I hope all of you are doing well. I just wanted to drop by for a minute and let you all know that I have been thinking of you and miss chatting with all of you. I haven't had much "spare" time on my hands lately.
My husband's diagnosis still remains the same - ALS (Lou Gehrig's Disease), though we are still awaiting one set of labs to come in from a specialized lab in Massachusetts to let us know if IV Gammaglobulin might be a treatment for him. We should know that answer any day now. I have noticed more fatigue, and muscle loss over the last several weeks. But, we remain positive and hopeful.
The stress of all of this has finally caught up to me. I have been battling a partial blockage or kink in my intestine since Wednesday morning. The oral pain drugs and muscle relaxants haven't worked well at all this time. Last night, I finally gave in and switched over to a transdermal pain patch and actually have had some relief over the night. It's quite a bit stronger than the oral and keeps a constant level in my system. I'm hoping to be off of it by Sunday, if my gut cooperates.
Our house building is coming along. It is being drywalled now. We are supposed to meet a landscaper there at 10:30 this morning and then go look at countertops today. We ordered our cabinetry yesterday. We also need choose which painter we plan on hiring too. Been really busy with organizing all of the workers since we are acting as the general contractor. I was hoping that we would be moved in by the end of July if at all possible.
I just wanted to drop you all a note and say "HI" and to let you know that I think of you often. I noticed that we have lots of new members posting now. Welcome to all of you!
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery