Thanks Terri and mcmom1234 for your response.
Terri, thats just awful for the subtotal not to have worked - i was told by my surgeon that, in his experience a sub-total doesnt cure slow transit (not sure what your prob was originally though), and that he would only do total colectomy. still deliberating...
would you consider having the rest of your large bowel removed? therefore just leaving the small bowel to be resectioned to rectum?? Sounds like you have had your share of stress looking at your signoff...
Yes, I would consider having the rest removed if it is felt that would help my situation. I was supposed to have defecography testing done, but I've developed another hernia and my surgery is scheduled for the 29th, which is the same day that I was going to Stanford for testing. I've had a lot of stress due to the medical issues (this will be my 33rd surgery), but I think I've handled it rather well. Not much I can do about the cards I've been dealt, but I can control the way I play my hand.
thanks so much for reply. So sorry to hear that, and hope you are not in abusive relationship still.
out of interest, did you have slow transit constipation? and are you ok now bowel-wise e.g. you didnt become incontinent ...etc. Thats what is putting me off having tc.
thanks and best wishes
I answered above, but just saw that you had the STARR procedure. I also have a large rectocele and my dr. wants to do STARR procedure before a colectomy. I also have pelvic floor dysfunction and I am starting biofeedback in 2 weeks....he wants me to do all this before the big surgery. Did the STARR procedure help at all? Is it a very painful surgery? How long were you in the hospital and how long a recovery period? I'm sorry for so many questions, but I haven't found anyone else who had this procedure.
I take senna every 4 days or so, and if I don't take it, I don't go...and then sometimes it's very difficult. I'm also very afraid of having constant diarrhea....but I know I can't live like this alot longer. It's gotten worse over the years.
Karen, yep, a bad day or night is incontinent.. I don't know if that's bad or not, just feels funny when I'm only 38 years old. Now, I know that it can happen to anyone. My stomach is more sensitive since surgery, and once in the while it feels like I have a stomach bug and it will grumble all night, regardless of what I've eaten. On those times, I just ride it out.. It doesn't really hinder me.. My stomach does get tighter, almost like menstrual cramps when it happens. I wear the diapers then at night, because it is easy to have an accident and wake up to it later. It's not like before surgery when I could control it. I can still wear my normal clothes with a diaper, it's just really important to keep on drinking liquids.. We have to drink more than we put out.
(I just wish that one of you would design and patent some designer diapers for women.! Plain white is boring, and even kids have diapers and pull-ups with designs.. Why not us, too?)
Hi, G.T. It's good to meet you. I am very, very sorry for everything that's happened and all that you've been thru. It seems like there aren't any easy answers regarding our reactions to our bodies (and our body's responses after surgery) after the types of surgeries that we've all had or are moving towards on this site.
You have every right to feel like you do, but you sound like you have a wonderful and loving family that you love, too.. Hold on to their support tightly to help you thru this. You're a strong person if you can make it thru 6 weeks in the hospital. (I thought that I wasn't going to make it past 2 weeks..)
I think that the worst day of my life was when the doctor told me that I had to have my colon removed. I started crying and had a panic attack on the spot. I'm usually quiet and composed, but it rocked my world to the core. For the next 6 months, until I had my total colectomy, I would cry at the drop of a hat or just thinking about it and wondering why in the world it had had to happen. I don't think that anyone should have to go thru what we have, but we did and your husband is right, you didn't have a choice. I didn't either. I still get mad, but my husband and sons (I have 3) reighn me back in and let me know how lucky we are to have gotten the help that we needed. Others like us are fighting to just be able to have surgery to make their lives livable and not miserable or with cancer. We are the lucky ones.
Please, you are so young. You were dealt with a bad deck for such a short time.. Take time for yourself and slowly let yourself out of your house and rediscover yourself again. My friends went on with their lives in the past couple of years, too, but we are all changing. Show them all the new you. Hopefully, the more that you get out the more that you can get some strength back.. Besides, you deserve to treat yourself to the best..
It's still not easy. I'm learning now, too. I had surgery in August and have lost almost 90 pounds, but I did have the weight to lose. Now, I'm almost severely underweight and am trying to maintain, too. Sometimes when I look in the mirror, I don't recognize me anymore and it's difficult not to remember the surgery. Losing weight so fast has put alot of stress on me. I'm not used to the attention and comments of others, no matter what I wear or eat. I've had to change my eating habits, and clothes often because I've gone from a size 18 to a size 4 now and have continued to work full time. It's been a chore to even have clothes to wear in the mornings, and often brings me down. I have a really good counselor that I trust alot and he's trying to help me work thru this. For me, it's been great to have someone to talk to about what I'm going thru and being able to ask for help. It's easier for me to talk to him about some things than talking with my family, because sometimes I can't put on a happy face when I have all day at work and will at home with my family.. We're still human and have lots of feelings.. (They took our colons, and not our feelings..)
I hope that you can find some peace in part of what I've written. One day at a time..
Thanks GT for the reply.
I feel like swearing, but wont - in reponse to what you've been through. I am so sorry, but as butterfly says, yes it sounds like you have a loving family who have stood by you. it sounds like you are in deep depression to me - like you are in a deep black hole. i hope you can let your doctor can help you somehow. antidpressants might help, and counselling maybe.
please let us know how you are doing and take part in the forum, and maybe you can get in touch with locals who have also got a bag.... Your local gp can do this i am sure.
I have heard of lots of people (mostly on this forum) who are now enjoying life after colectomy. however, you have been through the most horrendous time, and need to recover your ordeal ... i do wish you well...xxxx