Trouble passing gas

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Lew1201
Regular Member


Date Joined Mar 2007
Total Posts : 111
   Posted 5/20/2008 9:04 AM (GMT -6)   
My son had step 1 of the j pouch surgery done April 18th.  Prior to that he had been on 6MP, Remicade, and Prednisone.  We have been in the hospital twice since his surgery. The first time for these terrible mouth sores and scrotal sores.  This time for a blood clot in his arm and huge blood pressure drops whenever he stands up.  He has had more tests and blood drawn than any person should have and they really don't have any answers. We are SOOOO FRUSTRATED and depressed. Now our issue is twice since we have been here, he has had two occassions where he ate a larger meal or a greasier meal (a bacon cheeseburger / corn dog & fries).  After that he felt really gassy, but didn't pass any gas.  His stoma is really quiet and non active when this happens.  The backed up gas gets so bad that he throws up.  Is this just a matter of him never being able to eat these foods again or large amounts of food or is it because he's so inactive.  We tried Gas X and Beano, but neither really did anything.  I'm soooo tired of hospitals and it seems everytime we leave, we end up back with new symptoms.  NOBODY understands and I'm really at the end of my ropes. I just want him to feel better and to be able to get on with his life (which is what was supposed to happen).
Mother of 18 year old son
Ileostomy on April 18, 2008
 


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 5/20/2008 1:58 PM (GMT -6)   
This sounds like an ileus. I know this has to be frustrating and discouraging but it will get better. Make sure your son is getting out of bed and walking. He needs to walk to wake the bowels up.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/20/2008 5:53 PM (GMT -6)   

lew1201-I agree with suebear, it does sound like ileus.  I know it is the hardest thing to do, but getting up and walking will do wonders.  I had several problematic days during my last surgery and the last thing I wanted to do was walk and depression comes too easy....It was the one thing that helped the problem!

Keep positive yeah


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 5/21/2008 6:03 AM (GMT -6)   
I don't have a j pouch, but I do have a regular old ileostomy.

I agree with walking... as bad as it may hurt to stand upright when you are in pain, it really does help "move" things along.

Is he by chance, drinking sodas with his burgers and corn dogs? Many times, sodas can cause a lot of gas that can be painful. Even a person w/o an ileo can get gassy from sodas.

Staying well hydrated is important. Does he like gatorade? Or anything else that is not carbonated? Ice tea can be a diruetic, like coffee. I like cranberry/black cherry juice but I mix it at least 50/50 with water. Cranberry is good for the kidneys, etc. too and tastes pretty good with the black cherry juice. Be sure he is drinking plenty with his meals too. Maybe the food is tasting so good that he forgets to drink enough with his meal... been there, done that!

Keep your chin up. It's like fine tuning a car. Once you get it figured out, it runs smoothly. There should be a manual for every single human being so we don't have to figure this out on the fly! Keep in touch,


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 

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