sub total colectomy

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ildivo
New Member


Date Joined May 2008
Total Posts : 4
   Posted 5/29/2008 10:04 AM (GMT -6)   
Can anyone offer any dietary advice please? My husband had a sub total colectomy on May 6th 2008 and food is going through him too quickly even with 4 daily Immodium capsules.Does it get better because at the moment, we are housebound and very unhappy at the situation.
 
Thanks in hope from the wife of ildivo

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 5/29/2008 4:04 PM (GMT -6)   
There are some things to certainly avoid and some to include in his diet that would probably help, but I have to say that everyone's system is a little different. What works for one may not work for the other.

Immodium is a good first step. I have an ileostomy and can take up to 3 with each meal to help my output. I find that if I get things under control first thing in the morning, it seems to help all day long. Like reminding the colon to slow down. So, first thing out of bed I take my first dose.

I know from lots of practice that caffeine, sugar and fatty or deep fried foods will, without a doubt, really increase my output. I also know that oatmeal, bananas and cooked veggies slow it down. Others recommend marshmallows. Be careful if introducing any new foods if they have not been consumed before now. I still want my coffee in the a.m. but choose decaf now. I've completely eliminated carbonated beverages for several reasons. I still splurge on some of the things I like but I do know in advance what the results will be - high output.

Hope this helps.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


SubColectomyHereICome
Regular Member


Date Joined Jan 2008
Total Posts : 56
   Posted 5/29/2008 5:28 PM (GMT -6)   
Oh wow, I am sorry to hear that, ildivo. While I can't offer any advice, I'm wondering if anyone knows if this is a common problem after having a subtotal colectomy? I am having one in June and am now worried that I will have the opposite problem. I can't imagine being housebound! Best of luck...

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 5/29/2008 5:31 PM (GMT -6)   

Have him add fiber to his diet.  Either metamucil powder (follow directions but only use 1/2 cup water) or metamucil cookie/wafers.  That product will help to absorb excess water until his new plumbing adapts.  Eliminate anything with sugar in it, including fruit juices.  Sugar makes things loose.  Also eliminate carbonated beverages until he is beyond the adaption phase.  Eat more bulking foods like rice, pasta, oatmeal, and bananas.  I recommend canned vegetables until he's a bit further along.  He can really up the imodium.  Remember, his intake of fiber and imodium will be trial and error until he finds the right balance.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


ildivo
New Member


Date Joined May 2008
Total Posts : 4
   Posted 5/30/2008 2:48 AM (GMT -6)   
Thanks very much to Peggy and Suebear, it's comforting to know we aren't on our own with this problem, it is overwhelming at times. There is some very helpful information in your replies which we will certai
nly use - have tried the marshmallows, no real help in our case. Ildivo
 
 Sub-Colectomy here I come:- the very best of luck to you for your surgery. Do make sure you have lots of help and support from your doctor and medics afterwards too, after discharge from the hospital is when you need it the most. On a more positive note for you, take each day as very tiny steps towards your recovery, there will be some dips but overall, the recovery graph should climb, albeit slowly. :-) Ildivo
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