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ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 5/28/2008 3:49 PM (GMT -6)   
I've been making two lists... Reasons to have surgery and reasons not to. So far the first one is much longer! I thought I would share what I've come up with.
 
REASONS TO HAVE SURGERY   
1) No more worrying about where every toilet is when I go out   
2) Being able to go out without having to run to the toilet several times   
3) Being able to enjoy social gatherings without worrying about getting sick or having to use someone's toilet
4) Not having to worry whether everything I eat is going to make me sick   
5) Can't have colon cancer without a colon!    
6) Finally be able to feel healthy again   
7) No more taking handfuls of questionable medications   
8) No more living off of Immodium AD   
9) Seems like pregnancy would be easier and less risky with j-pouch/colostomy than with colitis
10) No point in waiting for a cure that may never come or may come when I'm 80… What a waste of life!
11) Tired of wondering when the next flare will be, when this flare will end, what this food will do
12) Even if I don't get colon cancer I could end up with other cancers or illnesses from all the meds- especially ones like prednisone!
13) If the J-Pouch doesn't work I can always try the BCIR which is performed very close to where I live!
14) Most of the things on the after-surgery diet restriction list I don't eat anyway!
15) I feel like it would be better to have surgery when I'm young and not in a severe state of health that way I can heal better and have a smoother recovery, instead of waiting until it's medically necessary and I'm too ill to bounce back quickly.
16) Even though it's scary I think it would be a large change for the better in my quality of life, even though it's not that bad at the moment it was and probably would be again
17) NO MORE UC!
 
 
REASONS NOT TO HAVE SURGERY
1) Surgery scars and stoma… I'm already self- conscious and insecure as it is; how will these effect me mentally?
2) After J-Pouch surgery it says most go to the bathroom 6-10 times a day for awhile, which would be just like having colitis!
3) How will I be able to pay bills if I'm off work for a few weeks?
4) What if David finds me unattractive after the surgery? Even though he says he still would always love me I still worry
5) No more wearing a bikeeni, but I don't really like to anymore anyway
6) Will my clothes fit me the same, will the bag be uncomfortable?
7) What if I have the surgery and feel worse and regret it?
8) No going back, no changing your mind- HUGE life change
 
If you can think of anything else I should add to think about, to either list, let me know!!!

Ash83
Regular Member


Date Joined Nov 2007
Total Posts : 128
   Posted 5/28/2008 4:37 PM (GMT -6)   
The list of PROS has many valid reasons geared towards quality of life. The list of CONS, while still very validated and true, is more geared towards cosmetics instead of quality of life. When I'm having a rough day I sit and think sometimes if I'd rather go to the bathroom 10x a day but be able to show off my stomach(oh the convenience)or to keep my midsection covered but enjoy life and have no worries about the bathroom or discomfort. A reversal might be an option in the future for me, and when it does happen I'll deal with that as it comes. But for right now, I'm enjoying the freedom this ostomy has given me.
 
I don't know your story, but I will tell you this. Everything in life is give and take(I'm sure you know this). It didn't take very long for me to realize that we just trade things in, for better or for worse, instead of having it all be flowers and sunshine. I would love to have had a colectomy, with no bag, with regular BMs instead of the horrible "D". Heck, I would have loved to just be healthy from the start and never have to have problems at all. But instead of counting my losses, I count my blessings.
 
I would LOVE to be able to wear a bikini on the beach this summer. It gets kind of depressing going shopping and seeing tons of cute bikinis hanging on the racks knowing I can't wear any. But then I think back to all of the positive things about my situation that really make wearing a bikini/showing my stomach pretty obsolete and minimal. And actually, it's more the convenience of not being able to wear one that bugs me the most. There are tons of tankinis/one pieces and different "tricks" to be used. No discomfort, no worrying about not going to the bathroom or going too much. It really is wonderful. But, it is what you make it.
 

ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 5/28/2008 5:33 PM (GMT -6)   
Yeah, when I think about the bikini thing... Most of the time, I'm too afraid to go to the beach anyway because I know I won't have easy access to a bathroom. So I can't eat before going to the beach if I want to enjoy myself, but then being hungry and sitting in the hot sun makes you feel like crap, so either way I'm not feeling well, so it's sort of lose-lose!!

Thanks for the response, it's nice to hear everyone's different point of view.
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of the spine from long term prednisone use.

Current Meds:
10mg Lexapro (for depression/social anxiety)
Digestive Advantage: Crohn's and Colitis formula (2 pills per day, started 5/14/08)
125mg Azathioprine
4800mg Asacol (Four 400mg tablets, three times a day)
 
 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/28/2008 6:21 PM (GMT -6)   
you have soem good items on your lists. My con list was pitiful, it had three things on it, lol.

there are people with ostomies who wear bikinis, there was a miss USA contest with one sometime. I think she was from Oregon, but that may not be right.
Ash, i dont' know how old you are old, and ediekristen, you are 22 now, so i know ya'll want to wear bikinis when you are young, but once you have babies and all, you probably won't want to wear them anyway! my bikini wearing days were over way before the surgery and i am only 30. So, don't put to much stock in the cosmetic part of it, like you said, you don't feel like even going on the beach when you have UC. My suit is really cute, or at least i think so, and it doesn't show my bag at all. It's a little uncomfy at first, but you get used to it.
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