I am officially scheduled for surgery on May 30th!!!!! That's only 8 weeks away! AHHHHHHHH!
I am scared to death. Surgery wasn't fun the first time around. But I am excited, too!
This is what my Doctor said:
First of all, I will need TWO more surgeries - one to form the pouch, and then one to reconnect the ol' pipes. I was prepared for this so that was okay. What I wasn't prepared for was the fact that the whole process will mean another solid four months off of work. I will have my surgery May 30th, then 8 weeks later, go in for the reconnect. Then he said to take another 8 weeks after that before going back to work. He was very proud of how healthy I got myself (lost 50 pounds, etc.). He is a little cautious because once they had done my pathology after the colectomy, the results said I had Indeterminate Colitis, so he warned me that if I really have Crohn's I may have some issues with pouchitis and other complications. But he said that being labeled as Indeterminate would not exclude me from being a candidate from the j-pouch surgery.
While I don't look forward to string all over again (not being able to walk around the block, let alone hit the gym), I know that by my next birthday (Oct 4th), and God willing, I will be done with surgeries, and well on my way towards recovery.
I am a little scared of the loop ileo I will have after this next surgery - but it will only be there for two months. Have any of you had this surgery? Any advice or thoughts? Any little thing will help prepare me - I do much better when things are planned and I have warnings of what "might" happen. I'll check on the jpouch board, of course, but you guys are like my little extended family, so I am asking here, too.
And for those of you thinking about taking this step, I'll be happy to share my journey if you are interested!
8 weeks!!8 weeks!!8 weeks!!8 weeks!!8 weeks!!
If at first you do not succeed, then skydiving is surely not meant for you.
Jo - UC, total colectomy and ileostomy on August 24, 2008.