Why am I so sore?

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chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 4/16/2008 7:50 PM (GMT -6)   
My joints really hurt.  My knuckles in my hand feel so good to just rub and my elbows.  Plus, when I get up from like a chair......I ache like an old woman.  Is this the prednsione withdrawl?  I was on prednsione for 1 1/2 years and got off like a month ago.  My lower back too is so stiff still.  Anyone else have these aches? I am 7 weeks post op
Pancolitis - July 2006
Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months
Medications:  Predisone - 5mg (and tapering to zero)
Supplements:  multi-vit, calcium
Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/16/2008 8:33 PM (GMT -6)   
it could be the steroid wtihdrawal, that stuff will do some weird stuff to you.

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5399
   Posted 4/16/2008 8:59 PM (GMT -6)   

Most definitely sounds like pred is the culprit.  I was on it for 2.5 years and it took about a year for the joint pain to go away.  The good news is that it does go away.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 4/16/2008 9:25 PM (GMT -6)   
Wow......I was thinking that it may be prednsione. I was lucky enough to never have any side effects while taking it so it looks like this may be the worst of it. It is rough. I have a hard time twisting even in the car to look to see if there are any cars coming in my blind spot. VERY stiff.
Pancolitis - July 2006
Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months
Medications:  Predisone - 5mg (and tapering to zero)
Supplements:  multi-vit, calcium
Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/16/2008 10:42 PM (GMT -6)   
have you tried any bengay or some heating pads? be very careful though not to get the heating pads on any spot that had an incision

chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 4/16/2008 10:46 PM (GMT -6)   
Why not put a heating pad on an incision? I have never heard that so good to know.
Pancolitis - July 2006
Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months
Medications:  Predisone - 5mg (and tapering to zero)
Supplements:  multi-vit, calcium
Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/17/2008 7:24 PM (GMT -6)   
not when they are open or recently healed. I don't know why, you jsut aren't supposed to.

awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 617
   Posted 4/18/2008 9:15 PM (GMT -6)   
i was pretty sore for months post op. even now, almost 1.5yrs later, i'm still somewhat sore every morning when i wake up. i do a little yoga and it loosens me right up.

--matt
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis


HisWill
Regular Member


Date Joined Mar 2008
Total Posts : 43
   Posted 4/19/2008 6:36 AM (GMT -6)   
I was on pred for 6 yrs for scleroderma, RA..and all the other autoimmunes that i have. Due to weight gain and for what the pred was doing to my bones..(I now have osteoporosis) I weaned myself off the pred with my doctors consent. It was very difficult to do. But I found a naturaopathic (sp)? aid to help. It is called InFlammaforce. I found it at a health/vitamin/nutrient store. You can probably find it online and order it. Check with your doctor to make sure you can take it. I dont know if I can take it anymore due to my illeostomy. I do sometimes still take it for inflammation when I am in a flairup. My husband also takes it when he is aching. He doesnt have an illness but he is a contractor and works outdoors in the winter too and the cold weather bothers his joints, etc. Anyway, hope this helps you. Good luck. Let me know if you can take the InflammaForce and if you do try it, let me know if it helps. HisWill

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 4/19/2008 4:44 PM (GMT -6)   
Chili,
Good Luck on your Pred. w/d and symptoms. Keep moving.. it will get better. Heat, warm showers, icy hot, bengay, do whatever relieves it. Keep drinking lots of fluids. Be sure to let your doc know about it as well.

Will be thinking about you.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 4/20/2008 8:30 PM (GMT -6)   
I am still sore and I would agree that moving helps. I can certainly deal with this pain MUCH better than the UC symtoms so I am sure that I will get through it. I will check out the InflammaForce.....that sounds interesting. I have not called my doctor and not sure I will unless it gets out of control. I like to contact doctors only when I can't control it because I don't want them to think I call too much.
Thanks
Pancolitis - July 2006
Surgery - Temporary ilestomy on 2.25.08 at Cleveland Clinic. Next surgery in 6 months
Medications:  Predisone - 5mg (and tapering to zero)
Supplements:  multi-vit, calcium
Reason for surgery: Steriod dependent and allergic reactions to imuran and 6mp. Elected not to try remicade.

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