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sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 4/8/2008 9:47 AM (GMT -6)   
Hi there!
 
You have a j-pouch, right? I am scheduled for my surgery (2nd step of 3 - the formation of the pouch) on May 30th. Do you think you could fill me in on what to expect from this surgery and then from the takedown? I'd appreciate your story, I know all are different, but it helps to know what I'm getting into!
 
Thanks!
 
Joann
If at first you do not succeed, then skydiving is surely not meant for you.
 
Jo - UC, total colectomy and ileostomy on August 24, 2008.


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 4/8/2008 11:45 AM (GMT -6)   
Joann,

I would love to help you out with your question but I had a 2-step surgery so I went straight from a temo ostomy to a functioning pouch. I would recommend you post a thread at www.jpouch.org and in your tag line ask for Kathy Smith. Kathy had a 3 step procedure and can give you all the details.

I can say that a temp ostomy is harder to manage than a permenant ostomy. Don't be surprised if you suddenly have mucus or small bowel movements coming out of the pouch. This happens to all of us. Don't be surprised if you see some bleeding either. It's all normal.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 4/8/2008 4:45 PM (GMT -6)   
I'll page Kathy! Thanks a million! :)
If at first you do not succeed, then skydiving is surely not meant for you.
 
Jo - UC, total colectomy and ileostomy on August 24, 2008.

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