Staples are out!

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78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 5/21/2008 7:26 PM (GMT -6)   
...and the verdict is in: Crohn's Disease.

Dr. removed about 7" of the left side of my descending colon. He found some other 'indicators' that pointed towards this disease, but nothing requiring surgical intervention at this time. Just the one large, ulcerated spot.

I'm not sure what that means for further treatment. I just did a quick read on C'sD and find the treatment options are basically the same meds as I was taking for UC. For which I had no positive results. Hopefully the surgery has removed the 'problem spot' and I won't have any other flares or will be able to get future flares under control before they get out-of-hand.

Still, I feel remarkably well. Belly is still tender, but abdominal muscles are getting stronger every day and I am able to eat more and more.
We stopped and visited Q (my horse who I boarded during recovery) on the way home from the Dr office today. She pricked her ears right up when I called her name and I fed her a few of Hubby's french fries.

The drive home from the hospital the other day was an ordeal. Hubby, trying to get me home 'quickly' was on-the-gas, on-the-brake and lane changing. I finally lost it and told him I needed him to remain a smooth speed and keep forward/backward and side/side motion to a minimum. Every time I had to tense my abdomen for a sway of the car, my head falling back from acceleration or trying to step on the brake on my side of the car, it caused my abdomen to tense up and I was going to be very, very sore when I got home.
Luckily, he listened and started driving better, but I thought I was going to have to 'brain' him for a moment there. Or maybe I just wanted to 'brain' him?
 
I'll be checking out the Crohn's Forum.
h

I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
UC is pretty darn crappy, but if you can't laugh at yourself, you'll cry. 
I'd much rather laugh.


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 5/22/2008 10:58 AM (GMT -6)   
Yeah, no staples! I can understand your frustrations with the drive home...my hubby did his best, but the potholes were too much for him! The first trip to the barn is always the one you'll remember...I know my horse missed seeing me all those weeks:) Just be careful about lifting too much too soon.

Does your doctor want you on any maintenance drugs?

78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 5/23/2008 6:22 AM (GMT -6)   
Yes, I'll have to be on some type of maintenance but I have to await my appointment with my GI specialist.  I'll hear from them today and probably have an appointment w/in the next 2-3 weeks.
I had no response the the meds I had previously been on, but I am hoping the problem spot was so out of control, nothing was going to help it.  It was a runaway freight train with all its' weight/momentum behind it, nothing would stop it.  Perhaps now that it is gone, we can keep things under control and prevent them spinning out of our control.  I just want to keep things managed.
h
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
UC is pretty darn crappy, but if you can't laugh at yourself, you'll cry. 
I'd much rather laugh.


Irish_Mom
Regular Member


Date Joined Apr 2007
Total Posts : 385
   Posted 5/23/2008 8:10 AM (GMT -6)   
Glad to hear you're home and on the mend. I can totally relate to your drive home experience. I was actually nodding in agreement as I was reading. My hubby does the same thing (tries to avoid potholes, etc.), but those quick stops are killers. Take care and take it easy.
Terri
 
_________________________________________________________________________________
Breast Cancer at 37; bilateral mastectomy with reconstruction.
Colon resection 2004; Sub-Total colectomy September 2007 for colonic inertia - didn't work.
Son (HLA B27 positive) diagnosed with Crohn's at 17 (now 21). Taking Asacol and 6MP with Prednisone and Rowasa added during flareups. Recently diagnosed with ankylosing spondylitis - now on Humira.
Husband HLA B27 postive with ankylosing spondylitis and psoriatic arthritis.


tpoof
Regular Member


Date Joined May 2008
Total Posts : 34
   Posted 5/23/2008 8:21 AM (GMT -6)   
I hear you on the car ride... I had the same experience! seems like everything wants to slosh around.. haha
I'll pray the sun will be shining on you from here on out!
Good luck!
a perforated Diverticlum survivor and colostomy wearer

May 02/2008


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 5/23/2008 1:14 PM (GMT -6)   
I had a 2 hr ride after my surgery years and years ago --- remember it very well. Suggestion from my nurse was to have extra pillows in the car and try to lay down in the back seat. You don't have to hold yourself upright that way, but the bumps still hurt!
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 5/24/2008 7:06 AM (GMT -6)   
I don't think I could lay down while Hubby drives. How could I tell him how to drive if I was laying down and not able to see? :D

I think a pillow would have been best, we used a folded up bath-towel over my belly and under my seatbelt. I braced my left elbow on the armrest, holding my belly with my hand and held the OMG-handle with my right hand. Big leather seats, I slide on leather seats.
Felling better/better. Belly is a little 'tight' and I can't straighten up all the way unless I do it slowly. I want to stretch so bad, but if I stretch back too far, my belly isn't strong enough to pull me forward. I've been using Hubby as a sort of physical therapist. I stand facing a wall and have him stand behind me. I lean my back on his and he leans forward a little, then bends side/side a few times and then stands me upright again. Doing this, I can use my belly muscles as much/little as I like and I feel it is helping them to regain their strength w/out fear of hurting them.
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
UC is pretty darn crappy, but if you can't laugh at yourself, you'll cry. 
I'd much rather laugh.


tpoof
Regular Member


Date Joined May 2008
Total Posts : 34
   Posted 5/24/2008 9:17 AM (GMT -6)   
don't think I could lay down while Hubby drives. How could I tell him how to drive if I was laying down and not able to see? :D

Haha! tongue
Thats a good one!
My staples have been out for almost 2 weeks and it gets better everyday! :-)
Ya, still sore and can't have a good stretch... yet..

This will just take some time I reckon....
Good luck to you!
Wish you all the best! :-)
a perforated Diverticlum survivor and colostomy wearer

May 02/2008

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