Don't feel guilty! I know exactly what you are feeling because I have felt the same way. My poor daughter spent many years (4-10) making her lunch/dinner, if her daddy was working, because all I could do was lay on the couch! Now, I am making up for lost time, going out with my husband, travelling (we fly to NV tonight to see the Grand Canyon), taking her anywhere she wants to go (pool, movies, mall) and most importantly for her... to horseshows! She also spent alot of time with her grandparents when I was sick...and I am forever thankful that they took the opportunity because now that some of them are gone she has GREAT memories.
We experience emotions not many people do...it is difficult to have to live with such illnesses and then to have to make the decision to have our colons removed...I like to think it has only made me stronger and your feeling of guilt will soon change, too. Good Luck!