and that we could avoid surgery, but it turned out to be a full blockage and I had to have surgery on March 19th. The scar tissue had wrapped itself around my small intestine so tightly that the surgeon had to remove an inch of it and reconnect it.
 
I couldn't eat or drink for 10 days and was hydrated solely by IV fluids and given nutrients through TPN. I also had to have an NG tube in to keep me from throwing up. It was not a pleasant experience, to say the least. I was discharged on Easter Sunday and have been catching up on some much needed rest since I got home. I have a 7" incision in my abdomen, so it hurts every time I get up and move around.
 
Thanks again for all of your thoughts and prayers. I hope you all have been doing well, and I look forward to catching up.
 
Love,
Cece
 

justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 3/26/2008 12:48 PM (GMT -6)   
What an ordeal!! Glad to hear you are home!! One can never 'rest' too much in a hospital.

Jan625
Regular Member


Date Joined Feb 2008
Total Posts : 115
   Posted 3/26/2008 3:03 PM (GMT -6)   
Cece.
I,m so glad that you are home where you can get the rest you need to heal. You have been in my prays and my thoughts everday.

The same thing happened to me in Dec.07. I was in the hospital with a small intestine blockage do to abhesions and had sergery the 29th og Dec. and came home Jan.8. Was in for a week before that trying to get it unblocked. Was on the same things you were on.

Just take care and get alot of rest. Will be thinking of you.
Jan,

praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 3/26/2008 3:59 PM (GMT -6)   
I'm so glad ur home! now get some rest! u deserve it....feel better soon
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting
 Healingwell.com has been my Godsend...Thank you


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 3/26/2008 4:21 PM (GMT -6)   

CeCe!

We missed you around here. It was so nice to have Peggy keeping us updated. I'm so glad you're doing better. That's good news!

 

Joann 


If at first you do not succeed, then skydiving is surely not meant for you.
 
Jo - UC, total colectomy,ileosotmy on August 24, 2008.


Indabag
Regular Member


Date Joined Aug 2007
Total Posts : 254
   Posted 3/26/2008 4:43 PM (GMT -6)   
Hi Cecelia!!!!

It is so great to have you back! I am sorry you had to go through all of that but I am so glad you are ok. I think I hear a collective sigh of relief from everyone on the forum. God Bless You!

Richard
Indabag
 
Ileostomy since August 2005.
As result of surgery (modified whipple) for necrotising pancreatitis. Removal of gallbladder, 2/3 of pancreas, resections of large and small intestines. Massive infection. 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 3/26/2008 5:24 PM (GMT -6)   
Isn't it good to have Cecilia back?!!! Whoooo Hooooo!!

Cece, be sure to get lots of rest. Good luck at your follow up appt tomorrow morning. You'll feel much better after you get those staples out and you'll be able to move about a little easier. Remember, move s-l-o-w-l-y!! Take care of yourself. Keep drinking....

So good to have you back.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


StomaGrrrl
Regular Member


Date Joined Oct 2007
Total Posts : 55
   Posted 3/26/2008 6:33 PM (GMT -6)   
hi Cecilia,

so glad you're out of the hospital! rest well and know our prayers are with you.

camille
diagnosed Endometriosis 2001
first surgery 2003 - lesions found in rectum
7 major procedures in 2007 including 10-hour endometriosis dissection, ileostomy, RV fistula closure, ilestomy takedown, colostomy
No longer taking testosterone, codeine, vicodin, xanax, or receiving acupuncture 2-3 times a week
Loving life and re-entering "the world"
still taking the occasional valium :)
Back at work and enjoying "perspective" on life...


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 3/26/2008 7:15 PM (GMT -6)   
Thanks so much for the warm welcome back! I missed you all and it brought tears to my eyes when Peggy read all of your posts to me over the phone while I was in the hospital.
 
Jan,
I'm sorry you had to go through this, too. Did yours happen suddenly like mine? I was feeling great on Monday and then on Tuesday had abdominal pain that kept getting worse. By Tuesday night, I was throwing up and was admitted to the hospital Wednesday morning. I also had no output into my bag.
 
If any of you ever experience these symptoms, please call your gastroenterologist and go to the hospital right away. It's definitely not something you want to "wait and see" on.

Carlow
Regular Member


Date Joined Sep 2007
Total Posts : 113
   Posted 3/26/2008 7:39 PM (GMT -6)   
Cecilia,

I'm glad to hear you're back! I was released last monday after suffering an agonizing portal vein clot and pelvic abscess that sent me to the ER two weeks prior, ambulance and all. Like you, I waited till the pain was intolerable before doing anything (not smart). I have two j/p drains and they keep me up night and day but its much better than being in the hospital. I hope you get more rest and peace at home!
Diagnosed Fall of 2004
(Scheduled for Stage 1 of IPAA in late February:Complete!)

Meds:
Prednisone (7.5mg taper)
Lovenox (60mg 2xday)
Coumadin (6mg)
Percoset (325mg) almost out!


ME!
Regular Member


Date Joined Aug 2007
Total Posts : 185
   Posted 3/26/2008 8:46 PM (GMT -6)   
Welcome home Cece ((HUGS))

The stories I read about the complications some of you have had are actually inspiring to me. I had my colon removed Oct 07 and was healed up and doing great. But then my blood count dropped and I had to be put back in the hospital and given 3 units of blood. The doctor says I'm bleeding internally somewhere. They are going to check my stomach but most likely it is from my surgery and maybe leaking into my abdomen. If that's the case they would have to go back in and open me up.

I don't think I can go through that again. Your stories make me think I should have the courage to let them operate again if they need to. I'm kinda numb right now. My DH was admitted to the hospital yesterday and found out he has blood clots in both his lungs.

So it's kind of hard to concentrate. But I wanted you all to know your courage is inspiring.

Cece - I hope you heal quickly and get the peace and rest you need. ((HUGS))

Kim
Control is an illusion. The only control we have is our response to people and situations. - Kim Martin


ConsideringABag
Regular Member


Date Joined Aug 2007
Total Posts : 65
   Posted 3/27/2008 5:42 PM (GMT -6)   
Hi Cecilia,

I know I don't really know you, but I read many of your posts--you have a great sense of humor!! :)

Glad to know that you are feeling better, and I hope you heal up quickly!

Erin

tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 3/27/2008 6:54 PM (GMT -6)   
Cecilia,
Glad that you are home after a long stint in the hospital, praying for you that all continues to go well for you and you heal quickly. Peggy showed that this forum does care for all the members by keeping us posted on your situation. I feel this place has become an extended family without "clicks" where you can turn to when facing problems and joys. It disturbs me when one is suffering and elates me when one changes an appliance on their own for the first time, since we've all kind of "been there, done that" it helps knowing we are out there caring for others going through the same thing.

All of this has helped me keep from depression and despair and I feel it's an honor to help others who might be scared or hurt or depressed about the effects of our diseases.
Theresa

Originally diagnosed with CD in 1991
Total colectomy August 2007 now saying "Undetermined Colitis"
2nd step J-pouch formation -January 2008--3rd step -April 2008


Arundinaria
Regular Member


Date Joined Apr 2007
Total Posts : 160
   Posted 3/28/2008 12:35 PM (GMT -6)   
I hate to be at the end of so many messages, because it sounds like I am playing catch up. one the less I am so gold you have come through a bad episode. I really feel like we are friends and I want you to know I miss y ou and your bubbline cheerfulneww regardless of the circumstances. God Bless you Know that I am think ing you

Ralph
When there are no more choices, tha decision is easy!


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 3/29/2008 8:39 AM (GMT -6)   
tbraz said...

All of this has helped me keep from depression and despair and I feel it's an honor to help others who might be scared or hurt or depressed about the effects of our diseases.

Boy -- -this is exactly how I feel about this forum and all of my new family members!  I just get so much satisfaction to be able to Help others.  It IS an honor for me.  Pay It Back....  
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Indabag
Regular Member


Date Joined Aug 2007
Total Posts : 254
   Posted 3/29/2008 9:08 PM (GMT -6)   
Amen to what Tbraz and Peggy so eloquently stated.

Richard
Indabag
 
Ileostomy since August 2005.
As result of surgery (modified whipple) for necrotising pancreatitis. Removal of gallbladder, 2/3 of pancreas, resections of large and small intestines. Massive infection. 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/30/2008 10:37 AM (GMT -6)   
i am so glad you are home! i thought i replied to this a while back, but i guess i didn't, lol. Anyway i hope your recovery continues well

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 3/30/2008 7:19 PM (GMT -6)   
I'm getting stronger every day, and the incision hurts less and less, so it's good to be on the road to recovery. Thanks for thinking of me. :-)
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


Gillcom
Regular Member


Date Joined Nov 2007
Total Posts : 272
   Posted 3/31/2008 2:58 PM (GMT -6)   
Glad to hear your getting better and stronger everyday!

Take care you,

Gillian x
Ileostomy - Feb 05, Hernia on site.
Fluoxetine - 20mg March 05 - july 06
Citalipram - 20mg July 06 - upped to 40mg now.


vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 4/1/2008 1:36 AM (GMT -6)   
Wow, it's been a such a while that I've been here that I didn't know you were in the hospital. Glad to here your out and about!

nene205
Regular Member


Date Joined Jun 2007
Total Posts : 302
   Posted 4/2/2008 11:35 AM (GMT -6)   
Hey Cecilia,
It's hard to keep a good woman down for long, right? I hope each day you are feeling better than the day before!
Keep the faith,Jennie
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