new experience for me

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tpoof
Regular Member


Date Joined May 2008
Total Posts : 34
   Posted 5/17/2008 9:25 AM (GMT -6)   
Hello all!
Well It seems I have something in common with you's all and am thankfull I have found this forum to get and exchange knowledge and ideas...
I'm finally home now after having a preforated diverticulum emergerncy surgery. been home for a week.

Had a major stomach ache at home, a intense crampy twisty pain that took me to my knees...
The wife took me to Emerg and after much confusion the Dr.s went in to see what they could find.
They found an inflamed large intestine with an abcess and a perforated diverticulum and removed aprox a foot of my bowel they said.
I'm all hooked to a colostomy which they said could be re-attached in some 3 months down the road.... its nasty, but thank God it may be able to be gone!

Searching thru the net led me to find this site and hopefully I will be able to glean some knowledge of proper care on this dilemma..
I never even knew I had a condition till I had the attack!
just thought I had a stomach flu as it was going around the area at the time.
I was diagnosed with irritable bowel syndrome a couple of years earlier and was given Evail @ 25mgs to help with the problem...
Now in retrospect I see that this meds may have slowed the bowel down and even might have been a factor in the outcome..
The meds are gone, I'm taking nothing now.
Just got my 45 staples out yesterday and am slowly getting able to walk further everyday..
Oh the pleasure of walking the dogs once again is sweet indeed!

I'm an active fella of 49years that is a carpenter and an avid outdoorsman and well as a x-country skier,,,
always have had a good concious fiber rich diet as well as a nonsmoker and very moderate drinker....
I really can't even believe this has all happened so fast!!
What a difference in life one day can make...
I keep wishing to wake up on the couch and find this has all been a bad dream...
Oh well,,, on with life!
Whats a few more hurdles to overcome eh?

Thanks to those who listened...

Still fighting with the colostomy situation....

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/17/2008 4:40 PM (GMT -6)   
tpoff-Welcome to the forum! There is alot of knowledge here and we have all benefited from each others experiences...you'll learn alot!

Don't get discouraged. Many of us came about our ostomies by "accident", in my case I decided to go back to my ileo after having it reversed. I have Crohn's so my situation was a little different than yours. Be sure to ask all the questions you have, there is always someone who has experienced whatever your question might be!

Oh, having an ostomy WON'T prevent you from doing ANY of your outdoor activities!!! It will just take some time to get used to it and for you it is temporary:)

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 5/18/2008 6:45 AM (GMT -6)   
tpoof,
Welcome from me as well!!! Even though you had no idea that you would end up with a colostomy, you must find peace with it, even if it is only for a short duration. Once you heal from the surgery itself, your daily activities should not be altered unless you chose to alter them. It will take some adjusting to get used to it, and by then you will have your reversal surgery it sounds like.

I haven't been on this forum lately as you can see from a previous post from me, but I can tell you that there are a lot of very knowledgeable folks here on this forum who can help you with any questions, no matter how trivial they may be.

Keep your chin up and enjoy life, one day at a time.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


tpoof
Regular Member


Date Joined May 2008
Total Posts : 34
   Posted 5/18/2008 7:21 AM (GMT -6)   
Thanks so much for the welcome Ohio and Peg... it means alot! it really does.

It just seems to have a mind of its own, moving and gurgling and creating pressure when I sleep...
I seem to have quite the pasty poo's and think I may have to refine my diet some to create less pressure somehow.
My stoma is still so raw, with stitches and and still quite sore also...
Its just sooo different, hard to come to terms with....
I'll manage tho.
specially with kind folks such as you's in the wings.
Thanks again
any advise on proper care would be welcomed...
never got much from the hospital staff...
Terry

maine
Regular Member


Date Joined Jan 2008
Total Posts : 38
   Posted 5/18/2008 1:55 PM (GMT -6)   

cool    HI

 

    I TOO HAD EMERGENCY SURGERY LAST OCTOBER FOR PERFORATED COLON

DUE TO DIVERTICULITIS WITH A TEMPORARY COLOSTOMY.  IT'S BEEN NO BED OF ROSES BUT THE BAG PROBABLY SAVED MY LIFE, AND THATS HOW I LOOK AT IT.

MY SURGEON TRIED TO RECONNECT IN FEB BUT IT WAS STILL TOO SOON, BUT HE DID MOVE MY STOMA DOWN, IT WAS AT MY WAIST BEFORE, AND THAT WAS A RELIEF! AS I WAS GETTING BAG BLOWOUTS EVERY SINGLE DAY PRACTICALLY.

 

HE WILL PROBABLY TRY AGAIN AT THE END OF THIS YEAR TO RECONNECT, CAN'T WAIT,  IF YOU HAVE ANY QUESTIONS FEEL FREE TO ASK! THIS SITE HAS BEEN SO HELPFUL TOO ME. I DIDNT FEEL SO ALONE AFTER SURGERY.  TAKE CARE AND GOOD LUCK!

 

DIANE FROM  MAINE


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 5/18/2008 3:02 PM (GMT -6)   
Hi Terry,
Welcome to Healing Well. I'm sorry you've had to go through this, but am glad that it will only be temporary. I have a permanent ileostomy due to Crohn's and find that a morning cup of caffeinated coffee loosens things up for me (it makes my output watery), so that might help you, too.

Once you heal up from surgery, you will get your full energy back and will be able to do all the things you love to do again. My husband is a carpenter, too, and likes to make furniture. :-) What's your specialty?

I hope each day gets better and better for you.

Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/18/2008 3:27 PM (GMT -6)   

tpoof-I am not sure how much you have read in threads about what to do, but here's some easy stuff:

-use a soap that DOESN'T leave a residue when cleaning the area around your stoma(Ivory, Dial, Neutrogena).  Otherwise, you may have problems with the "seal"

-I buy Bounty (select a size) and tear a bunch in half to use to clean my stoma area

-fold the cuff of your pouch back when emptying (if it isn't clipless).  That will help with cleaning it and keeping the stinky stuff at bay

-And, I found that the more "methodical" I am about changing/cleaning the better I am...that is I always put things in the same spot on the counter, have my eakin seal on my wafer, cover my stoma in between taking off/putting on(you probably have less activity with a colostomy---an ileo has a mind of its own)

-even though yours is temporary, try some samples from the main suppliers, they'll ship you three or so of what you think you'd like to try.  All the info is on their websites (Convatec, Coloplast, Hollister), take the time to check it out.  The right appliance can really make a difference.  I just found one that is so much better than what I have used for the last 5 years!  It has made a HUGE difference in my life:)  Who'd a thought!

-Oh, and the pain does subside rather quickly.  The stiches will either disolve or be taken out.  Does your hospital have ET/WOC nurses?  Maybe make an appointment with them for some more one/one help.

Keep asking those questions and good luck!


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/18/2008 7:04 PM (GMT -6)   
everyone has given you great advice! i don't have much else to offer but here are a few things.
 
The amount of noise will decrease, and there are these things, called gel-x tabs and they help keep the noise down.  Also taking some gas-x will help that.
I use a water bottle to rinse the end out when i am at home.
I figured out a way to sort of practice changing your bag (i wish i had figured this out earlier!)  anyway, take a toilet paper roll, cut it to where there is about two inches. Then take a piece of cardboard and cut it to where it will fit over the roll, with a little room on the side, actually cut two of them.  Get some kleenexs or something, and keep them by you.  Now, if you were actually changing, you would want something other than kleenexes, i buy cheap towels from wal-mart and cut them into small squares and just throw them away.
Ok, put the roll on the floor, put one piece of cardboard onit.  Then, as quickly as you can, practice removing one piece of cardboard, getting the other piece on and covering the top with the kleenexes.  That will get you to a "safe" part of chaning the bag, where you dont have to worry about output getting everywhere.  I hope that made sense.

tpoof
Regular Member


Date Joined May 2008
Total Posts : 34
   Posted 5/19/2008 7:37 AM (GMT -6)   
Wow! Thanks soo much folks for all the words of encouragement!! This truely is a great site...
with great people! ;)

My folks were over yesterday to visit and I showed them this site, they are not computer people..
they were so impressed with all the replies and caring thoughts mom was in tears... angels everywhere!!

Maine, I'm sorry that the first procedure never went well, but it seems your outlook is fine and that is tough to do in the face of adversary.... I'll try to be like you and stand tall!! thanks for everything!
It sure isn't a bed of roses.
My stoma is higher in my left side, just under my ribs with the top of the Convatec wax ring,, no blowouts, that would be another tough one to take, especially if it was often, its just uncomforatable riding on my ribs...
Thanks so much for the kind words,, I'll be praying for you as well!

flchurchlady,,, thanks goes to you as well to take the time to reply to me..
I just love my morning coffee, never had it in the hospital, but now that I'm home its fresh ground beans again in the morn,,, can't tell if it does anything tho really...
I'm finding my energy level is going up everyday,,, unless I start to dwell on what happened then I find myself slipping into depression... don't want to go there, there is too much to be thankfull for and too much to do in the future.
I work as a concrete forming carpenter, building bridges and dams and big mills,, a union carpenter. :)
My hobbie is handcrafting longbows as archery has always been of great interest to me..
the primitive skills have my attention and I love to recreate the tools of the past..
different I know, but thats just me! :)
Pass a warm hello to my fellow carpenter and thankyou so much for the kind and inspirational words...
another new friend :)
Ohio, thanks so much for the tips..
some of them I already do, like folding back the opening, and having everything set up and ready to go.
My colostomy seems to have a mind of its own as well although there is a period in the afternoon between 1pm and 4 pm where it is quiet and I can change wafers and such..
I thank you for your idea of going to the suppliers to try there wares,,, I will do that! Thanks!
I use baby wipes, alcohol free for cleaning around the stoma area,, nurses suggestion, anyone else use this, stings some, I'm thinkin a warm cloth would be best...
My hospital does not have the ET nurses,, I have to travel 2 hours to a larger center to have them take a look,,
I will give them a call after the long weekend and see what they say,, I would like a professional opion.
Thanks for the wishes,,, I'll use some and send some back to you to use!

Summerstorm, :)
I like your username :)
Everything people offer is of use to me, even if it is just hearing from someone who cares enough to post!
I think I will be going to Walmart and looking for some cheap towels as well, nothing seems to clean like cloth!
The first time I tried to clean my Stoma I used Kleenex,,, not good! stuck fast to the Stoma and had to be recleaned.... live and learn they say,,,, I'm likin the towel idea ;)
Thats a good tip with the tissue rolls, but it seems mine is quiet enough to not give me much grief..
It just seems I need a bigger bag,,, I must be full of it. haha
Waking up at 4am to do a drain then 6:30 am, then again around 8 am,,, quiet till 5 pm then active till around 7pm or so,,,till it starts all over
Its like squeezing toothpaste of of a tube,,, kinda sorta...
Summerstorm, thankyou so much for repling,, it helps the soul, it really does :)

Thank you all once again! and thanks be to God for the angels on the internet!
Bless you's all!
Terry

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/19/2008 9:08 AM (GMT -6)   
i need to tell you about the towels, throw them in the wash a few times, otherwise they are kind of linty. and as for thinking about it all the time, after you have had it a while, you won't think about it all the time, in fact, i was at the gym and didnt' think about it all, and lots of times, at night when i am playing games on the computer, or talking posting on other forums (not this one obviously,lol) i totally forget i have it.
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