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Lew1201
Regular Member


Date Joined Mar 2007
Total Posts : 111
   Posted 4/20/2008 9:18 AM (GMT -6)   
Well, we've signed off the UC site and are new to this site.  My 18 year old son checked into the hospital a week ago Friday for steroid treatment and today is 2 days since his ileostomy.  He has an amazing attitude and is doing everything possible to get out of here.  His surgeon was absolutely the best and his recovery is going great so far, but we are still waiting for the "gas" so that he can do more than sip tiny amount of liquid.  I guess we are waiting for his digestive system to awaken.  He's obviously a bit apprehensive of what life has in store, but at this point he is just so happy that he isn't in the bathroom every 1/2 hour.  I'm sure we'll have questions and we'll probably post on j-pouch.org too.  Thanks in advance. 
Mother of 18 year old son
Remicade
6MP 100mg


tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 4/20/2008 3:43 PM (GMT -6)   
Lew,
I am glad that your son's surgery was a success and he is on the road to recovery. Make sure that he walks every chance he can to keep the gas pains away and you can ask his surgeon if he can chew gum. Some studies have shown that it can help wake up the bowels and some have shown it doesn't, but my surgeon said that it has shown that it can't hurt. It usually can take about 2 days and they won't let you drink until you pass gas. When they do, it's little sips of water, next day clear liquids, next day, soft bland diet, and if all goes well he should be able to go home the next day. He will need to keep hydrated now that his colon is gone as it's function was to absorb water so remind him to drink drink drink. And since he's had abdominal surgery and now has a stoma, he will need to really chew his food well. I felt so much better after I had my colon removed and finally enjoyed food again. I hope he continues to do well and feel free to ask any questions that you may have!
Theresa

Originally diagnosed with CD in 1991
Now saying "Undetermined Colitis"
Total colectomy August 10, 2007 -2nd step J-pouch formation -January14, 2008 -3rd step -April 14, 2008


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 4/20/2008 7:34 PM (GMT -6)   

Welcome to our group! I'm happy you're son is doing well. He's going to find that life without UC is great! I had Crohn's for 7 years before having surgery and have never regretted that decision for one second. It was the BEST thing I ever did!!

I agree with tbraz's recommendation for him to get up and walk as much as possible and to chew gum. That will help wake up the bowels. Once that happens, he will have a lot of output initially, so make sure they don't take him off of the IV fluids too quickly, because you don't want him to get dehydrated. The nurses should measure his input and output, and report it to the surgeon.

Please keep us posted on how he's doing, and ask us any questions you or he may have, and we'll do our best to help.


Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Small Bowel Obstruction Surgery in '08, caused by adhesions.
Disease-free, medicine-free, and very thankful to be healthy again :)


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/20/2008 8:21 PM (GMT -6)   
yes the gum is supposed to help, and suprisingly sucking on something, like his thumb which i know is silly i am sure you could find something else, not candy though, can help stuff get going. you would proabably want to think of something diff than his thumb though, that might look a little silly!
Yes the output will be crazy, and it will be this nasty green color and smell awful! be sure he knows that it won't stay that way, once it starts eating it will change to a diff smell, not great, it is poo, but nowhere near as gross as that stuff and it won't be nearly as much. They shouldn't have unhooked his IV fluid yet, if they have, they need to hook it back!
i hope all goes well with him!
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