It has now been about 6 1/2 weeks since subtotal colectomy, and I'm doing much better. I've even added a few raw veges (just a few) to diet. Most fruits, especially grapes and cherries, can be bothersome as well as fats (like you said Marjk). Overall though I am thrilled to have anywhere from maybe five or 8 to 10 bms per day. If I voilate the diet, I have more than that, however, there is still a lot of foods I can eat now that I could not hardly eat at all before because they constipated me soooo much. This truly feels like freedom even if the output is not "normal" and doesn't look like the traditional #2. I am back to work full time, still have to pace myself since I can get tired, but I know that this too shall pass.
Wondering how you are Hopeful.
I had a laparoscopic subtotal last September. Unfortunately, I'm no better than I was before so it's starting to look like I'm going back for a total. I'm still living on Miralax.
Maybe it's just me, but I've noticed that a lot of people mention the numerous BMs after having the surgery. That's a given and my doctor told me about that. Didn't your doctor explain that to you? If not, shame on him/her. As far as what to do for it, I've seen people mention fiber supplements. Also, supposedly the small intestine will eventually take on the role of the colon and things will start to thicken.
My scars aren't painful at all. The numbness is normal. The feeling may or may not come back. Good luck!
This is my first post. I am very discouraged. I had a total colectomy, laparoscopicly with ileo rectal anastamosis done on 6/30/2008. I had many post op complications including an ileous which required a NG Tube for four days and no eating or drinking for three weeks. I was in the hospital for 4 weeks. I had this done for constipation and my doctor said looking at the colon under the microscope after the surgery said it was totally "dead," most likely from overuse of laxatives that I had to use in order to go at lease twice a week. I was up to 12 a day! I am still constipated! Now with no colon after two days without going I am in so much pain! My doctor has me on Reglan, Erythromycin, Lyrica, and Protonix. Thinking it will stimulate my bowel. All to no prevail. I have to take a fleet enema every other day so I wont get backed up again. I have alot of gas pain and stomach pain, and nausea; I can't take it! Has anyone experienced this? I go back to the doctor this Friday. I don't think he can do anything to help me. He did say he thinks my small intestine might not be working. Please Help!
My daughter who is 11 just went through the same thing...she had a total Colectomy on 6/5/08 and after 6 bweeks...no bowell sounds,being NPO,,having an ng tube for over 3 weeks,on tbn/lipids,she could still not go to the bathroom either...they did more testing,and her small intestine bottom prt ,the illeum,is working but not that well,some motility ...they incerted a rectal tube in her and over a 72 hour period we did get results...not a huge amount,but enough so that they thought giving her an illeostomy would work..so on 7/9/08 they went back in and gave her an illeostomy,and for the first time in her life she goes to the bathroom...also in the first s/x they also had to remove most of her rectum,due to a really big stricture from her sub-total,that she had last year...having the ractal tube in for 3 days was not very comfortable,but it gave her drs good info to go ahead and try the illeostomy...we are 3 weeks post and we are having a few bumps in the road w/ hydartion and food absorbtion,but she is going to the bathroom!!!,They say that theses things will work them selves out w/ time,but we have never seen this poopin her whole life!! Maybe you should talk to your drs about it...I will be praying,and keep us posted
Krista & Takera
I'm so sorry you're still having problems. Did you have a bm in the hospital before they finally let you go home? Before your surgery, did you have any tests done on the small intestine?
I'm in the same boat with the constipation. I'm planning on having surgery after the first of the year, but hearing your story is really discouraging. I haven't had a bm on my own in 30 years....I take senokot a couple times a week. Do you mind me asking how old you are?
I'm meeting with my surgeon again in two weeks and I'm going to ask him how common this is for the surgery not to work. I've been so afraid of having the opposite problem that I haven't worried too much about not going!
Again, maybe it's just taking your system a little longer to get started. Good luck, and please let us know what your dr. says.
I had a colon surgeon. I heard one of the "best." I had all the test done even the defogram which showed no pelvic floor problems, so my doctor can't understand why I am not going. I really apreciate all the help and prayers. Thank you and I will let everyone know what happens at my appointment.
ps I am glad your daughter is going on her own!
My daughteralso goes to Boston , she goes to Boston Childrens,and like i have posted before...she has had problems since birth,and after alot of trail and error we had to get an illeostomy on 8/9/08...I had asked about the J-pouch for her ,but her drs said people that have motility problems,do not do well w/ the that ...so ask about that,and maybe get a second opinon...that is why we had to go to an illeostomy...which is still working!!YAY!!! Keep us posted...At least Boston hospitals are some of the best!!
Wow this is very discouraging - I feel for you. I am also worried like Janiepain - i have been abusing senna for over a year now - my doctor wont give me a prescription for 500 sennas a month anymore, as she said she has to cover herself in case something happens to me (what will happen to me!?).
I take 12 senna tablets at night and 16 senna in the morning. It means i can go to the loo to some extent twice a day, but life revolves around the toilet for me. if i dont go every day i am most uncomfortable, and even if i do go, i can be in pain - also rectal spasms too now. It is scary to think that one might never get better.
I heard Boston Is the best but I just hate starting all over with new doctors and I am from Rhode Island so it will be a long trip for me. I am scared the outcome will be a bag. I am glad your daughter has adjusted to it. She is a very brave girl. I have a sickly 8 year old little boy and he is also brave. I think children has more strength than adults handling illness.
I was also "abusing" senna (My doctor said its not abusing, your doing something you need to do in order to go. Abusing is when you use laxative to loose weight.) I was taking 14 cascara and senna tea everyday in order to go alittle. The doctor said he never seen a colon so black and dead looking. So you are heading the same way as me. The colectomy wasn't a bad thing and I don't regret it. There is just a long road ahead. Just hope for the best! I would consider a colectomy, because the laxatives is a short fix for a big problem and the clectomy might work for you. No matter what happens to me I would still have needed it.
I feel for you all!