Here we go:
1. Yes, you will be able to control your bms. You might have urgency in the early days but it will improve. Expect improvement in 6 week increments and be patient with the process. Your small intestine has to learn how to behave like a colon. It takes time.
2. You should have minimal pain from the 2-step. Be sure to get up and walk. Take some creams (desitin, balmex, calmospetine) to the hospital with you. I took a variety to find the ones I liked best. Expect high frequency in the early days. I think in the hosptial and at home in the first six weeks my frequency averaged between 12-22 times per day. However, there was no pain and very little urgency. Everyone is different so your experience may be better than mine. Again, I cannot stress the importance of being patient.
3. I rarely have urges and when I do I have minor discomfort. Yesterday was a good example. I was on an 8 mile hike and about an hour away from the car I needed to empty my pouch. I really did not want to stop because I was lazy. So yes, I had a bit of discomfort but at my own cause and expense. Normally you can hold it for an hour or so until you are ready. It might not be that way right out of surgery but you will get there.
4. Mucus is an ocassional sight but not like with UC. It's just the shedding of cells and nothing to be concerned with.
5. No, you most likely won't have leakage but if you do remember it's normal in the first few months of recovery.
6. The early days you might want to concentrate on eating foods that provide bulk. Rice, oatmeal, bananas, etc. Try foods out and see how you feel. After my first six months I was able to eat anything. Actually I could eat anything from the get go but some foods raced through me so I waited. Today I live mostly on fresh fruits and vegetables, my preferred diet. It causes me no problems. Sodas and coffee will not be a problem, I don't drink alcohol but I can't imagine it being a problem since I know so many pouchers who do drink. Just remember if something doesn't agree with you try it again in 2 weeks. There are no foods or beverages that I cannot eat.
7. My GI also said I would get pouchitis but it's been 7 years and I haven't had it yet. My understanding is that one gets flu-like symptoms. Fever, high frequency, and foamy bowel movements.
8. My bowel movements don't often smell unless I eat garlic or onions or some other smelly food. My gas is odorless which comes in handy in public!
I know that you have gotten used to your ostomy and it's given you freedom. Having takedown will be challenging because it's not going to be easy to deal with the adaption. Focus on long term and remember recovery is 2 steps forward and one step backwards. I continued to live a full life in my first year. I went camping at 6 weeks post surgery, traveled through Europe at 3 months, and did a half marathon at 6 months. Don't stop living just be prepared.
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free