Temp Ileostomy info

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Mark & Megan
Regular Member


Date Joined Jun 2008
Total Posts : 89
   Posted 6/21/2008 3:32 AM (GMT -6)   
Hello,
 
I went through the total proctocolectomy surgery and had a temp ileo, now I'm living with j-pouch. Anyways, I documented my surgeries with photos and text, including my life with my temp ileo.  Thought you may want to check out the site and hopefully something will be useful on their for you. 
 
 
Mark h.

LittleE
Regular Member


Date Joined Mar 2008
Total Posts : 137
   Posted 6/21/2008 10:25 PM (GMT -6)   

Mark,

I just checked out your site and I think it is absolutely GREAT!  :-)  

I had ileostomy surgery in May.  When I knew I was going to be having the surgery, I can't tell you how many times I googled all kinds of things about stomas, ileostomies, bags, etc. just to get a picture of what I would look like, what the stoma and bag look like, etc.--I had no clue what to expect....and there is hardly anything out there showing this!!!

Your site has exactly what I was looking for--pictures of a real young adult going through ileostomy surgery--with clear pics of the stoma, scars and bag...! 

I think you are brave, and I am SURE you are helping many other young people who are facing surgery to know what to expect!!  I would have loved to see your site before my surgery!  Surgeons can tell me what to expect until they are blue in the face, but a picture is 100 times more real to me then any verbal description...

Also, glad to know you are healthy again!!!! Isn't is great? :-) :-)

Erin


Mark & Megan
Regular Member


Date Joined Jun 2008
Total Posts : 89
   Posted 6/21/2008 10:43 PM (GMT -6)   
Awesome compliment, thanks! Yeah, this was one of the reason we did this, was because Megan is a visual person and before my surgery she was searching and searching for visuals. And that made it worse b/c she was finding things irrelevant to my surgery like ostomy stoma, or perm ileos, and you know a temp ileo is completely different. Mainly though it was a way in the beginning to help our loved ones feel comfortable with my process and so none of it was shameful or anything. Plus, it helped Megan be part of things b/c she could document the surgery and vent in the "text". We really want to encourage others to documetn their process even if it isn't for public like ours just for thier family an friends so they can see hte process in real times.

Glad you are well now, and yes, it is incredible I can't believe I was sick so long.

Mark
Surgery/Recovery and Daily Life Photo & Journal below. http://ucstory.wordpress.com/ Check it out, we are updating regularly it isn't just the surgery photos, we've expanded!
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