Thanks for the responses and support, everyone. :) This is the new name I am posting under (my fiance's nickname for me...cheesy but cute when he says it! )
Eva Lou--so you are the day after me..! I will pray that we both have smooth recoveries with as little pain as possible!
Stomagrrl--"yay for moving on" is right. I have a feeling that after I start feeling better, I wil be kicking myself in the butt thinking "whay didn't I do this sooner??" :)
Cecilia, I hope you have continued to get better from your blockage that you had--I think that my family too will be shocked to see me healthy all the time!
Donut--I did not know you were a teacher also! I swear it is such a highly stressful job (but can be so rewarding at times)...I also just recently became our department head (I was flattered that they asked me, because I am the youngest teacher in our department!) so that has been a whole new bunch of repsonsibilities. You are so right when you said that it is hard to teach when you have stomach pains--it is the worst! I am so happy for you that everyone at work was so supportive-you sound like you have some great colleagues :). I have not yet told anyone that I am going to be out for the last 6 weeks of school...
Praying (another fellow teacher :)-- thanks for sharing your positive experiences! Do you think you will ever get back into the classroom? I am glad you are looking and feeling so much better! that is what I need as well!
Well, this weekend is a boring one for me...on Friday when I was at school I noticed that i had a big red lump on my shin (not like a bug bite, more like a bump from hitting your leg on something.) It kept getting bigger and redder, and by the end of the day, I went straight to the doctor's...turns out I have cellulitis, and the dr. forbade me from walking at all, except going to the bathroom--for the next 3 days, and put me on antibiotics. He is sure that I got this, and it became so bad because I am on Remicade which makes your immune system stink...so another thing I have to look forward to is not getting random infections nearly as much as I do now!!
I guess spring is the season for ileostomies... :) It does seem like a good time to have surgery, and I hope yours goes well, too!!
I also know i will be a nervous wreck as the date approaches...when I start to think about what they are going to be cutting/etc., I get really nervous about it all! You will have to post after surgery and let everyone know how you are doing...I know I will likely be posting a lot after surgery!!
Haha-Thanks for putting things in perspective . I actually said "I am having my diseased colon removed" out loud, and almost laughed because when you say it like that, it makes sense that I should Want it to be gone, not want to hang on to it...!
So, thanks for that simple tip, it will be my new mantra for the coming weeks!
Also, importantly, I know you are one of the people that had your colon removed due to Crohn's (like I am--though I am also having my rectum and anus--the whole she-bang--removed as well), and I was wondering, did your GI and/or surgeon recommend that you go off you meds after surgery?
I am scared they will still want me to continue immuran/Remicade to prevent Crohn's from invading my small intestine in the future (up to this point, I have never had Crohn's in my small intestine..)
Also, did they give you a % chance for appearance of Crohn's in the small intestine in the furure?? THAT is my biggest fear--after going through such a dramatic surgery, I want to be assured that I have Really HIGH chances of not having to deal with Crohn's at all for a good long while (like, 30 years!)
Thanks for any help you can give. :) :)
I had CD in my rectum, colon and part of my small intestine. Once I had the whole 'she-bang' removed and had my perm. ileostomy done, I have never even taken 1 Prednisone pill -- NOTHING. I must say that it did take me a while after my surgery to wean off of the dose that I was on, but after I got off of it, no more steroids. I have only taken 2 rounds of Flagyl since my surgery back in 1984, for a bacterial bug in my intestine (we think). And the CD has stayed in remission for me.
I had the very same concerns that you do about the CD reoccurring in the rest of my small intestine. My surgeon told me after I had my surgery that if I went 10 years w/o the CD coming out of remission that I most likely had it "beat". I don't know what the % is, but that is what my surgeon at Cleveland Clinic told me back in 1984. Maybe someone else here on the forum can give us some more up-to-date facts. Yeah, I still have lab work done routinely to check various levels and of course, my GI here in Indiana always checks my SED rate and WBC along with the minerals, etc. I know there are no guarantees but I always have thought very positively about the CD staying in remission.
I'm glad that little tip helped.
I had my colon and rectum removed, and like you, never had Crohn's in my small intestine. My GI doctor told me that there is a very good chance that it will never show up there and did not think it was necessary for me to be on any medication, since there is no active disease to treat. So, I've been off all medication since my proctocolectomy a year and a half ago. I hope that brings some reassurance to you.
I had a proctocolectomy with end ileo (2/8/08) for a "diseased colon/rectum" due to my Crohn's. I did have problems with my small intestine when first diagnosed, but in the last 7-8 years it was my colon/rectum that gave me problems. My surgeon (also at the Cleveland Clinic) said that my chances of having future problems with my small intestine were slim and would be even better after the 10 year mark.
My GI also took me off of all drugs before surgery and I will only have to go back on them if I start to have small intestine problems...as far as blood work goes, I don't do any specifically for my Crohn's, but my family doctor does them anyway and if anything goes off, I'll get it checked out.
I am living my life now, and don't necessarily worry about "what if". It is a great relief to not have to worry about what my body will do to me today, or where a bathroom is!!