Predisone use - a long time ago

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lp
Regular Member


Date Joined Nov 2007
Total Posts : 29
   Posted 4/12/2008 5:07 PM (GMT -6)   
Maybe someone out there has some info on this. I was on very high doses of Prednisone for 5 years back in the 1960's in a failed attempt to help with UC. I have heard that people can have permanent problems with osteoporosis and other side effects. I certainly had side effects while I was on the drug - moon face, hair, mood swings, etc etc. But I have not noticed any residual side effects - my vision is good, no bone loss, and am in good health. Is there any research on the long term effects of long term use at very high doses --- from a long time ago? Should I be concerned?
UC diagnosed 1964
Ileostomy 1969


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 4/12/2008 8:33 PM (GMT -6)   
lp,
I was on very high doses of steroids from '78-'84. And yes, I have had some residual bone loss I believe attributed to those steroids. No proof, of course. But I have had to have both of my jaw joints (meniscus) replaced and just in the last few years, I have been battling osteoporosis. I have completed the 2 year Forteo therapy with excellent results shown on the bone density/dexa scans. Most recently I was battling a severe Vit D deficiency, which I have been able to "conquer"! If you haven't seen any bad reactions to the steroids by now, I would guess you are in pretty good shape. Have you had any bone density studies done, i.e. a dexa scan?
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/12/2008 9:44 PM (GMT -6)   
i think there can be some long term effects, but i dont' know how long, or how high the doses need to be. Anyway, you should have one of those bone scans, i was actually supposed to have one, a few years ago, at age 27 but never did it.
I don't know about the eye thing, i have never heard of long term damage from the pred for eyes, i know that UC can cause eye problems, even after the colon is removed, somehow, even though i really do not understand that!

lp
Regular Member


Date Joined Nov 2007
Total Posts : 29
   Posted 4/13/2008 8:41 AM (GMT -6)   
Yes I have had several bone scans - during peri menopause (as a baseline) and now after menopause. So far so good - no bone loss. I have taken Calcium supplements and eaten cheese, milk, yogurt on a daily basis for at least 30 years so I don't know if that has been helpful or not. Moderate exercise - I walk several miles a day and do a little cardio and strength training. Should do more but not enough time. Because UC is basically an autoimmune type disease, I think that there may be some issues with arthritis (which I have) but I have been blissfully ignorant about other possible side effects from the prednisone (I doubt they use such high dosages now - or for so long now as they did in the 60's) or from having had UC. Just been enjoying excellent health for nearly 40 years......So I was wondering if anyone has researched or has experience with the impact of the disease and the long term high dosage use of the drug - 40 years later. Thanks
UC diagnosed 1964
Ileostomy 1969

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